Welcome!!!

Welcome! You're not alone.

If your family has been affected by Primary Sclerosing Cholangitis (PSC), consider Living with Primary Sclerosing Cholangitis (PSC) your second home.

NOW....GET STARTED:

1. Become a Member
2. Make Friends
3. Post to a Forum
4. Read or write a Blog
5. Join or Create a Group
6. Follow us on Twitter
7. Become a fan to our Facebook

Got some QUESTIONS? 
Check our FAQ PAGE.

Read More from our  First-Time-User Guide.

Need a Doctor or Specialist?

Join Ben's Friends

Need a Second Opinion?

Disclaimer

All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.

Photos

Loading…

Groups

Pictures please !

It would be great if members could add a picture of themselves to their profile. It makes talking to each other or responding to questions so much more personal.

Community Moderators

Please Be Kind & Use Appropriate Language

Let's Keep it Nice & Clean
1. No Spam
2. No Personal attacks
3. No Offensive content (profanity, sexual references, illegal activity subject matter, pornographic material or photos)
4. No Profanity, sexual references and illegal activity subject matter in the Chat Room.
5. No specific doctor or hospital name mentioned in a negative context, for legal reasons. 
Specific doctor or hospital names in a positive context are welcome.
6. No sharing of members' posts to other sites without their express permission.
7. There are many sites for discussing religion and politics. This is not one of them. Divisive posts about religion and politics will be deleted.
Thanks for your cooperation.

Partners

BensFriends.org is proud to partner with a number of organizations to help our members in various areas, including legal, financial, research and medical. 

Know more about our PARTNERSvisit this link.

 

How common is PSC ?

What is primary sclerosing cholangitis? Primary sclerosing cholangitis is a liver disease in which the bile ducts (small tubes through which bile flows from the liver to the gall bladder and intestines) progressively decrease in size due to inflammation and scarring. As a result, bile that is normally carried out of the liver accumulates within the liver, which then damages liver cells. How common is primary sclerosing cholangitis? Although primary sclerosing cholangitis has been considered a rare disease, recent studies suggest that it is more common than originally thought. The disease may occur alone, but frequently exists in association with inflammatory diseases of the colon, such as chronic ulcerative colitis. Primary sclerosing cholangitis affects both sexes, but is more common in men.

Mobile App and E-Book Available!

Keep in touch with friends. Get support and information while on the go. DOWNLOAD the Ben's Friends iPhone App now!

Be inspired by the helpful tips and amazing stories of patients with rare diseases. Get the e-book "We're in This Together: Stories & Tips from Patients with Rare Diseases" HERE.

Itching or Pruritis.

Information on itching caused by Liver disease along with some suggestions for relief. http://www.hcvadvocate.org/hepatitis/factsheets_pdf/pruritus.pdf

What is PSC ?

Primary sclerosing (skluh-ROHS-ing) cholangitis (koh-lan-JIE-tis) is a disease of the bile ducts in your liver. The term "cholangitis" in primary sclerosing cholangitis refers to inflammation of the bile ducts, while the term "sclerosing" describes the hardening and scarring of the bile ducts that result from chronic inflammation.

Forum

Who else has small duct PSC?

Started by rippi in General. Last reply by jtb 9 hours ago. 3 Replies

I sign in again to look for fellow sufferers. What is most annoying to me is the widespread ignorance of doctors. They can’t read more than I can, none has any experience with the disease – I’m their…Continue

Tags: small_duct, food, digestion, PSC

My Journey....

Started by WyldFlower in General. Last reply by Stephen Cox 9 hours ago. 3 Replies

Hello All,I am a 32 year old woman, lving with PSC and Chron's Disease. I was diagnosed in 2006 and since then my health has been a bit of a roller coaster ride! I will do ok for a while and then BAM…Continue

My husband's 1st ever PSC exacerbation & the nightmare that followed.....

Started by GmaTD53 in General. Last reply by Paul Hain yesterday. 11 Replies

Hello to all. I am posting on behalf of my husband who is too ill to do so. He is 64 years old, diagnosed with PSC in 1997, has been followed by 3 GI docs over the years who ordered twice yearly labs…Continue

Pilots?

