I have been listed for TX here in Canada for 7 months with a MELD in 15 to 17 range. My most recent bloodwork has it dropped to 12.
Does anyone have experience with being de-listed or ‘paused’? I don’t meet with the team for a few weeks but i anticipate this being their answer.
My thoughts are that, yes I have had 3 months of decent health recently (all relative of course), no infections except for one minor flare that I quickly got on top of without the ER. That getting activated again in the future will be more difficult due to this ‘getting better’ period - so that future poor workups could be met with a ‘well let’s wait and see if you have better months down the road’. Also i saw this initial listing as my best chances to get transplanted while still functioning at a reasonable level - and that perhaps now it will take a severe episode, bleed or cancer to get relisted and really looked at as a serious viable candidate for transplant.
Am i out to lunch?
Thanks in advance.