I never knew I was a PSCer but all of a sudden, my body began to itch. I couldn't believe it, I was just lame to do anything.
I took medications such as Cholysteramine powder, Rifampine, Doxepine,and high dosage Ursodeoxycholic acid(2000 mg a day), and when all were ineffective, I took the Naltrexone. I was hospitalized for a fortnight and underwent ERCP, liver biopsy and also colonoscopy. There, I found something new about myself, that I had a new disease and that was Crohn's disease, accompanied by osteoporosis, splenomegaly and stomach bleeding.
I was diagnosed with severe cirrhosis and fibrosis of the liver. I was totally in pain, mentally and physically. Even now, I can't tell you what I was going through. I couldn't sleep for a whole six-months-period before the transplantation, and I think the only thing I was able to do was itching myself. I can't even imagine agin ...
I had been killing myself day and night by itching when I underwent the hepatic transplantation. As soon as they had operated me, all the pruritus went away. My attending physicians never believed that the pruritus went away immediately after the operation, they accused me of hypocrisy ...After transplantation I got the Cytomegalovirus (positive with 11,000 copy, and a terrible fever) and EBV, I was hospitalized again for a long time.
Anyway, by the end of this month, I will have been taking these medications for six months; Mycophenolate mofetil, Prograph, Ursodeoxycholic acid, Co-trimoxazole, Prednisolone, Mesalazine and Calcium D. I'm OK now, I'm just unable of closing my eyes without fear of itching myself again ...
Thank you for reading,