I was in this round robin hell as well, and we went the living donor route as quickly as we could.
I had two doctors arguing over “severity” as I laid in a hospital bed. I finally told one, I’ve made a decision and I’m going this way, which was transplant. If I waited probably another month to make that decision, I would be dead.
Press them, get the data, get the information, take it seriously and listen to your body, it will tell you the truth. Also, be aggressive in advocation and getting the process done. Go to the appointments, take all the tests, listen to the changes you need to make, food, exercise, medications and most importantly your body.
Anyway, god speed.
To give you some context, I was diagnosed with Autoimmune Hep in 1998, UC in 2004, PSC overlap in 2010 and then transplant in 2021 (living donor). From 2018-2021 was a nightmare and the last six months were, just horrid. Like RJM, I worked until the very end, and it was practically the only thing I could do and sleep.