Hi all - I’m a 35 y/o PSCer living in the Detroit area. I was diagnosed at age 30 and have been living with it secretly since then; my immediate family knows and so does my wife’s, but none of our friends.
Alcohol is typically the centerpiece of our friends’ social gatherings, so it has put a damper on our social life. I’m sure you all know how much this disease can isolate us from our peers, especially between the ages of 21 to mid 40s (?) when alcohol plays a prevalent role in social gatherings. There’s also the factor that I mysteriously had to stop drinking, so I think our friends are uneasy around me. Anyway, my question is, do you tell your friends or not, and when? The reasons to tell them are obvious but the reasons not to tell are less obvious. Some reasons not to: they will look at me like I’m dying tomorrow, they will form their own opinion that I did this to myself with alcohol (already had certain family members do this), they are generally not able to relate to someone who is sick (people in their early 30’s still think their invincible for the most part), etc.
I haven’t had a drink since before the diagnosis, I was too sick in the months leading up, and I never plan to again even if there were a cure tomorrow.
Leave your thoughts or questions, I feel like this may be something we all deal with at some point and hopefully more than one of us will benefit from this post.