I had my first meeting with a hepatologist today…discussed getting on a transplant list, and answered some of my questions.
He did not recommend any medications other than Tylenol. My MELD score is 14, and apart from UQ discomfort, I have been pretty healthy. However, I certainly am in discomfort, and would be interested in trying some medications to ease the the sympotoms associated with PSC.
My question is this typical…do most doctors not recommend medication? Also, for those of you that are on meds, how far along with PSC were you when you started, what meds and did you find them effective?