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Primary Sclerosing Cholangitis (PSC) - Online Support Group

The Paleo Solution

Has anyone seen this book yet? Very recent release on Amazon, recently bought it and started reading. The basic premise is that autoimmune conditions can be brought into line via a modified Paleo diet (they call it he AIP, AutoImmune Protocol). Very interesting reading thus far and highly recommended.

I do not use the Paleo diet, but I reduced the amount of carbohydrates I use drastically according to the LCHF diet. Instead of the protein and carbohydrate energy option, I use the protein and fat energy option. This of course might not be a good idea for people who have PSC as well as IBD (UC or Crohns). Reducing carbohydrates has some great benefits in my opinion. I am happy I tried it. Before changing your diet, make sure to ask your doctor it is okay for you to try.

I am thinking of buying the book but had one question before doing so. Does the book provide any scientific studies performed by legitimate research institutions to support their claims?

The author is a PhD in medical biophysics. It's about a 400 page book, and the bibliography runs to about 20 pages (in very small print), about 99% of the references seem to be research papers. So the answer to your question is a very big yes.

You can see more about the book (including a youtube "tour") on the authors website.

http://www.thepaleomom.com/autoimmunity/the-autoimmune-protocol

I should also note that this is a science book, not a recipe book. That said, she lists LOTS and LOTS of ingredients that are available to one following the AIP.

If you're looking for recipes, try this link:

http://stalkerville.net/diet/autoimmune/

the book has been out a while. i read it when it when it came out and have been beating the autoimmune drum on here for a while.

PSC is not a liver problem, it is an immune system problem. the immune system attacks the liver because the host is ingesting something the immune system does not like. this is the reason people get PSC AFTER transplant of a new liver. they are still ingesting the thin g that is causing the problem. i would suggest people here check out these books which focus on eliminating things that cause autoimmune reactions:

The Paleo Approach: Reverse Autoimmune Disease

The Paleo Autoimmune Protocol: Foods to Include and Eliminate

The Wahls Protocol

I’ve had The Paleo Approach in my Amazon cart for a while. I’ve made attempts at Paleo without success because I love food… Especially food that is not good for me like simple carbohydrates. I love my family and my health much more than bagels :slight_smile: and I think that reading this book with the science behind it, specifically related to autoimmune disorders could help me change my mindset. Thank you for posting this information today and I will buy it right now:)

if anyone is looking for studies regarding liver, food and autoimmunity go here:

pubmed gluten primary sclerosing cholangitis

first thing everyone should do is eliminate gluten.

You're welcome Katie. I hear you on loving food. The hard part for me is I'm a pilot and so I get to spend 3-4 days at a time living on airport food and hotel breakfasts. This is going to take some work for sure.....

Check out that stalkerville.net link I posted. There's about 500 recipes there that conform to the AIP.

You can do this!

With this new research I would try to avoid saturated fats

http://www.ncbi.nlm.nih.gov/pubmed/22722865

in the same time try to take antibacterial (aka vancomycin) or high dose of vitamin C or iodine or perhaps digestive enzymes with serrapeptase.

to make a blanket statement to avoid saturated fat based on this mouse study is making quite a leap. on the otherhand, avoiding dairy could be supported by this study and many others.

z12 said:

With this new research I would try to avoid saturated fats

http://www.ncbi.nlm.nih.gov/pubmed/22722865

in the same time try to take antibacterial (aka vancomycin) or high dose of vitamin C or iodine or perhaps digestive enzymes with serrapeptase.

One question I have is around calcium from dairy. I took prednisone for a while and know my bones are mildly weaker. I also tried doing a Paleo-Autoimmune Diet for UC before surgery and it didn't do much for me in terms of symptom reduction.

I am thinking a more gradual/ moderate reduction in foods might be more doable for me at this time. Do people think this would be helpful, or is this an all or nothing kind of diet? Gluten would be the most obvious thing to reduce/ remove.

I tried this one and it is not for me. A friend is a Palio cook. You eliminate everything processed and all cultivated grains. It is a lot like the Atkins diet in the fat and meat department with few remaining carbs. She made for me a ground coconut based muffins sweetened with maple syrup at $25 a dozen. They were the size of two bite brownies. It is an expensive way to go, and I do not understand how you get away from all the pesticides and hormones in the meat unless you go out and shoot something.



