I was diagnosed with PSC in 2014. A few months prior to that I was diagnosed with UC.
I started on Remicade in Oct '16. One infusion and I was sick with 101+ fever for 10 straight days. GI doc started me on Entyvio after that.
Just this past week I’ve been experiencing a level of fatigue that far surpassed any other fatigue I’ve had since my diagnosis.
I haven’t been to my GI or hepatologist yet. GI is this coming week. Hepatologist appointment I’ll be setting up later today.
In the interim, I’ve got some major concerns. So far my MELD score has been ‘non existent’ as per hepatologist. Is my extreme fatigue due to UC or PSC? Is the fatigue a sign that either disease is advancing?
I have dropped weight. Not trying to, but it happened. I do swim a lot. So my activity level can be considered higher than average. Due to the fatigue I have stopped swimming this past week though. Just can’t pull myself together to do it.
Any guidance, input or advice would be greatly appreciated.
Thanks and good luck to everyone.