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Groups

 

How common is PSC?

What is primary sclerosing cholangitis? Primary sclerosing cholangitis is a liver disease in which the bile ducts (small tubes through which bile flows from the liver to the gall bladder and intestines) progressively decrease in size due to inflammation and scarring. As a result, bile that is normally carried out of the liver accumulates within the liver, which then damages liver cells. How common is primary sclerosing cholangitis? Although primary sclerosing cholangitis has been considered a rare disease, recent studies suggest that it is more common than originally thought. The disease may occur alone, but frequently exists in association with inflammatory diseases of the colon, such as chronic ulcerative colitis. Primary sclerosing cholangitis affects both sexes, but is more common in men.

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Forum

Vancomycin and Stents

Started by Nomad2040 in Complementary Therapies. Last reply by Nomad2040 59 minutes ago. 13 Replies

Hello everyone, I had question about Vanco. I was taking it a few months ago, and it brought my liver enzymes down, but then they shot back up. During this time I discovered that my main bile duct was scarred over and was forced to have an ERCP done…Continue

Tags: Cholangitis, Liver, Disease, Sclerosing, Primary

Transplant Check List for When You Get the Call!

Started by fcmmark in Let's talk about Transplants. Last reply by fcmmark 16 hours ago. 10 Replies

I would like to invite our members to share in a discussion about planning for that "phone call" when your new liver is waiting for you.  I'm sure all of us have different thoughts and have different methods for planning for that magical moment that…Continue

Experience with sulfasalazine in healing liver cirrhosis?

Started by Dennis in General. Last reply by Dennis yesterday. 2 Replies

There is a study of Newcastle University that found the drug sulfasalazine may act to aid the healing of liver cirrhosis. Since the drug is also used for treatment of ulcerative colitis, I assume there are plenty of psc patients who have experience…Continue

Osteoporosis?

Started by Ivy in General. Last reply by jtb on Tuesday. 3 Replies

Hi all - wondering if anyone has been diagnosed with osteoporosis as a result of PSC? ThanksContinue

Itching or Pruritis

Information on itching caused by Liver disease along with some suggestions for relief. http://www.hcvadvocate.org/hepatitis/factsheets_pdf/pruritus.pdf

Latest Activity

Nomad2040 replied to Nomad2040's discussion Vancomycin and Stents
"Okay, so I had my ERCP on Tuesday. The doctor removed the stent on the main bile duct and ballooned…"
59 minutes ago

Moderator
fcmmark replied to fcmmark's discussion Transplant Check List for When You Get the Call!
"Jeff, We had our check list and just went right down it to pack.  In fact my wife that very…"
16 hours ago

Moderator
JeffDC replied to fcmmark's discussion Transplant Check List for When You Get the Call!
"Mark, did you have your stuff ready when your call came in?"
19 hours ago
Crewmom liked fcmmark's discussion Liver Transplant This Week!!!!!
yesterday
Dennis replied to Dennis's discussion Experience with sulfasalazine in healing liver cirrhosis?
"I am doubtful as well, because the article is already from 2006, but maybe anyone has had a…"
yesterday
DHZ replied to Dennis's discussion Experience with sulfasalazine in healing liver cirrhosis?
"I don't like news report on science, because most of the time, those people have no clue what…"
yesterday

Moderator
JeffDC left a comment for Lizzy
"Lizzy, thanks for joining. Sorry you have to deal with all three diseases at once. One is bad…"
yesterday
Austin left a comment for Lizzy
"Welcome Lizzy!"
Wednesday
Profile IconLizzy and Austin joined Primary Sclerosing Cholangitis (PSC) - Online Support Group
Wednesday

Moderator
JeffDC left a comment for Austin
"Thanks for joining us. Jeff"
Wednesday

Moderator
Madere (dancermom) left a comment for Austin
"Welcome, Austin, and thank you for joining."
Tuesday
jtb replied to Ivy's discussion Osteoporosis?
"As PSC progresses and bile flow becomes restricted we lose our ability to absorb long-chain fats…"
Tuesday

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