Hello, I am new to this group. My name is Ashley and my boyfriend Mac was diagnosed with PSC a little over a year ago. Long story short, he has had stents placed and removed to help keep everything flowing. He has not been prescribed any medication for the disease yet. He has been eating a clean diet, the AIP (Autoimmune Paleo Protocol) diet for about 4 months now. He has had waves of pain & nausea for a few months now. These symptoms usually occur early in the morning around 5-6am. Sometimes they occur in the middle of the day too.
He is worried about these pains because in October he ended up getting sepsis & cholangitis, which started with similar symptoms. So my question is, has anyone else here experienced waves of pain & nausea? Is this normal with the disease, or something not right?