Ok, this will be short and sweet.

WHY IS THERE NO ALTERNATIVE TO THIS CRAP??? I'm about to go on vacation and meet the Mother of the Man of My Heart for the 1st time - do I want to be flatulent and running to the bathroom for 5 hot days in Williamsburg, Va???? Gee, do I ever!!!! NOT. Pardon my mouth, but this shit blows chunks (literally!!!!). I try to keep taking it as prescribed, but fail miserably. 45ml's/day, 4x/day - too much, too much... makes me cramp terrible and can help vacate any room within moments. I hope we have a private bathroom... Damn it!! Does anyone know something I don't?? I have looked and scoured the web, and can find no alternative. Am I just doomed to live on this crap? Oh, and when I take it, I have to wash it down with something - like a chaser! If I taste it, it comes back!!

SCREAMING AT THE UNIVERSE TONIGHT!!!!

Views: 88

Tags: lactulose

Comment

You need to be a member of Primary Sclerosing Cholangitis (PSC) - Online Support Group to add comments!

Join Primary Sclerosing Cholangitis (PSC) - Online Support Group


Moderator
Comment by Crixus on July 22, 2012 at 11:59pm

Pandora, 

I wish I had something to advise you on this. I don't take Lactulose , yet..I have not had any reports on my  ammonia in my blood stream.. I don't have any constipation, in fact I  use to have to run to the bathroom after every time I ate food I was running to the bathroom. My doctor have me taking imodium several times a day which have worked somewhat on where i am not spending 30 minutes in the bathroom 5 to 8 times a day.. since I have been diagnosed w/ Ulcerative Colitis also that has a lot to do with me using the bathroom so now I am on medication for this.. 

 

All I want to say is that I am praying for you, I know this PSC is complicated and frustrating. I hate this itching that I go through. I got medicine for it but it barely works .. mostly makes me drowsy.. Now I am dealing with the pruritus rash on my body... I'm like shit this itching bothers me now i have this underneath skin rash in different parts of my body. I take oatmeal baths w/ epson salt which helps bt I also made up my own moisterizer which helps a lot.. Coconut oil, Olive Oil, Castor Oil & few drops of tea tree oil .. it stops the itching somewhat also.. 

 

Hang in there Pandora, I know it will get better I am praying for you 

 

Crixus 

Please Like Us On Facebook and Follow Ben's Friends On Tumblr and Twitter and Pinterest

Follow Me on Pinterest

To Support LivingWithPSC.org, Click an Ad. Or Two.

Blog Posts

Preparing For An Appointment With A New Doctor

Posted by Ben on April 27, 2013 at 8:46am 0 Comments

Finding a new doctor can be difficult, and very scary.  Being prepared can make the whole experience much easier on you, and on the new doctor.  Remember that the doctor works for YOU, and if you are…

Continue

April 2013 Community Newsletter

Posted by Ben Munoz on April 25, 2013 at 10:30pm 0 Comments

Dear Living With PSC Family and Friends,

Our prayers go to those affected by the Boston Marathon bombing. We also hope that none of our members were directly affected by it in any way.

Those who have listened to Scott’s …

Continue

Events

© 2013   Created by BensFriends.org

Badges  |  Report an Issue  |  Terms of Service