Primary Sclerosing Cholangitis (PSC) - Online Support Group
We are patients living with primary sclerosing cholangitis (PSC), here for you!

Since others have subsequently asked about organizing groups and meetups in their area, the moderators and I have decided to create this forum discussion so the community can throw out ideas and…Continue
Started Dec 16, 2011
Apologies, this is a re-ocurring problem. I've found that if I scroll down on the page farther, creating 2 inches between the "Send" button and the bottom of the browser window, then it works. When…Continue
Started Aug 13, 2011
A member of our sister site http://www.ChiariSupport.org posted a tutorial on how to make our community easier to find on the internet by linking to us from…Continue
Started Jun 28, 2011
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Rose Andrade commented on Ben Munoz's group Moderators Group


Dear Friends and Family of LivingWithPSC,
We are so excited we cannot wait to tell you about how our organization is growing, so we’ll go straight at it. We are please to tell you that collectively our patient communities have reached four consecutive monthly peaks in all aspects of our activities, overshooting even the targets we have set ourselves two months ahead!
Here are some highlights:
Total members for all communities at…
ContinuePosted on May 26, 2012 at 8:00am
Dear Friends and Family of LivingwithPSC,
April – the smell of spring in the air!
Spring brings a lot of positive notes: it signals growth and rebirth. As Ben’s Friends, our patient support group is growing real fast. As a member community, you’ll see stats on how we contributed to this growth as reported below. Be assured that no matter how small the contribution may be, it adds up and it is very much appreciated!
Our presence is being felt…
ContinuePosted on April 21, 2012 at 5:30am
Dear Friends and Family of LivingwithPSC,
February brought us great strides as our various communities of rare disease support groups gathered the largest number of new memberships of all time! The volume of blog posts, comments and discussions also increased. We at Ben’s Friends commend you all for your active support of our communities!
IN THIS …
ContinuePosted on March 23, 2012 at 2:28am
Dear Friends and Family of LivingWithPSC,
As you well know, living with PSC can be very challenging not only for you but to your families as well. This organization was built with a view to helping you and your families to live up to this challenge by linking you up with people who share similar experiences and have succeeded in maintaining a positive outlook!
Explore more how our community had helped members face the…
ContinuePosted on February 23, 2012 at 1:03am
Join Primary Sclerosing Cholangitis (PSC) - Online Support Group
David Feldman said… Ben,
Sorry it took me so long to respond. So Toni has been doing excellent work - we're over 50 people now!
I'd love to make a living with PSC video... how do we do that?
This community is part of the Ben's Friends network of patient communities. Learn more at bensfriends.org.
Patient Communities
Acute Disseminated Encephalomyelitis (ADEM)
ADHD/ADD
Adrenoleukodystrophy (ALD)
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Primary Sclerosing Cholangitis (PSC)
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Synovial Sarcoma
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Von Willebrand's Disease (VWD)
Other Rare Diseases
We never realize the value of organ donation, until we're on the receiving end.…
Posted by Armando Abrero on May 27, 2012 at 10:40pm
Dear Friends and Family of LivingWithPSC,
We are so excited we cannot wait to tell you about how our organization is growing, so we’ll go straight at it. We are please to tell you that collectively our patient…
ContinuePosted by Ben Munoz on May 26, 2012 at 8:00am
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