I’ve heard quite a few different things when it comes to psc and transplant.
Some people say that eventually (and I know eventually depends immensely on an individual person and the progression of the disease) everybody with psc needs a liver transplant. But I’ve also heard people say that some people never need one.
I understand that if you are diagnosed at around 70 years old and the disease progresses slowly it’s more likely that you will die of something else. But aside from those specific cases, is it true that some people don’t need a transplant?
I’m not even close to transplant right now and I don’t fear it at the moment, I just like to know the facts and it’s something I’m curious about.
Is there any record of this? Like a certain number or percentage of people with psc who will need a transplant?
And if not an definite number what do you guys think is the closest to the true number from your experience and your knowledge? Is it more likely around 40 percent? Or 80?
I apologize in advance if I’m asking too many questions on this board at this moment! I’ve just noticed lately that it helps me to deal with this diagnose by understanding as much as I can about the disease and hear from people who are personally diagnosed or have someone very close to them with this disease.
Thanks in advance and kind regards,