Ok, this will be short and sweet.
WHY IS THERE NO ALTERNATIVE TO THIS CRAP??? I'm about to go on vacation and meet the Mother of the Man of My Heart for the 1st time - do I want to be flatulent and running to the bathroom for 5 hot days in Williamsburg, Va???? Gee, do I ever!!!! NOT. Pardon my mouth, but this shit blows chunks (literally!!!!). I try to keep taking it as prescribed, but fail miserably. 45ml's/day, 4x/day - too much, too much... makes me cramp terrible and can help vacate any room within moments. I hope we have a private bathroom... Damn it!! Does anyone know something I don't?? I have looked and scoured the web, and can find no alternative. Am I just doomed to live on this crap? Oh, and when I take it, I have to wash it down with something - like a chaser! If I taste it, it comes back!!
SCREAMING AT THE UNIVERSE TONIGHT!!!!
Comment

Pandora,
I wish I had something to advise you on this. I don't take Lactulose , yet..I have not had any reports on my ammonia in my blood stream.. I don't have any constipation, in fact I use to have to run to the bathroom after every time I ate food I was running to the bathroom. My doctor have me taking imodium several times a day which have worked somewhat on where i am not spending 30 minutes in the bathroom 5 to 8 times a day.. since I have been diagnosed w/ Ulcerative Colitis also that has a lot to do with me using the bathroom so now I am on medication for this..
All I want to say is that I am praying for you, I know this PSC is complicated and frustrating. I hate this itching that I go through. I got medicine for it but it barely works .. mostly makes me drowsy.. Now I am dealing with the pruritus rash on my body... I'm like shit this itching bothers me now i have this underneath skin rash in different parts of my body. I take oatmeal baths w/ epson salt which helps bt I also made up my own moisterizer which helps a lot.. Coconut oil, Olive Oil, Castor Oil & few drops of tea tree oil .. it stops the itching somewhat also..
Hang in there Pandora, I know it will get better I am praying for you
Crixus
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Finding a new doctor can be difficult, and very scary. Being prepared can make the whole experience much easier on you, and on the new doctor. Remember that the doctor works for YOU, and if you are…
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Dear Living With PSC Family and Friends,
Our prayers go to those affected by the Boston Marathon bombing. We also hope that none of our members were directly affected by it in any way.
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