My husband (42) was preliminarily diagnosed with PSC after a hospitalization for URQ pain, an MRCP and elevated liver panels about a month and a half ago. We’re trying to navigate moving from our Gastroenterologist to a Hepatologist, but in the meantime, we are looking for support around getting adequate nutrition.
We’re guessing he’s fairly advanced (there’s evidence of cirrhosis), but we’re confused, because it’s literally like someone has flipped a light switch.
One day, he was fine, (he generally eats healthy and doesn’t drink), the next day he struggles to find foods that do not cause him URQ pain. He’s lost more than 15 pounds over the past month and has admitted that he is starting to have a hard time concentrating. He’s still working full time and goes for 2-4 mile walks each day, but the types of foods his body seems to tolerate (no processing, limited oil, limited meat) leaves us w/ the equivalent of a non processed, vegan diet w/ very limited nut butter = very few calories!!
We have a colonoscopy/endoscopy schedule for a week from now (has zero symptoms of UC) and an appointment with a naturopathic center to discuss nutrition options in a couple of weeks, but I’d love any suggestions/insights/specialty areas that I’m sure we’re missing.
I’ve read through people’s posts that PSC looks different for nearly everyone; thank you for all you share!