I’ve been reading (albeit slowly, as there are hours and hours of readings & I keep getting sidetracked into reading all the very positive studies on Vancomycin over the years, and of course, I myself am clearly a case in point, an adult who had this disease for decades before beginning Vancomycin, UC 75% resolved, PSC symptomatically & blood work much improved), through our site trying to find a way to source Vancomycin now that my pharmaceutical company will no longer cover it. I’ve been taking FIRVANQ for the past few years now - since changing after all the controversy about ANI no longer being reliable, info I got from Dr. Lindor and others - and my pharma covered FIRVANQ. No idea why they’ve suddenly changed course but clearly I’ll be changing my prescription coverage to another company in 2022. My doctor has now appealed to Humana twice with no success.
My liver specialist deserves an award for the time and patience he has shown me over these years with this prescription. (Especially as I’ve only seen him, paid him, ONCE, in person.)
Where can I get liquid Vancomycin for the price you are saying above???
I recall someone here getting FIRVANQ from a pharmacy in NYC, some years ago now, for much less than local pharmacies. But, alas, I cannot find that comment.
So far, CVS would cost $1,000. per prescription. Walmart $800. The hospital pharmacy where my liver specialist works would mix a differently sourced powder each month, for me, for close to $800. They will not sell it to me in IV powder form, only already compounded.
I’d like to source it in IV powder form as from everything I understand, this is more reliable than pill form - i.e. sourcing it through Canadian pharmacies - and I’m taking a few trips this summer where refrigeration will be challenging. And then, as a few folks do here, just mix into water or put into capsules myself.
DOES ANYONE HAVE A SOURCE FOR IV VANCOMYCIN??
Many many thanks.