Well I have some good/bad type news today I wanted to share with the group. I went for my transplant MELD labs yesterday at Duke. I have been holding at a MELD of 19 for several months now. Well, my transplant coordinator called today and my MELD has jumped to 33! I am now at the top of the list at Duke in my blood group. I could get a call anytime now. Please keep me in your prayers this week as we are hopeful in this matter. They had me re-run my INR again today to double-check the high reading. Still haven't heard back on that, but for the next 7 days at least I am at a MELD 33. Of course although this puts me at the top of the transplant list, it also shows my health is deteriorating rapidly as well. I'll post more when I hear back. Maybe this will be the week.
On a side note, I had been having some severe stomach related problems recently and my coordinator said that may have artificially drove my numbers up. Well, if that is what it takes to get a new liver as a patient with PSC, well I'm thankful for that as well.
Thanks all for your support!