Forum Discussions (183)
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 How has Ben's Friends impacted your life?Ben's Friends social development work is captured in this awesome Harvard Business Review article Deliver Big Impact on a Small Budget. In… Started by Ben Munoz in GeneralLatest Reply |
 PSC ConferenceI have received an invitation to a conference put on by PSC Partners Seeking a Cure. It appears to be mainly an educational meeting in Pit… Started by EAD3 in GeneralLatest Reply |
 2nd positive FISH testI have had 2 test positive with polymosy but not cancaer. Im out at mayo and they just want to wait till may to test a 3rd time.can anyone… Started by pepsi in GeneralLatest Reply |
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Hope for PSC and UC?? -Not based on medical advice but working for my wifeGuys I hope the following will give some of you hope. My wife was suffering with UC and PSC. She was being treated with Pentasa, Azathiopri… Started by Hope this helps in General |
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yesterday Reply by mom to psc teen |
 Diagnosed with PSC five days ago so I'm new to this whole thing. Any information I can recieve would be greatly appreciated.I am a 38 year old Mum of 4 from Australia so if anyone else is from the same part of the world as me I would love to hear from them.As I s… Started by Aussie Mum in General |
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yesterday Reply by mom to psc teen |
Study: Coffee linked to reduced risk of PSCCouple of interesting scientific findings below. Nice to know that PSC research is active around the world and the search for the cure is… Started by Ted in General |
0 | yesterday |
17 yr old Son with UC and PSCHi all, hope you're all feeling well. My son was diagnosed last year with UC and six months later, PSC. His UC is being treated with Azat… Started by Motherofone in General |
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yesterday Reply by Motherofone |
Galblader removal and PSCHello all! I have a PSC and in a recent scan, they discovered some sludge and potential residu in my galblader. The GP advised me to remove… Started by Lancelot in General |
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on Monday Reply by JonW |
What do you like to do to occupy your time with?For those of you who aren't able to work any more. What do you like to do to fill your time? If you do crafts, what kind of a craft do you… Started by Ben Munoz in General |
0 | on Monday |
Mayo ClinicI am headed to the Mayo Clinic for a second opinion on my small canalicular type PSC. Does any one have experience going through Mayo with… Started by EAD3 in Recommend a Doctor, Therapist, or Clinic (Positive Review Only) |
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May 16 Reply by Paul Hain |
Ducts blocked: Stent placementI have been informed both my left and right ducts are blked. My doc says my left duct is completely blocked and i need to get a percutaneou… Started by Mike in General |
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May 16 Reply by Mike |
PSC/AIH/UC & vomiting - help!Hi- My teen soon was diagnosed with PSC/AIH/UC in March. He has been on prednisone and now prednisone and vancomycin (a la Cox). He has bee… Started by mom to psc teen in General |
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May 14 Reply by mom to psc teen |
My twin girls..I wake every morning as I have for the last 2 year in fear for my daughters existence. They're my love, my life and all I have of their Fa… Started by Teddy in General |
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May 14 Reply by Teddy |
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Blog Posts
May 2013 Community Newsletter
Posted by Ben on May 25, 2013 at 7:21am 0 Comments 0 Likes
Dear LivingWithPSC Family and Friends,
Celebrating Awareness Months for specific rare diseases are a great way of procuring attention to our cause. By discussing our condition and helping to educate others, our active participation creates…
Continue Preparing For An Appointment With A New Doctor
Posted by Ben on April 27, 2013 at 8:46am 0 Comments 0 Likes
Finding a new doctor can be difficult, and very scary. Being prepared can make the whole experience much easier on you, and on the new doctor. Remember that the doctor works for YOU, and if you are…
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