I’m Brandon and I was diagnosed with PSC a couple months ago at 18. It really doesn’t help a lot with the stresses of transitioning into adulthood and dealing with college. I do, however hope to utilize this website and other support methods to work through it and continue on with my life.
Since I was only recently diagnosed, I don’t know much about my condition. My hepatologist stated I am in the early stages, so hopefully I stay there. But it will take some monitoring to figure out the progression speed of my PSC. My hepatologist is also in a group doing clinical trials for PSC medication, which he offered to me. I have taken his offer and am being vetted for the program. I hope to join the group because I do greatly appreciate the progression of science and human knowledge but also because I hope to help find medication for PSC.
I am really glad to know there are support systems like this website out there and look forward to my time participating here.