Welcome!!!

Welcome! You're not alone.

If your family has been affected by Primary Sclerosing Cholangitis (PSC), consider Living with Primary Sclerosing Cholangitis (PSC) your second home.

NOW....GET STARTED:

1. Become a Member
2. Make Friends
3. Post to a Forum
4. Read or write a Blog
5. Join or Create a Group
6. Follow us on Twitter
7. Become a fan to our Facebook

Got some QUESTIONS? 
Check our FAQ PAGE.

Read More from our  First-Time-User Guide.

Members

Need a Doctor or Specialist?

Join Ben's Friends

Need a Second Opinion?

Disclaimer

All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.

Photos

Loading…

Groups

Pictures please !

It would be great if members could add a picture of themselves to their profile. It makes talking to each other or responding to questions so much more personal.

ClinicalTrials.gov Studies

Loading… Loading feed

Community Moderators

Please Be Kind & Use Appropriate Language

Let's Keep it Nice & Clean
1. No Spam
2. No Personal attacks
3. No Offensive content (profanity, sexual references, illegal activity subject matter, pornographic material or photos)
4. No Profanity, sexual references and illegal activity subject matter in the Chat Room.
5. No specific doctor or hospital name mentioned in a negative context, for legal reasons. 
Specific doctor or hospital names in a positive context are welcome.
6. No sharing of members' posts to other sites without their express permission.
7. There are many sites for discussing religion and politics. This is not one of them. Divisive posts about religion and politics will be deleted.
Thanks for your cooperation.

Partners

BensFriends.org is proud to partner with a number of organizations to help our members in various areas, including legal, financial, research and medical. 

Know more about our PARTNERSvisit this link.

 

How common is PSC ?

What is primary sclerosing cholangitis? Primary sclerosing cholangitis is a liver disease in which the bile ducts (small tubes through which bile flows from the liver to the gall bladder and intestines) progressively decrease in size due to inflammation and scarring. As a result, bile that is normally carried out of the liver accumulates within the liver, which then damages liver cells. How common is primary sclerosing cholangitis? Although primary sclerosing cholangitis has been considered a rare disease, recent studies suggest that it is more common than originally thought. The disease may occur alone, but frequently exists in association with inflammatory diseases of the colon, such as chronic ulcerative colitis. Primary sclerosing cholangitis affects both sexes, but is more common in men.

Mobile App and E-Book Available!

Keep in touch with friends. Get support and information while on the go. DOWNLOAD the Ben's Friends iPhone App now!

Be inspired by the helpful tips and amazing stories of patients with rare diseases. Get the e-book "We're in This Together: Stories & Tips from Patients with Rare Diseases" HERE.

Itching or Pruritis.

Information on itching caused by Liver disease along with some suggestions for relief. http://www.hcvadvocate.org/hepatitis/factsheets_pdf/pruritus.pdf

What is PSC ?

Primary sclerosing (skluh-ROHS-ing) cholangitis (koh-lan-JIE-tis) is a disease of the bile ducts in your liver. The term "cholangitis" in primary sclerosing cholangitis refers to inflammation of the bile ducts, while the term "sclerosing" describes the hardening and scarring of the bile ducts that result from chronic inflammation.

Forum

Issues after transplant

Started by daisy123 in General. Last reply by Paul Hain 3 hours ago. 8 Replies

Hi, everyone! We are from Brooklyn, NY. My daughter is 16 and she had a liver transplant 4 weeks ago. She'd had autoimmune hepatitis and primary sclerosing cholangitis for 5 years before transplant.…Continue

Recently Diagnosed , lupus and PSC

Started by Danny in General. Last reply by JeffDC 5 hours ago. 6 Replies

Hi everyoneI am 25 yrs old and recently diagnosed with PSC at mayo , i was diagnosed first with autoimmune hepatitis too. I know very little on this, this might sound bad , but since I was diagnosed…Continue

is dizziness a normal part of ps

Started by Michelle in General. Last reply by JeffDC 5 hours ago. 4 Replies

my son will be feeling fine, then he's extremely tired and dizziness. is this normal for psc

