I am sharing my experience, I know everyone is different and I know it might be only me. But I thought it worth sharing anyway.
I joined this group a few months ago following my son’s (15yo) diagnosis of stage 2 PSC and UC, back in October and December 2017.
As you can imagine, we felt hopeless as doctors were saying there is no treatment and reading all the things that are on the internet, we were just overwhelmed… I posted a couple of messages here and enjoyed support, tips and understanding of great people here…
I posted this link as well and got few feedbacks… thanks to everyone.
Doctors prescribed Sulfasalazine for him and he suffered from side effects and flare-ups.
Now, what I would like to say:
We decided to do something about it, we stopped the drug, planned a natural healing process and kept the points described in the above video in mind:
1- Fix the leaky gut by food (one-month-long process)
2- Cultivate good bacteria in the gut using the most potent probiotic available and all kind of cooked organic prebiotics, lots of fruits and cooked vegetables.
3- Avoid any kind of bad, fast and fried food, gluten and dairy products (even kefir).
4- taking 2000IU liquid vitamin D
5- Removing almost all sources of stress.
We had several tests in the last month and our review with our hepatologist and GI doctor in the hospital yesterday and the results to our surprise:
1- MRE results showed, improvement in CBD (from 12mm to 7mm, almost normal) all other things back to normal, no signs of IBD anymore!
2- Blood work almost normal, all enzymes either in the range (near the upper limits though) or slightly above the range which doctors were saying “don’t worry about them”.
Both doctors were surprised, they said: “keep doing what you are doing (!!!), stop all the medication and just take Vitamin D and come back in 6 months for another evaluation”. The reaction of our hepatologist was very interesting, he said: “I don’t know what happened but it is a good news!”…
We are very happy now, I do not know if it is a temporary thing or not, and I do not know if anyone else has or had such experience.
Your comments are appreciated,