This is the first time I am starting a new thread in the group. So far, I have asked here and there in the ongoing threads. My son (adult) has small duct PSC and UC (15 years). For now, his PSC is under control but he is having very difficult time with the UC. He has tried every drug (including biologics) for UC and is on 25 mg Prednisone for a long time which is not helping him much and is thinning his bones. Additionally, he is on Colazal, URSO and a biologic (stopped Imuran a month ago). This group has been very helpful and informative to us, especially in making the decision to try Vanco for UC and in convincing his Hep (through his GI) to give him Vanco prescription. My son has been on it for a month now and we were very hopeful reading others’ experiences how soon Vanco helped their UC on the side. It has been one month now on Vanco (1,500 mg) but the improvement is not significant enough to reduce the prednisone dose (25 mg). He is still seeing blood, cramps, and fatigue. However, motions frequency is couple of notches down. He is on Fagron compounded Vanco. Is this version of Vanco different than FirvanQ’s version? Should we try a different supplier of Vanco or in the capsule form? His insurance is not covering the Vanco, may be because it is compounded. Additionally, he is on Flagyl for last 3 weeks. Can Flagyl negate the benefits of Vanco?
Reading other threads, it seems like people on Vanco are taking probiotics regularly and blueberries with it seem to help them. I am wondering if the concentration of Vanco will be reduced (to fight gram positive bacteria in the colon) due to some of it will now be used up to kill the probiotics as well. Is that possible but then others are seeing added benefit of probiotic and blueberries combo with Vanco treatment so this theory seems incorrect.
Does anybody have experience with CBD oil from Hemp for UC? Can it impact liver in negative way with less than 0.3% THC in it?
I’ll really appreciate suggestions as he doesn’t have much time left, his GI is not happy with this dose of prednisone and wants to go colectomy route. Sorry for the length of the post.