I’m Kate and I currently live in the US, Houston to be specific. I’m an Australian expat and we’ve been here 2 years. I was diagnosed with PSC 8 years ago, and I was fortunate enough that it was picked up very early on a routine blood test when I was a sick with gladular fever. I had all the subsequent biopsy, MRCP, etc in order to confirm diagnosis. I made lifestyle changes and just got on with life. I don’t have UC or IBD so I count myself very lucky.
I have a beautiful 4 yr old boy with my husband however suffered from obstetric cholestasis in pregnancy which was brutal. My liver enzymes have remained stable but chronically inflamed up until about 6 months ago.
Bilirubin currently at 2.9 mg/dl
albumin 36 g/l
ALT 369 u/l
AST 289 u/l
ALP 974 u/l
GGT 560 u/l
My husband and I are now about to start our relocation back to Australia as my specialist in Australia wants me to start the vancomycin protocol within the next 12 months before things deteriorate further. The risks outweigh the potential reward of extending my own liver life before transplant is needed. And to be closer for more regular testing. (Healthcare in the US even with insurance is beyond our means long term).
For now, I’m just taking things as the come, no sense in worrying about things before they arise. Shit happens, and it could be worse so I’m thankful.