Primary Sclerosing Cholangitis (PSC) - Online Support Group
We are patients living with primary sclerosing cholangitis (PSC), here for you!
Happy long weekend everybody,
So I was having an email conversation with someone about how my diagnosis has changed my life, and I remembered back when I first got sick how frightened I was. The worst thing I had ever previously had was the flu, so being told that I had PSC came as a major shock. Like so many people here, I had no idea what it meant, how to go about thinking about the future, etc.
As such, for anyone dealing with these thoughts, a major source of inspiration for me was Chris Klug. For those not familiar with the story, Chris is a professional snow boarder who was diagnosed with PSC in 1991. In 2000, Chris received a much needed liver transplant and went on to win a bronze medal at the Salt Lake City Olympics in 2002.
I can't even begin to do the story justice. He has a great website and a book "To the Edge and Back." The point here is that for anyone who feels like their diagnosis has placed a limitation on what they can achieve (which is exactly what i felt like), just look to Chris. The guy won an OLYMPIC MEDAL... we can beat this thing. Just remember, if Chris can do it, you can to.
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We never realize the value of organ donation, until we're on the receiving end.…
Posted by Armando Abrero on May 27, 2012 at 10:40pm
Dear Friends and Family of LivingWithPSC,
We are so excited we cannot wait to tell you about how our organization is growing, so we’ll go straight at it. We are please to tell you that collectively our patient…
ContinuePosted by Ben Munoz on May 26, 2012 at 8:00am
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