I am a 56 year old male who since 1997, have been diagnosed with Crohns and a couple of years later, with PSC. After a couple of Crohns flare ups, I was treated successfully with prednisone and then put on Azathioprine. My Crohns is presently under control. My LFTs are ALT 126, Gamma Glutamyl 862 and my Bilirubin is 35.2. I understand that you in the US use different scales. Our's are in U/L for the first 2 and for Bilirubin, it's in umol/L.
Because I am now suffering from Cirrhosis, and to reduce the chances of blood loss from the stomach (due to portal hypertension?), I have been put on Omeprazole and on the third day since I started this, I am getting headaches and stomach upsets. Has any one of you been put on this medication and what is your experience?
Also, when I asked for perhaps yearly MRI scans to possibly detect duct cancer, I was told by my gastroenterologist that regular blood tests are more practical. What are your views about that? However, I do get yearly colonoscopy and will be having it next week week together with a gastroscopy.
I live in Malta, a very small island just south of Sicily and our (free) health service is quite good and when patients need some specialized treatment not available locally, we are flown to other European countries (mainly the UK) by our health department.
I congratulate you for your team spirit and hope everybody finds the courage to live a decent life even if lived under this terrible condition.