Frustrating week. I have been listed since November with a low MELD and relatively decent quality of life, but my best hope for a living donor was denied this week during the last test, as our anatomy didn’t line up well.
The hardest part to swallow is one of my doctors had really pushed me to find a live donor, as the alternative, in his experience in general and his intimate knowledge of my disease, is a quick/steady decline before likely being offered a cadaver organ. Essentially saying i am going to have to overcome either an acute large hurdle (bleed, cancer, sepsis resulting in intubation) or hitting close to rock bottom.
It will take a few days to get my head around this and back to being focused on the new goal, as I was so planning on the easier route, live donor.
I don’t have any other family that would fit the bill and all my friends have young families and i would never ask them to step in, ever.
Adjusting to the new plan.