I am very pleased to have stumbled across this board and it’s fountain of knowledge and very friendly and helpful users. This is my first post so I apologize if I rant too much. I was diagnosed with Ulcerative Colitis 10 years ago when i was 15 and only a year ago was I diagnosed with PSC. The doctors figure I probably have had it for years due to my ALT and ASTs being super high and just never properly checked out. The I have had a few pretty bad UC flares and each time i’ve had to add a new medication. At first it was prednisone for the flare and then using Imuran, next Humira and Imuran and now i’m on Remicade. I was on Humira for 2 great years and now Remicade for the last year and a half which have been awesome. As a 25 year old who has just wrapped up college but is still very in the party stages I have had a very hard time staying away from alcohol. Especially after my diagnosis of PSC, I had a hard time dealing with it and figured all hope was lost. I didn’t see any light at the end of the tunnel and drank more often and heavier because I assumed if it took off an extra year or 2 from the 10 year average big whoop. It took me quite some time to finally come to the realization that there is hope. I read a lot of other members stories of living for years with no symptoms and have been reading about some hope with Anti-histamines and Vancomycin. These have made me realize that I need to do everything I can to stay healthy as possible in hopes for a possible cure to come.
My drinking has now cut way back to absolute max of 5 drinks over a weekend, I know this is still probably too much but i’m trying my best. It is very hard being surrounded by it at this age, with all my friends wanting to drink and go out all the time and I have yet to tell many of them what is actually going on with me. However, I am eating way healthier, whole foods and in the gym lots too. I have noticed a big increase in energy now when i used to be so tired all the time. I’m hoping to keep on this path and hope to see more light on the road ahead.
Couple of questions for you all:
- Is it normal to get some bad cramping in the upper right abdomen? It can hurt quite a bit and last over night but i only seem to get it every other month or so.
- Does anyone else have their ankles and feet swell up with red rashy patches when they go through a UC flare or maybe it could be PSC?
Thank you all and sorry for ranting!