I am so happy I found you guys! My Mom is 65, She has bpc, she had wbc are low as 1.5 for years, Platelets is 44. Her spleen 20 cm. We did many exams, catscan, petscan, mrIs, 2 bone narrows in different hospitals. Nothing were found.
But all of sudden she got really worse, she has cuts that do not heal, very bad itching, swollen legs and collected fluid in her stomach, that makes it hard for her to breath and cough. She always feels weak, sleepy and tired. She is still controlled by medications, it seems medications are still working, she still does her best to try to help me with her grandson. My Mom is being the best Mother one can be.
Her platelets count is very low, it went down to 27, wbc 0,8, URIC ACID goes down. and her bilirubin went up rapidly from 1.2 to 4, Neutrophils is low as 0.4.
She has big problem with her eyes, and she had glaucoma attack and almost lost her vision. we noticed that it got her condition worse too. Spironolactone seems to reduce platelets count. Also noticed that MRI contrast bring bilirubin up.
We are in the process to be placed on liver transplant list, her meld score 14 and surgeon said it is very low/no chances to receive liver transplant.
Also we have to do colonoscopy and endoscopy, stress test, eko to be on the list. I am very concerned it could cause some cuts that will not heal and anesthesia will bring her bilirubin even higher and she will not receive the liver anyway. Please advise.
Also we have to do cataract surgery, is it safe to do with her condition?. What to do with her dry eyes? We tried different drops, nothing really help. She is always in pain.:(. Please help.