I looked online for fatigue rating scales and found this one:
I thought it was interesting. However, I think it's hard to describe my fatigue. The scale is supposed to make that sort of discussion easier.
I'm wondering how some of you experience fatigue. (I have had PSC for 17 years, and recently been told I have cirrhosis.)
For me, I feel worst in the morning. By evening I start to perk up. Then I'm up til 1 am. But I'm not effective at working after 9:30 pm. I'm not effective before 1 pm in the afternoon. So I'm effective for only about 8.5 hours. Lately I sleep only about 8 hrs, but I used to sleep 9 before my GI recommended I drink coffee.
I can accomplish a lot on a Monday. But Tuesday I will "pay for it". That's the essence of my fatigue. Every enjoyment has a price. If I exercise too much, the next day, I will have a hard time getting going. If I socialize til say, 10 pm, it will take me til 1 am to relax, and possibly more time to "process" the next day. Some mornings, I try to rush the process of getting going, but I might feel dizzy when I get up from the bed.
If anybody raced me on doing dishes, I could beat their results if the contest was 10 minutes long, but if it was 40 minutes, I'd be slow and I'd need to rest for about one hour afterwards. So stamina is definitely an issue.
For me, it's the processing time after things that is so long. If I'm stressed out about something, it can take me all night to process. Then, I will need the next day to catch up.
When my family sees me, they don't really see my fatigue because it usually occurs later, when I get to my home.