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How common is PSC?

What is primary sclerosing cholangitis? Primary sclerosing cholangitis is a liver disease in which the bile ducts (small tubes through which bile flows from the liver to the gall bladder and intestines) progressively decrease in size due to inflammation and scarring. As a result, bile that is normally carried out of the liver accumulates within the liver, which then damages liver cells. How common is primary sclerosing cholangitis? Although primary sclerosing cholangitis has been considered a rare disease, recent studies suggest that it is more common than originally thought. The disease may occur alone, but frequently exists in association with inflammatory diseases of the colon, such as chronic ulcerative colitis. Primary sclerosing cholangitis affects both sexes, but is more common in men.

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My son's story

Started by gazoo02 in New Member Introductions. Last reply by Hilary on Friday. 4 Replies

I was told a couple of weeks ago my son may have PSC or AIH with PSC overlap.  I'm not sure I have accepted it yet and not sure what I am looking for here other than support and/or maybe help with understanding.  Or maybe getting people's thoughts…Continue

Story of Young Man With PSC Who Received A Transplant

Started by fcmmark in General. Last reply by salukis fan on Thursday. 2 Replies

It's nice to hear of stories of people who received a life-saving transplant and especially when it's a young person battling a deadly disease like PSC.  I hope this story will be one of hope to others still waiting for that all-important phone…Continue

Oral vancomycin and stopping other meds

Started by Jam in General. Last reply by code on Wednesday. 6 Replies

Hi all,My 14 yr old son was recently diagnosed with ulcerative colitis and psc. I believe the prednisone put the uc in remission. Of course the gi drs were pushing remicade but i pushed back and he's taking Apriso for nearly 2 months now. He was…Continue

Tags: Jtb

Low platelet count

Started by TD in General. Last reply by JeffDC on Tuesday. 13 Replies

Hi all,Recently had a follow up with my specialist, first one since my PSC diagnosis. My LFTs are still abnormal, but stable and are considerably better on Urso then beforehand. A recent lot of bloods has shown a very low platelet count, RBC and WBC…Continue

Itching or Pruritis

Information on itching caused by Liver disease along with some suggestions for relief. http://www.hcvadvocate.org/hepatitis/factsheets_pdf/pruritus.pdf

Latest Activity

fcmmark left a comment for HAY
"Welcome HAY to this supportive PSC community.  I'm glad you found this site and trust the…"
14 hours ago
HAY left a comment for JeffDC
"Hello Jeff, Thank you for a very warm welcome and for all the advice.  After doing some…"
18 hours ago

JeffDC left a comment for HAY
"Hello, HAY. Thanks for joining. While I hope it is not psc that your husband has, I hope they find…"
19 hours ago
HAY is now a member of Primary Sclerosing Cholangitis (PSC) - Online Support Group
19 hours ago

Top Content 

1 Story of Young Man With PSC Who Received A Transplant

Story of Young Man With PSC Who Received A Transplant

Posted by fcmmark on May 24, 2016

2 My son's story

My son's story

Posted by gazoo02 on May 20, 2016

3 Low platelet count

Low platelet count

Posted by TD on July 6, 2015

4 Oral vancomycin and stopping other meds

Oral vancomycin and stopping other meds

Posted by Jam on May 15, 2016


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