Primary Sclerosing Cholangitis (PSC) - Online Support Group

We are patients living with primary sclerosing cholangitis (PSC), here for you!

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17 yr old Son with UC and PSC 10 Replies

Hi all, hope you're all feeling well.My son was diagnosed last year with UC and six months later, PSC.  His UC is being treated with Azathioprine, so far with good results, and the PSC seems problem…Continue

Started by Motherofone in General. Last reply by Todd D on Saturday.

New at this, questions 6 Replies

I have just recently been diagnosed with psc after having an MRCP that showed multiple strictures of the intra and extra hepatic ducts. My liver enzymes were only slightly elevated in my bloodwork. I…Continue

Started by Annick in General. Last reply by Annick May 22.

Diet

Has anyone found that changing your diet has helped your PSC ?  I have changed mine and my numbers have dropped down..I'm interested if anyone has been told the same& what has worked for them?Continue

Started by FunLovingCarol in General May 20.

Twitter Chat 2 Replies

Hope everybody is well.Would any of you be interesting in being a part of a twitter chat? It could be a fun way to learn about other communities on BF, share your experiences with a rare disease,…Continue

Tags: Chat, Twitter

Started by John "JC" Colyer in General. Last reply by John "JC" Colyer May 18.

Please click on FIRST TIME USERS and WELCOME! tabs for helpful info, also the Help tab for Links . THANKS!

Welcome to LivingWithPSC.org

Welcome to LivingWithPSC.org

The goal of this website is to help and provide support to people who have been diagnosed with Primary Sclerosing Cholangitis (PSC).

Primary sclerosing cholangitis (PSC) is a chronic liver disease caused by progressive inflammation and scarring of the bile ducts of the liver. The inflammation impedes the flow of bile to the gut, which can ultimately lead to liver cirrhosis, liver failure and liver cancer. The underlying cause of the inflammation is believed to be autoimmunity.[1] The definitive treatment is liver transplantation. (Wikipedia)

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John "JC" Colyer gave a gift to Armando Abrero
3 hours ago
Armando Abrero's blog post was featured

Facebook Feature Supports Organ Donation

We never realize the value of organ donation, until we're on the receiving end.…See More
3 hours ago
Armando Abrero posted a blog post

Facebook Feature Supports Organ Donation

We never realize the value of organ donation, until we're on the receiving end.…See More
12 hours ago

Moderator
Ben Munoz's blog post was featured

May 2012 LivingWithPSC Community Newsletter

Dear Friends and Family of LivingWithPSC,We are so excited we cannot wait to tell you about how our…See More
yesterday

Moderator
Ben Munoz posted a blog post

May 2012 LivingWithPSC Community Newsletter

Dear Friends and Family of LivingWithPSC,We are so excited we cannot wait to tell you about how our…See More
Saturday
Todd D replied to Motherofone's discussion 17 yr old Son with UC and PSC
"best thing about forums is you can say whatever you want and every one is entitled to their…"
Saturday
Nora left a comment for John "JC" Colyer
"Thank you John, i needed that! "
Saturday
danabee replied to Motherofone's discussion 17 yr old Son with UC and PSC
"Dear maynard77, Thank you for sharing this. It only makes sense that anyone with liver disease…"
Friday

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    Primary Sclerosing Cholangitis (PSC) - Online Support Group

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    Primary Sclerosing Cholangitis (PSC) - Online Support Group

    Primary Sclerosing Cholangitis (PSC) - Online Support Group

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    Facebook Feature Supports Organ Donation

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    Continue

    Posted by Armando Abrero on May 27, 2012 at 10:40pm

    May 2012 LivingWithPSC Community Newsletter

    Dear Friends and Family of LivingWithPSC,

    We are so excited we cannot wait to tell you about how our organization is growing, so we’ll go straight at it. We are please to tell you that collectively our patient…

    Continue

    Posted by Ben Munoz on May 26, 2012 at 8:00am

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