Primary Sclerosing Cholangitis (PSC) - Online Support Group

We are patients living with primary sclerosing cholangitis (PSC), here for you!

Forum Discussions (18)

Featured Discussions
Hope

Percutaneous tube (PCT)

Thanks, for the warm welcome. This is my first time posting on the discussion board. I was just informed by my physicain today that she wou…

Started by Hope in GeneralLatest Reply

Discussions Replies Latest Activity
PSCMom

Wanting to help my son

My son is 12 years old amd was just diagnosed with PSC, UC, and autoimmune hepatitis. My husband has Crohn's Disease so while the IBD diagn…

Started by PSCMom in General

11 on Tuesday
Reply by Lorraine F
PSC Mommy

Toddler with PSC

My son is a very active 3 year old.  He was diagnosed with UC last year and last week was diagnosed with PSC.  He doesn't have any symptoms…

Started by PSC Mommy in General

4 on Saturday
Reply by Ellie
idahogrose

The battle

Hey Everyone!  About 7 years ago I went partying with some friends and woke up the next morning jaundiced. Because of lapses in healthcare…

Started by idahogrose in General

11 on Saturday
Reply by Ellie
Pandora

Portal vein thrombosis

Hi, Everyone! I am a 10+ year PSC patient, still waiting to be sick enough to make it onto the transplant list. However, at my most recent…

Started by Pandora in General

3 on Saturday
Reply by Ellie
Hope

Percutaneous tube (PCT)

Thanks, for the warm welcome. This is my first time posting on the discussion board. I was just informed by my physicain today that she wou…

Started by Hope in General

4 Feb 14
Reply by Zedition
Paul Hain

Live donor liver candidate search

Have any of you had a live donor liver transplant? My family and friends have been helping find a donor, but it is hard. I am a blood type…

Started by Paul Hain in General

2 Jan 19
Reply by Paul Hain
Stacy

Itching ... ?

Hey all,   I found this forum after searching for a general support group. I'm 24 and have PSC and mildly active UC. For months now, I've b…

Started by Stacy in General

19 Jan 10
Reply by Paul Hain
Joseph

Navigating Insurances - Health, Life & Disability

I'm having difficulty navigating different insurance options provided by my employer and third parties.  I've gotten Life Insurance coverag…

Started by Joseph in General

0 Dec 29, 2011
Ben Munoz

How to Create Group and Organize A Meetup in Your City

Since others have subsequently asked about organizing groups and meetups in their area, the moderators and I have decided to create this fo…

Started by Ben Munoz in General

0 Dec 16, 2011
Ricardo

Hi

First time here looking for some support, answers and other peoples experience. Maybe refer me On with great stories. Last results from th…

Started by Ricardo in General

2 Dec 14, 2011
Reply by Sue Nielsen

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