Hi All- My 19 yo girl has been treated by Vanco for her PSC for the past 7 years. Successfully most of the time. She also has UC and Uveitis. For the Uveitis she has been treated with steroid drops (topical) for the past 4 years. But now her Uveitis expert Dr explained we need to consider methotrexate orHumira or Cellcept or Imuran, because her Uveitis is getting more severe (2 cells in each eye) and early signs of cataract are visible. So according to the Dr she needs to be taken off the drops otherwise she risks cataract surgery, or worse Glaucoma.
We are very afraid helping her eyes with either methotrexate or Humira or Cellcept might adversly impact her liver (or gut…) which is now relatively calm for over 9 months. So my question to fellow forumites: If you have experience good or bad with methotrexate or Humira or Cellcept, can you share? Many thanks- Gil.