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How common is PSC?

What is primary sclerosing cholangitis? Primary sclerosing cholangitis is a liver disease in which the bile ducts (small tubes through which bile flows from the liver to the gall bladder and intestines) progressively decrease in size due to inflammation and scarring. As a result, bile that is normally carried out of the liver accumulates within the liver, which then damages liver cells. How common is primary sclerosing cholangitis? Although primary sclerosing cholangitis has been considered a rare disease, recent studies suggest that it is more common than originally thought. The disease may occur alone, but frequently exists in association with inflammatory diseases of the colon, such as chronic ulcerative colitis. Primary sclerosing cholangitis affects both sexes, but is more common in men.

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Be inspired by the helpful tips and amazing stories of patients with rare diseases. Get the e-book "We're in This Together: Stories & Tips from Patients with Rare Diseases" HERE.

Itching or Pruritis

Information on itching caused by Liver disease along with some suggestions for relief. http://www.hcvadvocate.org/hepatitis/factsheets_pdf/pruritus.pdf

What is PSC?

Primary sclerosing (skluh-ROHS-ing) cholangitis (koh-lan-JIE-tis) is a disease of the bile ducts in your liver. The term "cholangitis" in primary sclerosing cholangitis refers to inflammation of the bile ducts, while the term "sclerosing" describes the hardening and scarring of the bile ducts that result from chronic inflammation.

Forum

spasms and colitis

Started by ellenjs in General. Last reply by Stephen 12 hours ago. 3 Replies

Afternoon, all...My husband, Kevin, is a veteran of two transplants due to PSC. Lately---and this was pretty common after the first transplant--- he has been revisited by spasms. I'm assuming it's…Continue

MRI/MRCP say PSC but blood tests are all normal--any experience like this?

Started by eliza1976 in General. Last reply by Windward yesterday. 9 Replies

Hi! I am new to this forum. About a month ago, I went for my annual executive check-up. All the results were normal except for a slightly elevated bilirubin and an ultrasound that said I had a…Continue

Why treat if it doesn't affect final outcome?

Started by Rivermouse in General. Last reply by R the II yesterday. 7 Replies

I have read that treatments like Urso can normalize liver numbers, but don't affect life span or length of time before needing a liver. So why use it? Does it help improve quality of life? I am…Continue

Tags: Urso

ALT, AST, GGT going down no treatment yet- misDx?

Started by Rivermouse in General. Last reply by Rivermouse on Sunday. 4 Replies

I am in a much better place than I was when I posted a couple of weeks ago. My son's hepatologist explained to me that the symptoms I was attributing to the PSC were actually due to his UC, and he is…Continue

Latest Activity


Moderator
Stephen replied to ellenjs's discussion spasms and colitis
"Where are the spasms Ellen ? I had lots of UC flares with pain, felt like someone was squeezing my…"
12 hours ago
Steelhead seeker updated their profile
18 hours ago

Moderator
JeffDC replied to ellenjs's discussion spasms and colitis
"When I had colitis, I never had spasms. Where are the spasms? How often do they occur?"
yesterday
R the II replied to Rivermouse's discussion Why treat if it doesn't affect final outcome?
"My doctor at Mayo said Urso generally improves your outlook to the extent your blookwork…"
yesterday
Windward updated their profile
yesterday
ellenjs posted a discussion

spasms and colitis

Afternoon, all...My husband, Kevin, is a veteran of two transplants due to PSC. Lately---and this…See More
yesterday

Moderator
JeffDC left a comment for Gina
"Gina, thanks for joining. Glad you finally know what is happening, sorry that it was psc. This…"
yesterday

Moderator
JeffDC left a comment for Windward
"Hi, Windward. To post a question, on the main page, click on the discussion tab. Once that comes,…"
yesterday

Top Content 

1 Why treat if it doesn't affect final outcome?

Why treat if it doesn't affect final outcome?

Posted by Rivermouse on May 24, 2015

2 Elevated CA19-9 - what does this mean?

Elevated CA19-9 - what does this mean?

Posted by Priya Patel on May 21, 2015

3 ALT, AST, GGT going down no treatment yet- misDx?

ALT, AST, GGT going down no treatment yet- misDx?

Posted by Rivermouse on May 23, 2015

4 wait list statistics

wait list statistics

Posted by Ted on May 19, 2015

5 spasms and colitis

spasms and colitis

Posted by ellenjs on May 24, 2015

6 OCA trial succesful for PBC

OCA trial succesful for PBC

Posted by Ted on May 19, 2015

7 Fatty liver disease.

Fatty liver disease.

Posted by Stephen on May 19, 2015

8 MRI/MRCP say PSC but blood tests are all normal--any experience like this?

MRI/MRCP say PSC but blood tests are all normal--any experience like this?

Posted by eliza1976 on May 10, 2015

9 Does this potential inflammatory-blocking drug have a place in PSC?

Does this potential inflammatory-blocking drug have a place in PSC?

Added by MrTwissel on May 20, 2015

10 Please help !

Please help !

Posted by Stephen on May 16, 2015

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