I’m a 21 year old male from Sweden. I’ve had Crohn’s since I was 15 years old, and therefor take annual blood test. Two months ago, my LFTs were slightly elevated, which called for a MRCP. I got the results from the MRCP last month, which turned out to show a very early stage PSC.
I’m not a guy that sticks my head in the sand, so naturally I have done my research and I am aware of how well oral vancomycin have helped people for the last 25 years. It was here the problems started. With problems I don’t mean medical problems, I am totally asymptomatic. I am referring to the problem with the terrible health care system we have in Sweden. Besides the super long waiting times for health care, we don’t have the right to choose our doctor, so I’m stuck with a doctor that has the “wait and see”-approach to PSC. My doctor goes 100% by the book and isn’t willing to try oral vancomycin out. There is also a lack of private hepatologist, in fact I haven’t found a single one in my country.
I am willing to travel anywhere in the world to get my hands on vancomycin, but there is a catch. Since I live in a country with public health care, I don’t have a health insurance. Initially I was thinking about travelling to the US, but I’m probably not going to afford taking test. I looked at Mayo Clinic’s website, and they say they e.g. charge 20k for a regular liver biopsy… Therefor my second plan is to travel to Mexico or South America, were it probably is easier to get my hands on vancomycin. But that also creates problem, how I am going to get the meds home to Sweden without getting caught? Even if I get a prescription, customs won’t react positively to the iv powder since it probably looks like drugs (I can’t afford the pills).
Do you have any tips for me on how to obtain vancomycin?
Thank you very much,