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What is primary sclerosing cholangitis? Primary sclerosing cholangitis is a liver disease in which the bile ducts (small tubes through which bile flows from the liver to the gall bladder and intestines) progressively decrease in size due to inflammation and scarring. As a result, bile that is normally carried out of the liver accumulates within the liver, which then damages liver cells. How common is primary sclerosing cholangitis? Although primary sclerosing cholangitis has been considered a rare disease, recent studies suggest that it is more common than originally thought. The disease may occur alone, but frequently exists in association with inflammatory diseases of the colon, such as chronic ulcerative colitis. Primary sclerosing cholangitis affects both sexes, but is more common in men.
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I was told a couple of weeks ago my son may have PSC or AIH with PSC overlap. I'm not sure I have accepted it yet and not sure what I am looking for here other than support and/or maybe help with understanding. Or maybe getting people's thoughts…Continue
It's nice to hear of stories of people who received a life-saving transplant and especially when it's a young person battling a deadly disease like PSC. I hope this story will be one of hope to others still waiting for that all-important phone…Continue
Hi all,My 14 yr old son was recently diagnosed with ulcerative colitis and psc. I believe the prednisone put the uc in remission. Of course the gi drs were pushing remicade but i pushed back and he's taking Apriso for nearly 2 months now. He was…Continue
Hi all,Recently had a follow up with my specialist, first one since my PSC diagnosis. My LFTs are still abnormal, but stable and are considerably better on Urso then beforehand. A recent lot of bloods has shown a very low platelet count, RBC and WBC…Continue
Information on itching caused by Liver disease along with some suggestions for relief. http://www.hcvadvocate.org/hepatitis/factsheets_pdf/pruritus.pdf