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If your family has been affected by Primary Sclerosing Cholangitis (PSC), consider Living with Primary Sclerosing Cholangitis (PSC) your second home.


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How common is PSC ?

What is primary sclerosing cholangitis? Primary sclerosing cholangitis is a liver disease in which the bile ducts (small tubes through which bile flows from the liver to the gall bladder and intestines) progressively decrease in size due to inflammation and scarring. As a result, bile that is normally carried out of the liver accumulates within the liver, which then damages liver cells. How common is primary sclerosing cholangitis? Although primary sclerosing cholangitis has been considered a rare disease, recent studies suggest that it is more common than originally thought. The disease may occur alone, but frequently exists in association with inflammatory diseases of the colon, such as chronic ulcerative colitis. Primary sclerosing cholangitis affects both sexes, but is more common in men.

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Itching or Pruritis.

Information on itching caused by Liver disease along with some suggestions for relief. http://www.hcvadvocate.org/hepatitis/factsheets_pdf/pruritus.pdf

What is PSC ?

Primary sclerosing (skluh-ROHS-ing) cholangitis (koh-lan-JIE-tis) is a disease of the bile ducts in your liver. The term "cholangitis" in primary sclerosing cholangitis refers to inflammation of the bile ducts, while the term "sclerosing" describes the hardening and scarring of the bile ducts that result from chronic inflammation.


Advice for Chronic illness and disengagement.

Started by Glass Flower in General 10 hours ago. 0 Replies

Advice related to the psychological effects of chronic illness would be appreciated. I am struggling with knowing how to help with my husbands disengagement.Antidepressants might be helping, who…Continue

Telemedicine Patient Education

Started by Ben in General on Sunday. 0 Replies

Hi, everyone.  Dr. Joan Leafman from AT Still medical school in Arizona asks to help spread the word about some research she is conducting.  The survey is about Telemedicine Sessions for Patient…Continue


Started by pistonhead76 in General. Last reply by Chaim Boermeester on Sunday. 27 Replies

Hey everyone, new here. I'm hoping I can get some questions answered by people with experience with psc. I've had right upper quadrant pains for many years. In 2012 they got pretty bad and a hida…Continue

New restrictions on hydrocodone.

Started by Stephen Cox in General on Friday. 0 Replies

Interesting article.…Continue

Latest Activity

Buttercup left a comment for Emily
"Welcome Emily. I was diagnosed in May this year and am still adjusting.  You will find this…"
5 hours ago
Gers man commented on Gers man's blog post Stomach bug
"Hi there. I did have very bad diarreha. "
6 hours ago
Glass Flower posted a discussion

Advice for Chronic illness and disengagement.

Advice related to the psychological effects of chronic illness would be appreciated. I am…See More
10 hours ago
Emily left a comment for Emily
"Thank you for all of the welcomes and kindness! This journey is a strange and scary one but…"
WildCurls4ever left a comment for Emily
"Hi Emily, Definitely wish you the best of luck. I was only diagnosed less than a year ago, but…"

Stephen Cox left a comment for Emily
"Hi Emily, welcome to PSC support group. I am sorry to read about your situation. We have a great…"
Scott Orn left a comment for Emily
"Hi Emily - giant welcome! One tip, if you have specific questions it's best to start a New…"
Profile IconEmily and troia joined Primary Sclerosing Cholangitis (PSC) - Online Support Group

Top Content 

1 PSC?


Posted by pistonhead76 on August 27, 2014

2 Stomach bug

Stomach bug

Added by Gers man on August 30, 2014

3 Exercise


Added by Gers man on August 26, 2014

4 Advice for Chronic illness and disengagement.

Advice for Chronic illness and disengagement.

Posted by Glass Flower on September 2, 2014

5 New restrictions on hydrocodone.

New restrictions on hydrocodone.

Posted by Stephen Cox on August 29, 2014

6 Telemedicine Patient Education

Telemedicine Patient Education

Posted by Ben on August 31, 2014

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Blog Posts

Stomach bug

Posted by Gers man on August 30, 2014 at 4:13am 2 Comments

This past 2 weeks I have just not felt right. It felt like something going on in my stomach that should not. My doctor took blood samples. He phoned me  days later and said that my bloods were not good and to go back in 2 weeks later which is…



Posted by Gers man on August 26, 2014 at 4:35pm 1 Comment

Hi there.

 I have always been a man for the gym. I used to do a lot of weight lifting then due to injury turned to lighter resistance and cardio. I started having problems last year while doing Insanity. I lost about a stone in weight…




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