Started by CJ in General. Last reply by Paul Hain yesterday. 8 Replies

I'm curious if there are any pilots on this board who have to maintain a first class medical. I fly professionally and it would be helpful to know if there's anyone else who's dealing with PSC as I…Continue

Latest Activity

jtb replied to rippi's discussion Who else has small duct PSC?
"I think detmsh nailed it - with a rare disease you need to be the expert.  The trick is…"
9 hours ago

Moderator
Stephen Cox replied to WyldFlower's discussion My Journey....
"Hello Wyldflower, You have been through a great deal and still going through it. I can understand…"
9 hours ago
jtb replied to WyldFlower's discussion My Journey....
"I'm sorry you've had to put up with all this--it sounds like you've had a really…"
9 hours ago
detmsh replied to rippi's discussion Who else has small duct PSC?
"Hi Rippi - You have noted the reality of this disease and complications. You have to be your own…"
10 hours ago

Moderator
Stephen Cox left a comment for R the II
"Hello R, Welcome. You have joined a great group for support, information and a place to make…"
11 hours ago
Profile IconR the II and Jk1978 joined Primary Sclerosing Cholangitis (PSC) - Online Support Group
11 hours ago
WyldFlower's discussion was featured

My Journey....

Hello All,I am a 32 year old woman, lving with PSC and Chron's Disease. I was diagnosed in 2006 and…See More
12 hours ago
JeffDC replied to WyldFlower's discussion My Journey....
"What a roller coaster ride. Chons is bad enough but to have psc,too? Some people who post here have…"
13 hours ago

Top Content 

1 My husband's 1st ever PSC exacerbation & the nightmare that followed.....

My husband's 1st ever PSC exacerbation & the nightmare that followed.....

Posted by GmaTD53 on October 16, 2014

2 transplant info

transplant info

Posted by Bunny on October 15, 2014

3 Emerging Attack or Caregiver Paranoia?

Emerging Attack or Caregiver Paranoia?

Posted by Fascinating Bird on October 17, 2014

4 Hello- New To Group

Hello- New To Group

Posted by whitewolf on October 18, 2014

5 My story

My story

Posted by dizzle on October 16, 2014

6 My Journey....

My Journey....

Posted by WyldFlower on October 21, 2014

7 Who else has small duct PSC?

Who else has small duct PSC?

Posted by rippi on October 17, 2014

8 New to Group and Disease, help!!!

New to Group and Disease, help!!!

Added by Christine on October 19, 2014

9 pbc diagnosis

pbc diagnosis

Posted by petunia on October 16, 2014

10 MY PSC story

MY PSC story

Posted by realityman on October 14, 2014

Please click on FIRST TIME USERS and WELCOME! tabs for helpful info, also the Help tab for Links . THANKS!

 
 
 

Help Us Help Others

Help Ben's Friends

Like & Follow Us!

Follow Me on Pinterest

Give Us A Review

Bens Friends

To Support LivingWithPSC.org, Click an Ad. Or Two.

Are You in Crisis?

First take a deep breath, then call the National Suicide Prevention Hotline immediately.  1-800-273-TALK for members in the United States.

For international members, please visit http://www.suicide.org/international-suicide-hotlines.html for information on where to call.

Blog Posts

New to Group and Disease, help!!!

Posted by Christine on October 19, 2014 at 1:16pm 2 Comments

In October 2011, I went to be tested to donate a kidney to a young man in my community and my blood work and levels were great! I was almost a perfect match, but because it was his 2nd kidney his antibodies started rejecting when they tested our… Continue

Artificial liver

Posted by Meme on September 24, 2014 at 12:16pm 1 Comment

Hi everyone,

  Here is another site that talks about liver issues and possible future cures. Here is the link to the artificial liver page.…

Continue

Events

About

Ben created this Ning Network.

Gift Store

© 2014   Created by BensFriends.org

Badges  |  Report an Issue  |  Terms of Service