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How common is PSC?

What is primary sclerosing cholangitis? Primary sclerosing cholangitis is a liver disease in which the bile ducts (small tubes through which bile flows from the liver to the gall bladder and intestines) progressively decrease in size due to inflammation and scarring. As a result, bile that is normally carried out of the liver accumulates within the liver, which then damages liver cells. How common is primary sclerosing cholangitis? Although primary sclerosing cholangitis has been considered a rare disease, recent studies suggest that it is more common than originally thought. The disease may occur alone, but frequently exists in association with inflammatory diseases of the colon, such as chronic ulcerative colitis. Primary sclerosing cholangitis affects both sexes, but is more common in men.

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New to PSC and to this support group, Curious about LDI therapy

Started by Infinite Arms in New Member Introductions. Last reply by Crewmom 6 hours ago. 2 Replies

Hello AllI am new to the site so I just wanted to share some history and inquire about treatments. I am 37 and have had UC for 20+ years now which has been in remission for most of that time. I was diagnosed with small duct PSC in October of 2015…Continue

NorUrso News about Phase II

Started by cosmo in General. Last reply by DHZ 9 hours ago. 2 Replies

Hi,I just spoke to my Doc. He told me the result of the NorUrso study will be presented in the begin of March.I hope it will be good news for us.regardsMirco Continue

Getting a second opinion?

Started by Brendon in General. Last reply by fcmmark on Monday. 7 Replies

Hello!In February of 2016, only a few weeks after turning 18, I was hospitalized overnight with a bad intestinal infection. I got a lot of blood tests then, and my bile levels came back abnormal. This was noticed by my gastroenterologist, who…Continue

Crossover syndrome

Started by Jaiken in General. Last reply by Crewmom Apr 28. 2 Replies

Hi I'm seventeen years old and I was diagnosed with a crossover syndrome between autoimmune hepatitas and scelerosing cholangiatas . (ASC)Is there anyone here that has the same thing as me?Continue

Itching or Pruritis

Information on itching caused by Liver disease along with some suggestions for relief. http://www.hcvadvocate.org/hepatitis/factsheets_pdf/pruritus.pdf

Latest Activity

Crewmom replied to Infinite Arms's discussion New to PSC and to this support group, Curious about LDI therapy
"DHZ, would you like to elaborate on your statement?  Such a strong statement saying that…"
6 hours ago
DHZ replied to Infinite Arms's discussion New to PSC and to this support group, Curious about LDI therapy
"Guaranteed LDI can cure PSC."
9 hours ago
DHZ replied to cosmo's discussion NorUrso News about Phase II
"If I remember it correctly, the main result is that maximal dose achieved 25% decrease of ALP in…"
9 hours ago
clambrix2069 updated their profile

Top Content 

1 Getting a second opinion?

Getting a second opinion?

Posted by Brendon on April 29, 2016

2 New to PSC and to this support group, Curious about LDI therapy

New to PSC and to this support group, Curious about LDI therapy

Posted by Infinite Arms on March 19, 2016

3 NorUrso News about Phase II

NorUrso News about Phase II

Posted by cosmo on February 7, 2016


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