Good afternoon, all. While I haven’t yet received a firm PSC diagnosis, my MRCP last month was “suggestive” of PSC. To quote:
“FINDINGS: Liver contour is smooth. No MR evidence of hepatic steatosis. No biliary dilatation. Mild Irregularity and beading of the intrahepatic biliary duets. Minimal irregularity of the common bile duct. Cholecystectomy. The caudate is not enlarged. No suspicious Iiver mass. No pancreatic ductal dilatation. No pancreas divisum.
Spleen is normal. Normal T1 hyperintensity or the pancreas. Adrenals are normal. No hydronephrosis. Kidneys enhance symmetrically. A 6 cm cyst in the left right kidney.
Mild Irregularity and beading or the biliary ducts, suggestive of primary scleroslng cholangitis. No biliary dilatation.”
I also have elevated bilirubin, and slightly elevated GGT, AST, ALT, and lipase. My ALP is normal. Liver biopsy showed inflammation and minor congestion but no fibrosis. Ultrasound was negative. I do not have IBD, but I do have some IBS that is well treated through diet.
I have frequent RUQ pain and pain in my back on the right side. The pain seems to shift around from just under my sternum, to under my rib cage on the right, to the far right side of my rib cage, and to my back. Like a U-shaped band, but shifting from spot to spot among the band.
I have an ERCP scheduled for this Friday.
Has anyone had a similar course of diagnostics that resulted in a PSC diagnosis? Looking for thoughts and feedback. Thanks in advance. I appreciate this group and those in it.