Primary Sclerosing Cholangitis (PSC) - Online Support Group
We are patients living with primary sclerosing cholangitis (PSC), here for you!
Dear Friends and Family of LivingWithPSC,
As you well know, living with PSC can be very challenging not only for you but to your families as well. This organization was built with a view to helping you and your families to live up to this challenge by linking you up with people who share similar experiences and have succeeded in maintaining a positive outlook!
Explore more how our community had helped members face the challenge of fighting rare, debilitating illnesses by weaving a web of connections that allow for peer support.
IN THIS ISSUE
-———————————————————————————————————
2. Help for Low Income Americans
3. Featured Group: Friends and Family Affected by PSC
-———————————————————————————————————
Welcome New Members
-———————————————————————————————————
What better way to start than to familiarize yourself with the site! You can join discussions on the forum at the center of the home page or choose a topic of interest from our blog posts. Click My Page and start your own personal page where you can store information, communicate with other members or simply to express yourself. Read or share Blog posts, Recommend a Doctor, or get in touch with other members by sending message or a reply to a discussion post.
Nothing else works like peer support! We trust that you will enjoy your membership. Our warmest Welcome!
Remember that LivingWithPSC is always here for you!
-———————————————————————————————————
Help for Low Income Americans
-———————————————————————————————————
In these times as the economic crunch continues to load down on people, it’s hard enough to be sick, not to mention being unable to financially support ones medical needs due to poverty. We could all use some valuable suggestions and learn from others who saved on their medical prescriptions, sourced hard to find drugs, some medical equipment and services even offered for free. Check out this AVM post and find out how you can avail some of these free medicines and discounted services.
-———————————————————————————————————
Featured Group: Friends and Family Affected by PSC
-———————————————————————————————————
Bensfriends is more than your online friends, we are your family!
Share more of your family experiences and stories as you join our featured group this month: "Friends and Family Affected by PSC"
-———————————————————————————————————
Community Stats
-———————————————————————————————————
Total Unique Visitors to Site: 570
Peak Number of Members as of February 1, 2012 :185
New Members Joined Last January: 19
If you know someone who can benefit from Bensfriends, invite them to join our amazing community and tell them how our community had been your source of strength and great support!
Warmest Regards,
Your Community Moderators
This community is part of the Ben's Friends network of patient communities. Learn more at bensfriends.org.
Patient Communities
Acute Disseminated Encephalomyelitis (ADEM)
ADHD/ADD
Adrenoleukodystrophy (ALD)
Amyloidosis
Arteriovenous Malformation (AVM)
Ataxia (International)
Ataxia (U.S.A.)
Atrial Septal Defect
Brain Aneurysms
Charcot Marie Tooth (CMT)
Chiari Malformation
Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)
Crohn's Disease
Disabilities
Eagle Syndrome
Erythromelalgia
Fabry
Fibromyalgia
Glossopharyngeal Neuralgia(GPN)
Lupus
Multiple Myeloma
Myositis
Narcolepsy
Primary Sclerosing Cholangitis (PSC)
Psoriatic Arthritis (PsA)
Synovial Sarcoma
Trigeminal Neuralgia (TN)
Von Willebrand's Disease (VWD)
Other Rare Diseases
We never realize the value of organ donation, until we're on the receiving end.…
Posted by Armando Abrero on May 27, 2012 at 10:40pm
Dear Friends and Family of LivingWithPSC,
We are so excited we cannot wait to tell you about how our organization is growing, so we’ll go straight at it. We are please to tell you that collectively our patient…
ContinuePosted by Ben Munoz on May 26, 2012 at 8:00am
© 2012 Created by BensFriends.org
You need to be a member of Primary Sclerosing Cholangitis (PSC) - Online Support Group to add comments!
Join Primary Sclerosing Cholangitis (PSC) - Online Support Group