Diet for PSC

I would like to know the proper diet for a PSC patient. Thank You...

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I have Crohn's Disease and PSC, although the PSC is asymptomatic unless you are looking at the MRI. I have been following the SCD (specific carbohydrate diet) for the past 2 years which is essentially no grains, no sugar, with the important additions of probiotic or fermented foods, bone broth, and Omega 3 oils (fish mostly). This is designed to help with the Crohn's disease and it certainly has. But my liver tests over the past two years have moved towards or arrived at normal. This has been a surprise to my PSC specialist, who has said, "I've never seen this happen before." I can't say for a certainty that the diet has caused this drop, but it certainly didn't do me any harm.

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Hi Mayuri, I agree with Stephen, no set diet for treating PSC. Just stay on a healthy diet, try to make it easy on the liver to do its job. Exercise regularly, keep your weight down and keep a positive attitude. Good luck...DaveCJ

Hi Mayuri. Agree with everyone. There is no set diet but stay away from fatty foods. Also in my case i stay away from milk. I have started gluten free diet and its been a week. I feel great. Lets see how this works out.
Experiment what you feel works for you. I also read curcumin helps reduce psc. Try it.

All the best.

Mike

Mike, I think the curcumin could be very helpful. I also take fish oil which I feel helps me. We also recently had a very nice discussion on the benefits of coffee on PSC and the liver in general. I was never a coffee drinker but now try to drink 2 cups a day....Good health to everyone...DaveCJ

Stephen, you're very welcome, and thank you for all the helpful information and time that you offer to this site....DaveCJ

Regarding the coffee, it is good,however, make sure it's decaff because caffeine does not help psc or health in general. And actually, there is something to be said for coffee enemas because there are veins in the colon that are directly linked to the liver/bile ducts which the coffee has shown to dilate the bile ducts...a great thing for psc. Unfortunately for me like many others, I have UC which hasn't allowed me to do those yet since its opposite of what I want my UC to do...speed up. But for those able and willing, do some reading on the matter. My two cents on top of a healthy low fat diet.

And I also forgot to mention that I have been juicing fresh vegetables, herbs, and some fruits for a few months along with being on a nutritional balancing program where I have been tracking and trying to reduce the toxic metals in my body. I would say the juicy has been very beneficial since I have started, my last three liver tests were normal. I give the glory to God of course for guiding me to a path of healing. Prayer and faith in his will let's anything be possible.

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Thank u So much for the information. Does anyone know if a gluten free and diary free diet helps? If so is a food intolerance test a must ? Thks for your help!

excellent post. PSC is an autoimmune disease. it is a problem with your immune system not a problem with your liver. this is illustrated by the incidence of recurrence of PSC after transplant of a healthy liver. eliminate foods that cause autoimmune reactions such as gluten and dairy. reduce foods that increase inflammation such as sugar. add in curcumin which has shown to help regulate liver enzymes and also reduce inflammation. cook with coconut oil because it is a fat that does not need bile to be digested. this will help in the absorption of fat soluble vitamins a, k, d, and e.

mmarques said:

I have Crohn's Disease and PSC, although the PSC is asymptomatic unless you are looking at the MRI. I have been following the SCD (specific carbohydrate diet) for the past 2 years which is essentially no grains, no sugar, with the important additions of probiotic or fermented foods, bone broth, and Omega 3 oils (fish mostly). This is designed to help with the Crohn's disease and it certainly has. But my liver tests over the past two years have moved towards or arrived at normal. This has been a surprise to my PSC specialist, who has said, "I've never seen this happen before." I can't say for a certainty that the diet has caused this drop, but it certainly didn't do me any harm.

I agree with all said. Sugar is a problem form with sweets and ice cream that I must cut down… I am drinking both tea and coffee. Anyone know of an issue with tea? I am about to start juicing from all I have researched there. So many things have salt including no salt products so look carefully at packages. Rod

Stephen Cox (formerly Big Steel) said:

Mayuri, has asked about diet for PSC but her Mother , ( Mayuri is the caregiver), also UC and it is active.

Thx,

Stephen

Hei Stephen,

pardon my ignorance ,... bt is UC nt always relwted to PSC?

Stephen Cox (formerly Big Steel) said:

Mayuri, has asked about diet for PSC but her Mother , ( Mayuri is the caregiver), also UC and it is active.

Thx,

Stephen

Thank you everyone fr ur responses... (and perhaps I hv made some mistakes in posting.. sorry fr that:( )

Mayuri, I have both UC and PSC. My colon has been removed due to early signs of cancer but the remaining colon was reconnected to the rectum for which I am blessed. There can definitely be similarities in diet needs but UC is aggravated by the slowness of food progressing thru the colon. Higher fibers and grains help. Nutrients might help. I just bought a juicer. However addressing one condition medically does not remove the other condition. Different diseases. Rod


thanks Rod fr ur information... hope u r doing fyn these days..


Rod said:

Mayuri, I have both UC and PSC. My colon has been removed due to early signs of cancer but the remaining colon was reconnected to the rectum for which I am blessed. There can definitely be similarities in diet needs but UC is aggravated by the slowness of food progressing thru the colon. Higher fibers and grains help. Nutrients might help. I just bought a juicer. However addressing one condition medically does not remove the other condition. Different diseases. Rod

Fish oil?? When I tried that after a couple weeks I started having abdominal pain so i stopped and it went away, then I thought maybe it was a random flair up and started taking the fish oil again with the same abdominal pain again. I realised that fish oil is still oil and makes the liver have to work extra hard!

DaveCJ said:

Mike, I think the curcumin could be very helpful. I also take fish oil which I feel helps me. We also recently had a very nice discussion on the benefits of coffee on PSC and the liver in general. I was never a coffee drinker but now try to drink 2 cups a day....Good health to everyone...DaveCJ

Here is a new diet specifically for ibd. Very recent from umass.
http://www.umassmed.edu/news/news-archives/2014/04/UMMS-first-to-develop-evidence-based-diet-for-inflammatory-bowel-disease/

But that doesn't apply for us?

Brad S said:

Here is a new diet specifically for ibd. Very recent from umass.
http://www.umassmed.edu/news/news-archives/2014/04/UMMS-first-to-de...

I see what you mean Stephen but we don't just have ibd. Im thinking of patients recently diagnosed and if they used that diets daily plan template it would be terrible. Shouldn't we be eating for Psc not ibd? And most articles for psc include cutting sugar and salt. Also this diet promotes eating gluten, as almost every meal includes it. Sorry this diet isnt that healthy even if it helps with IBD. I believe superfoods and vege juice would be better then:

  • Breakfast: Banana Fruit Smoothie
  • Lunch: Sandwich Bread, filled with White Bean Avocado Dip
  • Soup: Beef and Oat Soup, or meat-free Curried Butternut Squash Bisque
  • Dinner: Shepherd's Pie, Thin Crust Pizza or Zucchini Lasagna
  • Salad/vegetable: Spinach Salad with Manchego Cheese or Snow Pea Saute
  • Dessert: Cinnamon Coffee Cake with Avocado Ice Cream or Frozen Fruit Sorbet

That seems crap to me...