Primary Sclerosing Cholangitis (PSC) - Online Support Group

Diet Suggestions/Restrictions for PSC

Newly diagnosed and wondering about things I should avoid eating or would be good for me to eat to help my condition?

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Hi Kellym
Most of what I’ve read says diet makes little difference.
My hepatologist feels that sugar puts too much stress on the liver (the same a alcohol) and recommended cutting out of my diet and limiting even fruit.
This has been hard for me - especially fruit, which I love for breakfast. I was strict for a while, then eased up on my sugar limitations to the point where I was eating sweets almost every day. My health became noticeably out of balance.
I’m going back to tighter restrictions on sugar.

Hey kelly
I would avoid fried food as much as possible. But just like the poster before me I was also told diet doesn’t really matter. You’re stomach might end up telling you what it doesn’t want to eat like mine does. It’s hard for me to eat fried food and other foods because the smell and taste makes me sick to my stomach. I haven’t been told anything on no sugar but I can see why that’s a thing. I’m on low sodium and that’s the only major diet restriction my specialist has me doing. Hope this helps!

I was on a ketogenic diet (high fat, very low carb) when I was diagnosed in May. I’m still on it with no issues.

Mainly I have been low sodium meaning for me around 2000mg per day . Which means mainly whole foods little to no processed foods.

The only thing I really changed was no alcohol, which was not a loss.