Primary Sclerosing Cholangitis (PSC) - Online Support Group

We are patients living with primary sclerosing cholangitis (PSC), here for you!


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Ben Munoz
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  • Austin, TX
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How to Create Group and Organize A Meetup in Your City

Since others have subsequently asked about organizing groups and meetups in their area, the moderators and I have decided to create this forum discussion so the community can throw out ideas and…Continue

Started Dec 16, 2011

Trouble with the Send Button (or Other Buttons)

Apologies, this is a re-ocurring problem. I've found that if I scroll down on the page farther, creating 2 inches between the "Send" button and the bottom of the browser window, then it works. When…Continue

Started Aug 13, 2011

How To Make Our Community Easier to Find

A member of our sister site http://www.ChiariSupport.org posted a tutorial on how to make our community easier to find on the internet by linking to us from…Continue

Started Jun 28, 2011

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Ben Munoz's blog post was featured

May 2012 LivingWithPSC Community Newsletter

Dear Friends and Family of LivingWithPSC,We are so excited we cannot wait to tell you about how our organization is growing, so we’ll go straight at it. We are please to tell you that collectively our patient communities have reached four consecutive monthly peaks in all aspects of our activities, overshooting even the targets we have set ourselves two months ahead! Here are some highlights:Total members for all communities at the end of April: 17,629. This is 924 higher than March, our biggest…See More
yesterday

Moderator
Ben Munoz posted a blog post

May 2012 LivingWithPSC Community Newsletter

Dear Friends and Family of LivingWithPSC,We are so excited we cannot wait to tell you about how our organization is growing, so we’ll go straight at it. We are please to tell you that collectively our patient communities have reached four consecutive monthly peaks in all aspects of our activities, overshooting even the targets we have set ourselves two months ahead! Here are some highlights:Total members for all communities at the end of April: 17,629. This is 924 higher than March, our biggest…See More
Saturday

Moderator
Ben Munoz posted a blog post

April 2012 Community Newsletter

Dear Friends and Family of LivingwithPSC,April – the smell of spring in the air!Spring brings a lot of positive notes: it signals growth and rebirth. As Ben’s Friends, our patient support group is growing real fast. As a member community, you’ll see stats on how we contributed to this growth as reported below. Be assured that no matter how small the contribution may be, it adds up and it is very much appreciated!Our presence is being felt globally online and we recognize your participation on…See More
Apr 21

Moderator
Ben Munoz posted a blog post

March 2012 Community Newsletter

Dear Friends and Family of LivingwithPSC,February brought us great strides as our various communities of rare disease support groups gathered the largest number of new memberships of all time! The volume of blog posts, comments and discussions also increased. We at Ben’s Friends commend you all for your active support of our communities! IN THIS ISSUE -———————————————————————————————————1.  Welcome New Members2.  Featured Group:…See More
Mar 23

Moderator
John "JC" Colyer joined Ben Munoz's group
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Moderators Group

This is a private group exclusively created for LivingwithPSC.org moderators.See More
Mar 16

Moderator
Ben Munoz posted a blog post

February 2012 Community Newsletter

Dear Friends and Family of LivingWithPSC,As you well know, living with PSC can be very challenging not only for you but to your families as well. This organization was built with a view to helping you and your families to live up to this challenge by linking you up with people who share similar experiences and have succeeded in maintaining a positive outlook!Explore more how our community had helped members face the challenge of fighting rare, debilitating illnesses by weaving a web of…See More
Feb 23

Moderator
Ben Munoz commented on Ben Munoz's group Moderators Group
"Hi,  The LivingWithTN.org moderators have initiated developing some guidelines to help community moderators in approving new members and helping the network to avoid spammers. Please check out these helpful guidelines and see what you can add…"
Feb 8

Moderator
Ben Munoz posted a blog post

January 2012 Community Newsletter

LifeWithMultipleMyeloma Members, Friends and Family,As we begin a brand new year, envigorated with greater joy and compassion, we renewed our greater commitments to our community. BensFriends grew tremendously in the past three years, and we want to take this moment both to thank you and to make a promise to continue fulfill our mission: to ensure that everyone in the world with a rare disease has a safe place to go and connect with others like them.We’re truly privileged to help you make 2012…See More
Jan 26
Rose Andrade commented on Ben Munoz's group Moderators Group
"Hi, we'll be releasing our community newsletter this Thursday, anyone who would like to add specific anouncements for the community? Please let me know. Many Thanks!"
Jan 24

