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How common is PSC?

What is primary sclerosing cholangitis? Primary sclerosing cholangitis is a liver disease in which the bile ducts (small tubes through which bile flows from the liver to the gall bladder and intestines) progressively decrease in size due to inflammation and scarring. As a result, bile that is normally carried out of the liver accumulates within the liver, which then damages liver cells. How common is primary sclerosing cholangitis? Although primary sclerosing cholangitis has been considered a rare disease, recent studies suggest that it is more common than originally thought. The disease may occur alone, but frequently exists in association with inflammatory diseases of the colon, such as chronic ulcerative colitis. Primary sclerosing cholangitis affects both sexes, but is more common in men.

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Itching or Pruritis

Information on itching caused by Liver disease along with some suggestions for relief. http://www.hcvadvocate.org/hepatitis/factsheets_pdf/pruritus.pdf

What is PSC?

Primary sclerosing (skluh-ROHS-ing) cholangitis (koh-lan-JIE-tis) is a disease of the bile ducts in your liver. The term "cholangitis" in primary sclerosing cholangitis refers to inflammation of the bile ducts, while the term "sclerosing" describes the hardening and scarring of the bile ducts that result from chronic inflammation.

Forum

PSC -> Portal hypertension -> Splenomegaly -> Low Platelets

Started by md_fisher in General. Last reply by Ted 1 hour ago. 4 Replies

The above title is the condition my 6 year old daughter is in. Her platelets have been dropping bit by bit from the 150k to 51k over the past year. Her doctors are suggesting it might come to a splenectomy, but her GI did also say that it's wholly…Continue

Tags: platelets, Splenomegaly, hypertension, portal, psc

Low platelet count

Started by TD in General. Last reply by JeffDC 2 hours ago. 3 Replies

Hi all,Recently had a follow up with my specialist, first one since my PSC diagnosis. My LFTs are still abnormal, but stable and are considerably better on Urso then beforehand. A recent lot of bloods has shown a very low platelet count, RBC and WBC…Continue

Upcoming ERCP, June 12th & MELD/Living Donor

Started by fcmmark in General. Last reply by Dolphin5 10 hours ago. 30 Replies

I would appreciate the group thinking of me next Friday morning when I go in to Duke for my 5th ERCP since diagnosis.  I think I have felt the worse this time around than the other times.  I am really hoping this will last longer than the last one…Continue

Liver dialysis

Started by Queenb in General. Last reply by Queenb on Saturday. 4 Replies

Has anyone had experience regarding the MARS (Molecular Absorbant Recirculation System)therapy, to help with Pruritus symptoms prior to liver transplant. Thank you in advance.

Tags: dialysis., Liver

Latest Activity

Ted replied to md_fisher's discussion PSC -> Portal hypertension -> Splenomegaly -> Low Platelets
"Was vanco generic or brand name? What form?"
1 hour ago

Moderator
JeffDC replied to TD's discussion Low platelet count
"Travis, in the eight blood tests I have had since March 21, 2015, all eight showed low platelets,…"
2 hours ago
Dennis replied to TD's discussion Low platelet count
"If I can remember it correctly, low platelet count in psc patients is caused by portal…"
3 hours ago
TD replied to TD's discussion Low platelet count
"Also, I should add, when diagnosed, there was some slight scarring of the liver and my Gastro said…"
4 hours ago
TD posted a discussion

Low platelet count

Hi all,Recently had a follow up with my specialist, first one since my PSC diagnosis. My LFTs are…See More
4 hours ago
Peter liked sprinter's profile
8 hours ago
Dolphin5 replied to fcmmark's discussion Upcoming ERCP, June 12th & MELD/Living Donor
"And what about cognitive issues? How does one deal with that. It does not always show up in blood…"
10 hours ago
Dolphin5 replied to fcmmark's discussion Upcoming ERCP, June 12th & MELD/Living Donor
"Keep us posted. If there is a petition process that is possible I know that many of us here will…"
10 hours ago

Moderator
fcmmark left a comment for Supercat17
"Welcome Supercat17 to this supportive community of patients, their families and friends who are…"
10 hours ago
Supercat17 is now a member of Primary Sclerosing Cholangitis (PSC) - Online Support Group
10 hours ago

Moderator
fcmmark replied to fcmmark's discussion Upcoming ERCP, June 12th & MELD/Living Donor
"Thanks Paul. You made some very good points. I'm currently in initial contact with UNOS to see…"
10 hours ago
Paul Hain replied to fcmmark's discussion Upcoming ERCP, June 12th & MELD/Living Donor
"I think PSCer's are watched over.  As the disease advances, we get more dependent.…"
13 hours ago

Top Content 

1 Low platelet count

Low platelet count

Posted by TD on July 6, 2015

2 PSC -> Portal hypertension -> Splenomegaly -> Low Platelets

PSC -> Portal hypertension -> Splenomegaly -> Low Platelets

Posted by md_fisher on April 11, 2012

3 cholestyramine

cholestyramine

Posted by mikey on June 9, 2015

4 Tired, Cranky Without Appetite - Help Me, Help Him.

Tired, Cranky Without Appetite - Help Me, Help Him.

Posted by Gloria on May 14, 2014

 
 
 

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