Hi everyone, thank you for adding me…I’m a bit lost and upset at the moment. I can hardly sleep or do much at all with myself.
I’d been having stomach problems since August last year and kept being told it was an ulcer or gastritis. The tablets never worked and I kept getting severe pains. I went through brain surgery in October to remove an AVM from my right frontal lobe. I had hoped to have a normal life after this. Then in December a doctor wondered if the pains could be gallstones so I had an ultrasound. They noted sludge and a fatty liver at the time but said little about it and focused back on the stomach again with gastritis. The pains continued even after diet and lifestyle changes with a big attack two weeks ago where I was admitted and told there was an infection in the gallbladder and they were going to remove it. I was so put off by the chaos of the hospital as they mixed me up with another patient that I requested to be moved to the care of another hospital in my area when I was discharged. The pain continued for over a week and I ended up in A&E again. I then had a severe attack on the Monday and woke up jaundiced on the Tuesday. My GP took blood tests and sent me to A&E at the new hospital where I was admitted. They did an MRCP and thought it was a stuck stone that had passed. They assured me there was nothing to worry about. After a meeting yesterday the specialist said she was still waiting on the is or is it blood test but that all signs pointed to PSC. Not much more was mentioned about it, only that it maybe could be managed but never cured. Is there any possibility that there could be another explanation for abnormal bile ducts?
She still plans on removing the gallbladder in 6 weeks time.
At the moment I am pretty devastated and don’t know what to do with myself, I have a young daughter, 3, and a lovely partner. I really wanted to have another child and a normal life but I feel all this has been ripped away from me in a brief conversation yesterday. I’m so lost at the moment and frightened of what lies ahead for me and my family. Financially we’re not in a good position as I was off work recovering from surgery so I’ve got not sick pay. I’m going to go back to work this week but I’m very tired a lot so can only do part time. I’m assuming applying for life insurance is pointless?
Sorry for my long post…