Just got diagnosed with potentially having small duct psc yesterday.
The gastro was pretty vague and didn’t seem to know as huge amount about small duct and was 80% sure as most of my blood tests didn’t point to psc. But also biopsy does show some damage to my small ducts albeit not bad at the moment.
I have 0 symptoms and am an avid lover of competing in Strongman so am in the gym and lot. I am never tired and find it very easy to put weight (muscle) on for competition.
The gastro seems to think that it is possible that I am either very early on in the disease or just one of the lucky ones that small duct just isn’t giving me any issues.
A year ago I stupidly took a gym supplement branded as a natural testosterone booster (came free with a large protein order) I researched the ingredients and they all were fine with no I’ll affects. So thought why not can’t hurt, after 4 weeks I felt rubbish so came off them.
I had a blood test and all was good but some liver enzymes were high. I decided to research the company that made the "natural " product and found they are notorious for selling pro hormones (how naive of me should of looked into them first) , which are horrendous on the liver. I am extremely against performance enhancing drugs for health reasons and some competition are tested so was gutted that it could of been that.
A year later and my enzymes improved massively with tudca (over the counter udca) coming back to normal more or less. Dr said to come off them and see what happened, and my enzymes crept up again but not as badly.
Had my biopsy and it showed some damage to small ducts hence the diagnosis as Dr said drugs wouldn’t damage the ducts just chemically turn them off.
However after some research they can in fact damage the ducts and is fairly common with a lot of drugs.
I am now back on prescription udca and being monitored and awaiting a colon exam, showing no signs of issues there but just a precaution to eliminate ibd.
It’s been a right nightmare and feel none the wiser with it all and am now seeking a specialist but not so easy to find in Devon England so will have to look further out.
Thanks for letting me be part of the community