Last night I spent hours combing through the microbiological studies and advances in Crohn’s and UC. They have identified the bacteria that may cause both. They just identified the microbial imbalance of these bacteria in patients and how wide spectrum antibiotics makes it worse They have identified a gene that many Chrohns and UC have that we may not have the same immunity to these bad bugs in our digestive track making us more susceptible to the bad bacteria. My eggs are in this basket. If they can create something that targets the bad bacteria and protect and even add a bunch of the good guys, we may be on our way to a cure.

paleo is about increasing nutrient density while eliminating possibly irritating foods. replacing crap food with "paleo friendly" substitutes is like going from unfiltered to filtered cigarettes. not good enough for sick people and/or really overweight people. atkins diet could care less about nutrition or irritants, it is all about low carb.

sure paleo it is not for everyone but people with autoimmune diseases should very seriously consider it. nothing effects our health more than what we put into our mouth on a daily basis.

Ruby said:

I tried this one and it is not for me. A friend is a Palio cook. You eliminate everything processed and all cultivated grains. It is a lot like the Atkins diet in the fat and meat department with few remaining carbs. She made for me a ground coconut based muffins sweetened with maple syrup at $25 a dozen. They were the size of two bite brownies. It is an expensive way to go, and I do not understand how you get away from all the pesticides and hormones in the meat unless you go out and shoot something.

Last night I spent hours combing through the microbiological studies and advances in Crohn's and UC. They have identified the bacteria that may cause both. They just identified the microbial imbalance of these bacteria in patients and how wide spectrum antibiotics makes it worse They have identified a gene that many Chrohns and UC have that we may not have the same immunity to these bad bugs in our digestive track making us more susceptible to the bad bacteria. My eggs are in this basket. If they can create something that targets the bad bacteria and protect and even add a bunch of the good guys, we may be on our way to a cure.

I like your responses, Bubba29. You seem to legitimately know what it is you're talking about... I think we eat clean for the most part. The Paleo diet makes us out to be pretty dirty though. I think I'm going to try to gradually move towards the Paleo way. We have an 8 year old who will flip out if I take that french bread from her hand with a quick swipe though. With that said, can you give me some pointers on how you're using the Paleo method? I'm curious what does your typical diet look like? Thanks in advance.

-G

I was diagnosed with PSC two years ago and have had crohn’s for 50 years, since age 9. I have also been using the SCD diet for two years. I find the diet, which is very similar to the primal diet, easy to maintain after the first month or so. The significant improvement in the crohn’s symptoms helped keep me on track. I have also had a marked improvement in the blood results for the PSC over the last two years. I am asymptomatic for PSC and the crohn’s much improved. I wish I had known about this dietary approach decades ago. It could have saved me a lot of pain and lifestyle compromises. I would not call the diet a cure exactly, but it is certainly a significant help in keeping my over reactive immune system in balance.

If you’re going to try the diet you must do most of your own cooking. This is particularly important for the first 3 months.

a lot of fruits and veggies. we buy a 100% grass fed, hormone/antibiotic free cow direct from the farmer so that constitutes a lot of our protein. white rice and potatoes (many varieties) make for a lot of fill and calories. those may not be "paleo" in some opinions but they are pretty safe for family without autoimmune issues. my wife and i spend a lot more time on meals prep than most other people. we have made a conscious decision that food rather than pills is the best way to get healthy and stay that way.

Gloria said:

I like your responses, Bubba29. You seem to legitimately know what it is you're talking about... I think we eat clean for the most part. The Paleo diet makes us out to be pretty dirty though. I think I'm going to try to gradually move towards the Paleo way. We have an 8 year old who will flip out if I take that french bread from her hand with a quick swipe though. With that said, can you give me some pointers on how you're using the Paleo method? I'm curious what does your typical diet look like? Thanks in advance.

-G

These are good points to consider for your diet. But, don't forget to consider the damage of long term use of GMO foods, specifically CORN.

What are GMO foods doing to our body and immune system?? I believe sticking to pretty simple diet, or "Paleo diet" may help till we find out more.

UHH! The Prep. We are big veggie and fruit eaters so I know that chore. I swear I spend more time preparing them then actually cooking AND eating them - combined. Thanks, Bubba29.

Anyone want to start with sharing recipes? Last night for dinner we had cauliflower and zucchini marsala over white rice with naan. I'll share the recipe if anyone wants it.

we had beef bulgogi with brocolli and some rice cooked in homemade chicken broth. we don't mind the food prep so much, it is a common hobby and allows us to spend more time together.

You're lucky than, Bubba29. One time I asked the Fiance to take a chicken breast out and put it to defrost. I came home to a chuck of ground turkey breast burning on the stove. Another time I asked him to cut the broccoli florets. I found him trying to trim flower bunches from the large sprouts. I'm on my own in the kitchen. Lol. Enjoy your day.

-G