Artificial liver

Started by Meme in General. Last reply by Lisa 9 hours ago. 1 Reply

Hi everyone,  Here is another site that talks about liver issues and possible future cures. Here is the link to the artificial liver page.…Continue

Latest Activity

Paul Hain replied to daisy123's discussion Issues after transplant
"Dear Daisy123, Your post is moving because the average person has no idea of the changes and…"
3 hours ago
Scott Orn left a comment for Danny
"Hi Danny -  Huge welcome to the community! This is a great place! One tip, if you have…"
3 hours ago
JeffDC replied to Danny's discussion Recently Diagnosed , lupus and PSC
"Danny, You sure have a lot on your plate. Sorry that you have so much to handle. I know just…"
5 hours ago
JeffDC replied to Michelle 's discussion is dizziness a normal part of ps
"The only two times I was dizzy was more due to dehydration than anything else. Was not on…"
5 hours ago
Lisa left a comment for SQ
"Just wanted to send how a "how's it going" SQ. How did all of your husband's…"
8 hours ago
Lisa replied to Michelle 's discussion is dizziness a normal part of ps
"Hi Michelle,   My husband is like that with the fatigue. He will be doing great then he will…"
8 hours ago
Lisa replied to Danny's discussion Recently Diagnosed , lupus and PSC
"Welcome Danny to this wonderful group. You will definitely find a lot of information here along…"
8 hours ago
Tyler posted a status
"Does anybody know any foods that can be bad or beneficial to someone with psc?"
8 hours ago

Top Content 

1 Issues after transplant

Issues after transplant

Posted by daisy123 on September 27, 2014

2 is dizziness a normal part  of ps

is dizziness a normal part of ps

Posted by Michelle on October 1, 2014

3 Recently Diagnosed , lupus  and PSC

Recently Diagnosed , lupus and PSC

Posted by Danny on October 1, 2014

4 dairy  products

dairy products

Posted by Michelle on September 25, 2014

5 I need help!

I need help!

Posted by Marie on September 27, 2014

6 Bananas, good or bad

Bananas, good or bad

Posted by Gers man on September 28, 2014

7 Liver nutrition.- vitamins and protein.

Liver nutrition.- vitamins and protein.

Posted by Meme on September 25, 2014

8 Artificial liver

Artificial liver

Posted by Meme on September 24, 2014

9 Cirrhosis reversal

Cirrhosis reversal

Posted by Marie on September 24, 2014

10 diagnosis + follow up

diagnosis + follow up

Posted by pendragon on October 1, 2014

Please click on FIRST TIME USERS and WELCOME! tabs for helpful info, also the Help tab for Links . THANKS!

 
 
 

Help Us Help Others

Help Ben's Friends

Like & Follow Us!

Follow Me on Pinterest

Give Us A Review

Bens Friends

To Support LivingWithPSC.org, Click an Ad. Or Two.

Are You in Crisis?

First take a deep breath, then call the National Suicide Prevention Hotline immediately.  1-800-273-TALK for members in the United States.

For international members, please visit http://www.suicide.org/international-suicide-hotlines.html for information on where to call.

Blog Posts

Artificial liver

Posted by Meme on September 24, 2014 at 12:16pm 0 Comments

Hi everyone,

  Here is another site that talks about liver issues and possible future cures. Here is the link to the artificial liver page.…

Continue

Ben's Friends Monthly Newsletter - September 2014 Issue

Posted by Ben on September 24, 2014 at 10:52am 0 Comments

Just the Stats:

Communities: 38

Friends: 42,500+




In this issue…

Continue

Events

About

Ben created this Ning Network.

Gift Store

© 2014   Created by BensFriends.org

Badges  |  Report an Issue  |  Terms of Service