I see it has been a long time since I last posted. To start with, I’m still alive
I’m also back in the US after four years living and working in Korea. So I guess it’s time to update my status and the current state of my PSC (with my having first been diagnosed in 2012).
2019 Liver Function Test
Total Protein: 7.7 (Normal Range)
Albumin: 4.2 (Normal Range)
Globulin: 3.5 (Normal)
A/G Ratio: 1.20 (Normal)
AST: 64 (High but was 80 in 2018 and 63 in 2016)
ALT: 63 (High but 67 in 2018)
ALK-Phosphate: 558 (very High but was 591 in 2018)
GTP: 738 This worries me the most as it was 538 in 2018, 591 in 2017 and 511 in 2016
T-Bilirubin is normal at 0.69 and D-Bilirubin normal at 0.47. ID- Bilirubin is a tad low at 0.22
Symptoms: After not having much in the way of itching, it’s back with a vengeance! I’d blame it on the dog or cat if I had one
Aversion to cold weather has gotten worse. Seems I get cold even at 70 F if the wind is blowing.
Occasionally I’ll get what I used to call the “colitis” sickness (not sure if it’s the UC or PSC), where I’ll get very cold, bones and muscles aching, before breaking into a fever and sweating everything out.
Fatigue is still there, which I think I feel more now as my job has me traveling internationally about 40% of my time.
I’m still taking three 300 mg Ursodiol tablets daily, as well as 4 Asacol tablets (400 mg) daily for the UC. I have several tests scheduled for this summer on my liver, as with every switch to a new doctor, they want to baseline me.
Good news? Ulcerative Colitis is pretty much gone. Last 5 or so colonoscopies show no sign of it, zero on a scale of 1-10.