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If your family has been affected by Primary Sclerosing Cholangitis (PSC), consider Living with Primary Sclerosing Cholangitis (PSC) your second home.

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All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.

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How common is PSC ?

What is primary sclerosing cholangitis? Primary sclerosing cholangitis is a liver disease in which the bile ducts (small tubes through which bile flows from the liver to the gall bladder and intestines) progressively decrease in size due to inflammation and scarring. As a result, bile that is normally carried out of the liver accumulates within the liver, which then damages liver cells. How common is primary sclerosing cholangitis? Although primary sclerosing cholangitis has been considered a rare disease, recent studies suggest that it is more common than originally thought. The disease may occur alone, but frequently exists in association with inflammatory diseases of the colon, such as chronic ulcerative colitis. Primary sclerosing cholangitis affects both sexes, but is more common in men.

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Itching or Pruritis.

Information on itching caused by Liver disease along with some suggestions for relief. http://www.hcvadvocate.org/hepatitis/factsheets_pdf/pruritus.pdf

What is PSC ?

Primary sclerosing (skluh-ROHS-ing) cholangitis (koh-lan-JIE-tis) is a disease of the bile ducts in your liver. The term "cholangitis" in primary sclerosing cholangitis refers to inflammation of the bile ducts, while the term "sclerosing" describes the hardening and scarring of the bile ducts that result from chronic inflammation.

Forum

ALT AST GGT

Started by PrincessD in General. Last reply by PrincessD 38 minutes ago. 3 Replies

Dear All,I couldn't wait to get home to post this as I feel this is the place I post my daughter's results when they make me sad and you all understand.This morning I received a phonecall from Sick…Continue

Please wish Stephen a Happy Birthday

Started by dancermom in General. Last reply by Mike 42 minutes ago. 6 Replies

Stephen, we so appreciate everything you do for our members here at PSC. You have helped to create such a wonderfully supportive community. Have a marvelous birthday!Continue

IgG4–related systemic disease...someone who knows about this?

Started by Costas in General. Last reply by Lori 1 hour ago. 2 Replies

HELLO ALL...!!!As I said ... my mother after pancreatitis attacks... she get Whipple surgery for pseudocyst in the head of pancreas...some months after she diagnosed with retroperitoneal fibrosis ...…Continue

No longer taking Ursodial

Started by Lisa in General. Last reply by CJ 3 hours ago. 17 Replies

When my husband was first diagnosed with PSC he was placed on ursodial- 1 capsule 3x's daily. It seemed to really help because his enzymes went down to almost normal. Last Tuesday we saw his doctor…Continue

Latest Activity

Ben posted a blog post

Ben's Friends Monthly Newsletter - July 2014 Issue

Just the Stats:Communities:36Friends:41,000+Welcome New Members and Greetings from Ben's…See More
25 seconds ago
PrincessD replied to PrincessD's discussion ALT AST GGT
"Dear Fish, Yes, it is Sick Kids in Toronto that my daughter attends. Who do you see? What does your…"
38 minutes ago
Mike replied to dancermom's discussion Please wish Stephen a Happy Birthday
"Happy Birthday Stephen. Have a wonderful day!!"
42 minutes ago
PrincessD replied to dancermom's discussion Please wish Stephen a Happy Birthday
"Happy Birthday Stephen.  We hope that all your wishes come true and today will be another…"
53 minutes ago
fleur54 replied to dancermom's discussion Please wish Stephen a Happy Birthday
"Happy Birthday, Stephen ... and thank you for you support to so many folks and families!"
1 hour ago
Lori replied to Costas's discussion IgG4–related systemic disease...someone who knows about this?
"I haven't had these issues...yet?! But I did have pancreatitis and had the Whipple (found…"
1 hour ago
JeffDC replied to dancermom's discussion Please wish Stephen a Happy Birthday
"Happy Birthday, Stephen. I hope you have many more! Jeff"
1 hour ago
Scott Orn replied to dancermom's discussion Please wish Stephen a Happy Birthday
"Happy birthday Stephen!"
1 hour ago

Top Content 

1 No longer taking Ursodial

No longer taking Ursodial

Posted by Lisa on July 26, 2014

2 One to watch out for

One to watch out for

Posted by monkey1 on July 27, 2014

3 Emotional Trauma links to PSC flare up?

Emotional Trauma links to PSC flare up?

Posted by Stay Calm and Breathe on July 29, 2014

4 FOOD IN RELATION TO PSC

FOOD IN RELATION TO PSC

Posted by PrincessD on July 30, 2014

5 Please wish Stephen a Happy Birthday

Please wish Stephen a Happy Birthday

Posted by dancermom on July 31, 2014

6 Just needing to tell the story

Just needing to tell the story

Added by Lisa on July 23, 2014

7 ALT AST GGT

ALT AST GGT

Posted by PrincessD on July 29, 2014

8 IgG4–related systemic disease...someone who knows about this?

IgG4–related systemic disease...someone who knows about this?

Posted by Costas on July 31, 2014

9 hair loss? and yellow eyes?

hair loss? and yellow eyes?

Posted by AmandaShea on July 22, 2014

10 What I could find out about all that itching!

What I could find out about all that itching!

Posted by Ruby on July 22, 2014

Please click on FIRST TIME USERS and WELCOME! tabs for helpful info, also the Help tab for Links . THANKS!

 
 
 

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Blog Posts

Ben's Friends Monthly Newsletter - July 2014 Issue

Posted by Ben on July 31, 2014 at 12:41pm 0 Comments

Just the Stats:

Communities:36

Friends:41,000+



Welcome New Members and Greetings from Ben's Friends!

 

"You're a firework," as the song goes. We…
Continue

Just needing to tell the story

Posted by Lisa on July 23, 2014 at 11:40pm 7 Comments

Hello everyone. I just became a member yesterday. As my profile says my husband is the one suffering with PSC. When he was first diagnosed we didn't really know what to expect. Our doctor said it could be years before he has any issues and he…

Continue

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