Primary Sclerosing Cholangitis (PSC) - Online Support Group

We are patients living with primary sclerosing cholangitis (PSC), here for you!

My name is Jesse Brooks. I am 27 years old and I have Primary Sclerosing Cholangitis and as a result of which I also have Cirrhosis of the Liver. I was diagnosed September 2006 and was just accepted into the MUSC transplant program pending my MELD score reaching at least 15. Currently it fluctuates between 9 and 13. I was previously diagnosed with Ulcerative Colitis September 2000 and struggled with it greatly all through high school. I barely avoided having my colon removed and towards the end of the second semester of my freshman year at college in 2003 the UC had diminished into almost full remission. It is still technically active, but I barely even notice it most of the time. I have met great success controlling it with Pentasa. I take Ursodiol for my PSC and it certainly helps, but as you all know it is just a matter of swimming upstream and the PSC is taking its toll on my body. It is only a matter of time until I'll be in need of a liver transplant.

Other than the relatively under control UC and the gradually worsening Cirrhosis I am healthy. I am pleased to meet all of you.

Views: 88

Comment

You need to be a member of Primary Sclerosing Cholangitis (PSC) - Online Support Group to add comments!

Join Primary Sclerosing Cholangitis (PSC) - Online Support Group

Comment by David Feldman on December 13, 2010 at 6:31pm

Jesse  - welcome and thanks for sharing.

 

I'm sorry to hear about what you've been going through.  Keep us posted.   Personally, my MELD score is still really low (I'm still pre-cirrhotic) but I find it invaluable to hear from folks like you.  Helps me keep things in perspective.

 

Just wondering - how did you find out about the PSC?

Please Like Us On Facebook and Follow Ben's Friends On Tumblr and Twitter

Follow Me on Pinterest

To Support LivingWithPSC.org, Click an Ad. Or Two.

Advertise With Us

Blog Posts

Facebook Feature Supports Organ Donation

We never realize the value of organ donation, until we're on the receiving end.…



Continue

Posted by Armando Abrero on May 27, 2012 at 10:40pm

May 2012 LivingWithPSC Community Newsletter

Dear Friends and Family of LivingWithPSC,

We are so excited we cannot wait to tell you about how our organization is growing, so we’ll go straight at it. We are please to tell you that collectively our patient…

Continue

Posted by Ben Munoz on May 26, 2012 at 8:00am

Events

© 2012   Created by BensFriends.org

Badges  |  Report an Issue  |  Terms of Service