Can you paint a word picture of how you would like your spouse, partner, significant other, caregiver (or whoever is watching your back)to respond to your illness. Some things you might consider are;
- Would you want your illness to be kept private?
-Would you want this person to collaborate with you and your physicians if you just didn’t have the time or energy to do it yourself?
-How do you want them to deal with their own anxiety over your illness. Should they talk to you about it or seek counsel elsewhere?
-Would you want them to do research on remedies that you might need to help you cope with some of the nasty symptoms of PSC?
Add anything else the is important to you. Thanks.