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If your family has been affected by Primary Sclerosing Cholangitis (PSC), consider Living with Primary Sclerosing Cholangitis (PSC) your second home.


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How common is PSC ?

What is primary sclerosing cholangitis? Primary sclerosing cholangitis is a liver disease in which the bile ducts (small tubes through which bile flows from the liver to the gall bladder and intestines) progressively decrease in size due to inflammation and scarring. As a result, bile that is normally carried out of the liver accumulates within the liver, which then damages liver cells. How common is primary sclerosing cholangitis? Although primary sclerosing cholangitis has been considered a rare disease, recent studies suggest that it is more common than originally thought. The disease may occur alone, but frequently exists in association with inflammatory diseases of the colon, such as chronic ulcerative colitis. Primary sclerosing cholangitis affects both sexes, but is more common in men.

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Itching or Pruritis.

Information on itching caused by Liver disease along with some suggestions for relief. http://www.hcvadvocate.org/hepatitis/factsheets_pdf/pruritus.pdf

What is PSC ?

Primary sclerosing (skluh-ROHS-ing) cholangitis (koh-lan-JIE-tis) is a disease of the bile ducts in your liver. The term "cholangitis" in primary sclerosing cholangitis refers to inflammation of the bile ducts, while the term "sclerosing" describes the hardening and scarring of the bile ducts that result from chronic inflammation.


Stent, Baloon, Gall Bladder removal

Started by Blanch in General. Last reply by LeggyMeggie yesterday. 17 Replies

Hello everyone.  My daughter is presently in hospital, this is her second week and she is so fed up. She presented with very bad pains and vomitting to the A&E Department and we thought she had…Continue

New To the Group

Started by mah437 in General. Last reply by Stephen Cox on Monday. 8 Replies

HelloMy name is mark (45).  I was diagnosed with PSC in 2002 after an Ulcerative Colitis diagnosis in 1997. For years I would be treated for the UC and the PCS kinda sat there.  I had two liver…Continue

Suggestions on Diet

Started by SP in General. Last reply by Stephen Cox on Saturday. 2 Replies

Hi guys, I was hoping you guys could give me some opinions or suggestions on certain foods you guys have either stopped eating or other foods you suggest increasing based on personal experiences and…Continue

Latest Activity

dancermom liked Stephen Cox's photo
2 hours ago

dancermom liked Stephen Cox's discussion Helpful things people can do to help the chronically ill.
2 hours ago

Stephen Cox left a comment for Gloria
"Hi Gloria, How are things going ?"
11 hours ago

Stephen Cox posted a photo
12 hours ago

Stephen Cox left a comment for egrzyb
"Hello Egrzyb, Happy birthday ! I hope today is a great day. How are you doing ?"
17 hours ago
mom to psc teen and Blanch are now friends
PrincessD and mom to psc teen are now friends

Stephen Cox joined Ben's group


"Pets enrich our lives!" said one AVM Survivor.From the scaly ones to the furry ones, that goldfish…See More

Top Content 

1 Suggestions on Diet

Suggestions on Diet

Posted by SP on April 11, 2014

2 fluctuating temperature

fluctuating temperature

Added by noor on April 10, 2014

3 New To the Group

New To the Group

Posted by mah437 on April 9, 2014

4 Helpful things people can do to help the chronically ill.

Helpful things people can do to help the chronically ill.

Posted by Stephen Cox on April 14, 2014

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Added by Stephen Cox on April 14, 2014

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Stephen Cox 104072014

Added by Stephen Cox on April 14, 2014

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Added by Stephen Cox on April 14, 2014

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Added by Stephen Cox on April 15, 2014

9 Stephen Cox 00104072013_1607

Stephen Cox 00104072013_1607

Added by Stephen Cox on February 24, 2014


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Best of Ben's Friends

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What is Best of Ben's Friends?

Best of Ben's Friends is a collection of inspirational or informative posts from across our family of patient communities. To nominate a post, discussion, photo, or video, email the link to info@bensfriends.org.


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Blog Posts

fluctuating temperature

Posted by noor on April 10, 2014 at 6:44am 4 Comments

hi. I just wanna know if anyone else has the ffg symptons and if they know what causes this. different parts of my wifes body have completely different temperatures. her legs and arms are slightly cold. her chest around the liver area is very…


liver transplant

Posted by noor on April 7, 2014 at 5:04am 1 Comment

my wife has been diagnosed with psc 3 months ago. all the research on psc that I have done suggests that her condition will gradually deteriorate and so will her quality of life and a liver transplant is the only solution. my question is this.…




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