Welcome! You're not alone.

Getting Started:

1. Become a Member
2. Make Friends
3. Post to a Forum
4. Join or Create a Group

Check the Help tab above.


To maintain your privacy in a google-y universe, please do not use your real-life name.
Because we are a peer-to-peer support network, we ask that members not include honorifics, degrees or professional designations such as RN, Imam, PhD. Adv, MSW, Sr, Dr., Dame, Sgt, Rev, DO or similar in their screen name. We will not approve these after Sept 2015.

To change your screen name, click here. 


All of the material provided on this site is for informational purposes only and is not a substitute for professional medical advice or treatment.

Always seek the advice of your physician or qualified health provider with any questions regarding your health.

Do not disregard professional medical advice or delay seeking it because of something you read on this site.

Our Guidelines

Let's Keep it Nice & Clean
  1. Describe (share experiences), not Prescribe (suggest treatment for others).
  2. No spam.
  3. No personal attacks or defamatory posts.
  4. No offensive content (profanity, sexual references, illegal activity subject matter, pornographic material or photos).
  5. No specific doctor or hospital name mentioned in a negative context, for legal reasons. Specific doctor or hospital names in a positive context are welcome.
  6. No sharing of members' posts to other sites without their express permission.
  7. No solicitations or promotions of goods or services. No fundraising without the permission of the moderators.
  8. No email addresses or phone numbers on the forum, please.
  9. Religious content must be restricted to the prayer group.
  10. No politics, please.

Thanks for your cooperation.

Community Moderators

Have a question, concern, or suggestion? Or would you like to volunteer?

Please send a private message to a moderator.




How common is PSC?

What is primary sclerosing cholangitis? Primary sclerosing cholangitis is a liver disease in which the bile ducts (small tubes through which bile flows from the liver to the gall bladder and intestines) progressively decrease in size due to inflammation and scarring. As a result, bile that is normally carried out of the liver accumulates within the liver, which then damages liver cells. How common is primary sclerosing cholangitis? Although primary sclerosing cholangitis has been considered a rare disease, recent studies suggest that it is more common than originally thought. The disease may occur alone, but frequently exists in association with inflammatory diseases of the colon, such as chronic ulcerative colitis. Primary sclerosing cholangitis affects both sexes, but is more common in men.

Mobile App

Keep in touch with friends. Get support and information while on the go. DOWNLOAD the Ben's Friends iPhone App now.


early symptoms of PSC

Started by Mave in Symptoms and their Management. Last reply by Bob 38 minutes ago. 16 Replies

Hi allI am in my second week of being diagnosed with this disease, and still waiting for my liver biopsy results. I am keen to learn from you about the different stages and what can be expected.I have symptoms at the moment, but not sure if they are…Continue

advice on pregnancy with psc

Started by Lolly in General. Last reply by MILL 1 hour ago. 13 Replies

This is a reach out to any members who have been through or are currently pregnant while having psc!I would be most grateful to hear your experiences and any words of advice. I'm hoping my pregnancy wont be too problematic. My consultant advised me…Continue

Essential Oils

Started by Leigh in Complementary Therapies. Last reply by ModSupport 2 hours ago. 5 Replies

Hi all,Since PSC has a connection to Ulcerative Colitis, I was wondering if any of you have tried using 100% pure Essential Oils to aid in digestion? If so, what are your thoughts? What product/brand did you use? How quickly did you see improvements…Continue

Tags: Oils, Essential, Colitis, Ulcerative, Digestion

When are you symptomatic?

Started by Hilary in General. Last reply by Hilary 8 hours ago. 7 Replies

Can you be symptomatic when your labs are good? My daughter is six, but this morning she claimed total exhaustion and was slightly itchy. Her liver enzymes are normal right now, and her bilirubin is only very slightly elevated. Since I am not in her…Continue

Itching or Pruritis

Information on itching caused by Liver disease along with some suggestions for relief. http://www.hcvadvocate.org/hepatitis/factsheets_pdf/pruritus.pdf

Latest Activity

Bob replied to Mave's discussion early symptoms of PSC
"One other thing I'd say that definitely makes a difference for me on the itching is how much…"
38 minutes ago
MILL replied to Lolly's discussion advice on pregnancy with psc
"Hi Beth, Thanks for sharing. I'm glad to here that. We're you ever put on cholostyromine…"
1 hour ago
ModSupport replied to Leigh's discussion Essential Oils
"To spread words, and also to spend a LOT of money. Always remember that complementary medicines…"
2 hours ago
DHZ replied to Mave's discussion early symptoms of PSC
"Which hospital you are listed? Seems they are very aggressive in treating the PSC. I had a sudden…"
3 hours ago

Top Content 

1 early symptoms of PSC

early symptoms of PSC

Posted by Mave on January 29, 2016

2 When are you symptomatic?

When are you symptomatic?

Posted by Hilary on February 3, 2016

3 Essential Oils

Essential Oils

Posted by Leigh on February 4, 2016

4 Worsening bloodwork

Worsening bloodwork

Posted by Lisa on January 29, 2016

5 Who's taking Vancomycin for their PSC?

Who's taking Vancomycin for their PSC?

Posted by LillyAnne on April 8, 2015

6 advice on pregnancy with psc

advice on pregnancy with psc

Posted by Lolly on December 26, 2015

7 Alkaline Phosphatase levels. . .

Alkaline Phosphatase levels. . .

Posted by Tkdfightr on December 21, 2015

8 Humira to help UC

Humira to help UC

Posted by Super Chevy on February 5, 2016


© 2016   Created by BensFriends.org   Powered by

Badges  |  Report an Issue  |  Terms of Service