Before the transplant I was suffering from itching, which would usually start in the evening or at night. It was proper itching - I had to scratch. Roughly at the beginning on 2018 my itching became heat-induced pins and needles. Whenever I got too hot either from room temperature, exercise, stress or anger I would have pins and needles all over my body that would resolve once I cooled down. I attributed it to progressing PSC and hoped a transplant would resolve it.
When I woke up from the transplant and asked to be lifted from the bed because my spine was killing me, I had pins and needles in my back. When I told nurses about it, I was told that was normal after the transplant and that it would pass. Five weeks post transplant and pins and needles are still here and even worse. Whenever I go in the sun, enter a hot room or get stressed or angry, I start to have severe pins and needles all over my body. No medication helps. My LFT’s are normal, liver USG came back normal - a healthy liver.
From my research, it fits the description of heat hives without any skin manifestations. Has anyone experienced something similar? What did you do about it? I would be grateful for any help.