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If your family has been affected by Primary Sclerosing Cholangitis (PSC), consider Living with Primary Sclerosing Cholangitis (PSC) your second home.

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How common is PSC ?

What is primary sclerosing cholangitis? Primary sclerosing cholangitis is a liver disease in which the bile ducts (small tubes through which bile flows from the liver to the gall bladder and intestines) progressively decrease in size due to inflammation and scarring. As a result, bile that is normally carried out of the liver accumulates within the liver, which then damages liver cells. How common is primary sclerosing cholangitis? Although primary sclerosing cholangitis has been considered a rare disease, recent studies suggest that it is more common than originally thought. The disease may occur alone, but frequently exists in association with inflammatory diseases of the colon, such as chronic ulcerative colitis. Primary sclerosing cholangitis affects both sexes, but is more common in men.

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Itching or Pruritis.

Information on itching caused by Liver disease along with some suggestions for relief. http://www.hcvadvocate.org/hepatitis/factsheets_pdf/pruritus.pdf

What is PSC ?

Primary sclerosing (skluh-ROHS-ing) cholangitis (koh-lan-JIE-tis) is a disease of the bile ducts in your liver. The term "cholangitis" in primary sclerosing cholangitis refers to inflammation of the bile ducts, while the term "sclerosing" describes the hardening and scarring of the bile ducts that result from chronic inflammation.

Forum

ERCP as sky high expensive as other places??

Started by Emily in General. Last reply by EAD3 4 hours ago. 7 Replies

Hey everyone,My ERCP is next week which will give me a lot of answers I need to move forward either with PSC diagnosis or just damage to my ducts. I've been waiting for 2 months to get it. In that…Continue

Liver biopsy pain

Started by JoAnne Wisdom in General. Last reply by fcmmark 20 hours ago. 6 Replies

I had a liver biopsy done last Wednesday, I am having lots of pain still. URQ cramping but I have no fever. This is my second biopsy the discomfort never lasted this long. Is this normal.No fever, a…Continue

Ursodiol Causing "Morning Sickness" for Anyone?

Started by eogray in General. Last reply by fcmmark 21 hours ago. 6 Replies

Hi EveryoneMy Daughter (11) recently restarted Urso and has been feeling very sick in the mornings.  She often feels abdominal pain / cramping and nausea and frequently vomits (couple times per…Continue

Tags: Sickness, Morning, Nausea, Urso

Latest Activity

EAD3 replied to Emily's discussion ERCP as sky high expensive as other places??
"Dear Emily, ERCP is expensive and can show things that MRCP does not.  However, the…"
4 hours ago
fcmmark replied to JoAnne Wisdom's discussion Liver biopsy pain
"I've had two biopsy's and one just two weeks ago.  The pain would crawl up and over…"
20 hours ago
fcmmark replied to Emily's discussion ERCP as sky high expensive as other places??
"You need a VERY well trained doctor to do this ERCP.  This is not an easy procedure.  I…"
20 hours ago
fcmmark replied to eogray's discussion Ursodiol Causing "Morning Sickness" for Anyone?
"One suggestion on taking Urso which my doctor cleared for me.  I found that if I take my…"
21 hours ago

Moderator
Stephen Cox posted a discussion
yesterday
EAD3 and Stephen Cox are now friends
Tuesday
PrincessD replied to mom's discussion from a worried mom
"Dear Mom, PrincessD diagnosed at three and a half years old, but I knew something was wrong when…"
Tuesday
mom replied to mom's discussion from a worried mom
"wow 7? I thought my son was young getting it at 20 and finding out there were no studies really…"
Tuesday

Top Content 

1 Seeking the best hospital to treat psc

Seeking the best hospital to treat psc

Posted by SQ on October 25, 2014

2 Ursodiol Causing "Morning Sickness" for Anyone?

Ursodiol Causing "Morning Sickness" for Anyone?

Posted by eogray on October 24, 2014

3 from a worried mom

from a worried mom

Posted by mom on October 24, 2014

4 norUrso - new medicine

norUrso - new medicine

Posted by Espen Bunæs on October 26, 2014

5 A shared sentiment for a t-shirt

A shared sentiment for a t-shirt

Posted by JeffDC on October 27, 2014

6 ERCP as sky high expensive as other places??

ERCP as sky high expensive as other places??

Posted by Emily on October 10, 2014

7 Liver biopsy pain

Liver biopsy pain

Posted by JoAnne Wisdom on October 6, 2014

8 Seeking the best hospital to treat psc

Seeking the best hospital to treat psc

Posted by SQ on October 25, 2014

9 Ben's Friends Monthly Newsletter - October 2014 Issue

Ben's Friends Monthly Newsletter - October 2014 Issue

Added by Ben on October 25, 2014

10 Auto immune diseases in woman

Auto immune diseases in woman

Posted by Stephen Cox on October 26, 2014

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Blog Posts

Ben's Friends Monthly Newsletter - October 2014 Issue

Posted by Ben on October 25, 2014 at 10:41am 0 Comments

Just the Stats:

Communities: 38

Friends: 43,500+

Connecting to others in a similar circumstance is helpful to decrease depression, anxiety,…

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New to Group and Disease, help!!!

Posted by Christine on October 19, 2014 at 1:16pm 2 Comments

In October 2011, I went to be tested to donate a kidney to a young man in my community and my blood work and levels were great! I was almost a perfect match, but because it was his 2nd kidney his antibodies started rejecting when they tested our… Continue

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