Moderator
Ben Munoz posted a blog post

December 2011 Community Newsletter

LivingwithPSC Members, Friends and Family,We hope this message finds you well with high spirits and inner joy. We’re happy to inform you that our Primary Sclerosing Cholangitis (PSC) community continuously been growing. And as always, we’re here to give strength and support. -------------------------------------------------------------------------------- IN THIS ISSUE--------------------------------------------------------------------------------1.   …See More
Dec 21, 2011

Moderator
Ben Munoz posted a discussion

How to Create Group and Organize A Meetup in Your City?

Since others have subsequently asked about organizing groups and meetups in their area, the moderators and I have decided to create this forum discussion so the community can throw out ideas and dates for meetups in other cities around the world. Creating Groups:Create a group within the communityhttp://www.livingwithpsc.org/groups Organizing Meet-up:Within your created group, you can add a discussion forum to talk about meet-ups…See More
Dec 16, 2011
Profile IconRose Andrade and Scott Orn joined Ben Munoz's group
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Moderators Group

This is a private group exclusively created for LivingwithPSC.org moderators.See More
Nov 21, 2011

Moderator
Ben Munoz posted a group
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Moderators Group

This is a private group exclusively created for LivingwithPSC.org moderators.See More
Nov 21, 2011

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Ben Munoz posted a page
Oct 12, 2011

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Ben Munoz posted a page
Aug 29, 2011

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Ben Munoz posted a page
Aug 25, 2011

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Ben Munoz's Blog

May 2012 LivingWithPSC Community Newsletter

Dear Friends and Family of LivingWithPSC,

We are so excited we cannot wait to tell you about how our organization is growing, so we’ll go straight at it. We are please to tell you that collectively our patient communities have reached four consecutive monthly peaks in all aspects of our activities, overshooting even the targets we have set ourselves two months ahead!

 

Here are some highlights:

Total members for all communities at…

Continue

Posted on May 26, 2012 at 8:00am

April 2012 Community Newsletter

Dear Friends and Family of LivingwithPSC,

April – the smell of spring in the air!

Spring brings a lot of positive notes: it signals growth and rebirth. As Ben’s Friends, our patient support group is growing real fast. As a member community, you’ll see stats on how we contributed to this growth as reported below. Be assured that no matter how small the contribution may be, it adds up and it is very much appreciated!

Our presence is being felt…

Continue

Posted on April 21, 2012 at 5:30am

March 2012 Community Newsletter

Dear Friends and Family of LivingwithPSC,

February brought us great strides as our various communities of rare disease support groups gathered the largest number of new memberships of all time! The volume of blog posts, comments and discussions also increased. We at Ben’s Friends commend you all for your active support of our communities!

 

IN THIS …

Continue

Posted on March 23, 2012 at 2:28am

February 2012 Community Newsletter

Dear Friends and Family of LivingWithPSC,

As you well know, living with PSC can be very challenging not only for you but to your families as well. This organization was built with a view to helping you and your families to live up to this challenge by linking you up with people who share similar experiences and have succeeded in maintaining a positive outlook!

Explore more how our community had helped members face the…

Continue

Posted on February 23, 2012 at 1:03am

Comment Wall (1 comment)

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Join Primary Sclerosing Cholangitis (PSC) - Online Support Group

At 6:31pm on February 14, 2011, David Feldman said…

Ben,

 

Sorry it took me so long to respond.  So Toni has been doing excellent work - we're over 50 people now!

 

I'd love to make a living with PSC video... how do we do that?

 
 
 

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Posted by Armando Abrero on May 27, 2012 at 10:40pm

May 2012 LivingWithPSC Community Newsletter

Dear Friends and Family of LivingWithPSC,

We are so excited we cannot wait to tell you about how our organization is growing, so we’ll go straight at it. We are please to tell you that collectively our patient…

Continue

Posted by Ben Munoz on May 26, 2012 at 8:00am

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