Welcome!!!

Welcome! You're not alone.

If your family has been affected by Primary Sclerosing Cholangitis (PSC), consider Living with Primary Sclerosing Cholangitis (PSC) your second home.

NOW....GET STARTED:

1. Become a Member
2. Make Friends
3. Post to a Forum
4. Read or write a Blog
5. Join or Create a Group
6. Follow us on Twitter
7. Become a fan to our Facebook

Got some QUESTIONS? 
Check our FAQ PAGE.

Read More from our  First-Time-User Guide.

Need a Doctor or Specialist?

Join Ben's Friends

Disclaimer

All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.

Photos

Loading…

Groups

Pictures please !

It would be great if members could add a picture of themselves to their profile. It makes talking to each other or responding to questions so much more personal.

ClinicalTrials.gov Studies

Loading… Loading feed

Community Moderators

Please Be Kind & Use Appropriate Language

Let's Keep it Nice & Clean
1. No Spam
2. No Personal attacks
3. No Offensive content (profanity, sexual references, illegal activity subject matter, pornographic material or photos)
4. No Profanity, sexual references and illegal activity subject matter in the Chat Room.
5. No specific doctor or hospital name mentioned in a negative context, for legal reasons. 
Specific doctor or hospital names in a positive context are welcome.
6. No sharing of members' posts to other sites without their express permission.
7. There are many sites for discussing religion and politics. This is not one of them. Divisive posts about religion and politics will be deleted.
Thanks for your cooperation.

Partners

BensFriends.org is proud to partner with a number of organizations to help our members in various areas, including legal, financial, research and medical. 

Know more about our PARTNERSvisit this link.

 

How common is PSC ?

What is primary sclerosing cholangitis? Primary sclerosing cholangitis is a liver disease in which the bile ducts (small tubes through which bile flows from the liver to the gall bladder and intestines) progressively decrease in size due to inflammation and scarring. As a result, bile that is normally carried out of the liver accumulates within the liver, which then damages liver cells. How common is primary sclerosing cholangitis? Although primary sclerosing cholangitis has been considered a rare disease, recent studies suggest that it is more common than originally thought. The disease may occur alone, but frequently exists in association with inflammatory diseases of the colon, such as chronic ulcerative colitis. Primary sclerosing cholangitis affects both sexes, but is more common in men.

Mobile App and E-Book Available!

Keep in touch with friends. Get support and information while on the go. DOWNLOAD the Ben's Friends iPhone App now!

Be inspired by the helpful tips and amazing stories of patients with rare diseases. Get the e-book "We're in This Together: Stories & Tips from Patients with Rare Diseases" HERE.

Itching or Pruritis.

Information on itching caused by Liver disease along with some suggestions for relief. http://www.hcvadvocate.org/hepatitis/factsheets_pdf/pruritus.pdf

What is PSC ?

Primary sclerosing (skluh-ROHS-ing) cholangitis (koh-lan-JIE-tis) is a disease of the bile ducts in your liver. The term "cholangitis" in primary sclerosing cholangitis refers to inflammation of the bile ducts, while the term "sclerosing" describes the hardening and scarring of the bile ducts that result from chronic inflammation.

Forum

What 3 things bring you the most happiness and joy?

Started by Priya Patel in General 13 hours ago. 0 Replies

‘Tis the season to be thankful....so how can we let this moment pass us by without a thought for what we are most grateful for..1. I'm thankful for my amazing extended family. It's full of unique…Continue

Any insight about Medicare and liver transplant anyone?

Started by Cat Flower in General. Last reply by Brian B 13 hours ago. 1 Reply

What about medicare and liver transplant in the USA? Anyone have any experience with that?

Tags: medical, expenses, financial, transplant, liver

What Have You Done for Fun Lately? (from my good friend SK)

Started by dancermom in General. Last reply by Colin on Sunday. 11 Replies

This is one ingredient of living that we don't want to leave out! No matter what, we need to always have some fun times, they are simply good for our soul!So tell us, what have you done for fun?Continue

Latest Activity

detmsh replied to Stephen Cox's discussion Bile duct cancer. It's a scary reality, so please get checked annually.
"Interestingly my doctors have decided not to bother with testing my tumor markers any more.…"
7 hours ago

Moderator
Priya Patel posted a discussion

What 3 things bring you the most happiness and joy?

‘Tis the season to be thankful....so how can we let this moment pass us by without a thought for…See More
13 hours ago
Brian B replied to Cat Flower's discussion Any insight about Medicare and liver transplant anyone?
"My transplant took place 4 days after I became Medicare eligible and nearly 4 years later I have…"
13 hours ago
Cat Flower's discussion was featured

Any insight about Medicare and liver transplant anyone?

What about medicare and liver transplant in the USA? Anyone have any experience with that?
13 hours ago

Moderator
JeffDC left a comment for Trisha
"Trisha, I am sorry your mom is now showing signs of liver failure after 20 years since…"
15 hours ago
Cat Flower posted a discussion

Any insight about Medicare and liver transplant anyone?

What about medicare and liver transplant in the USA? Anyone have any experience with that?
15 hours ago

Moderator
Priya Patel left a comment for Trisha
"Welcome to the Community Trisha. I'm sorry to read about about your mum. Rest assured you have…"
yesterday

Moderator
Alina left a comment for Trisha
"Welcome to the group Trisha. I'm glad you found us. I'm sorry to hear about your mom.…"
yesterday

Top Content 

Please click on FIRST TIME USERS and WELCOME! tabs for helpful info, also the Help tab for Links . THANKS!

 
 
 

Help Us Help Others

Help Ben's Friends

Like & Follow Us!

Follow Me on Pinterest

Give Us A Review

Bens Friends

To Support LivingWithPSC.org, Click an Ad. Or Two.

Are You in Crisis?

First take a deep breath, then call the National Suicide Prevention Hotline immediately.  1-800-273-TALK for members in the United States.

For international members, please visit http://www.suicide.org/international-suicide-hotlines.html for information on where to call.

Blog Posts

Ben's Friends Monthly Newsletter - October 2014 Issue

Posted by Ben on October 25, 2014 at 10:41am 0 Comments

Just the Stats:

Communities: 38

Friends: 43,500+

Connecting to others in a similar circumstance is helpful to decrease depression, anxiety,…

Continue

New to Group and Disease, help!!!

Posted by Christine on October 19, 2014 at 1:16pm 4 Comments

In October 2011, I went to be tested to donate a kidney to a young man in my community and my blood work and levels were great! I was almost a perfect match, but because it was his 2nd kidney his antibodies started rejecting when they tested our… Continue

Events

About

Ben created this Ning Network.

Gift Store

© 2014   Created by BensFriends.org

Badges  |  Report an Issue  |  Terms of Service