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If your family has been affected by Primary Sclerosing Cholangitis (PSC), consider Living with Primary Sclerosing Cholangitis (PSC) your second home.

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How common is PSC?

What is primary sclerosing cholangitis? Primary sclerosing cholangitis is a liver disease in which the bile ducts (small tubes through which bile flows from the liver to the gall bladder and intestines) progressively decrease in size due to inflammation and scarring. As a result, bile that is normally carried out of the liver accumulates within the liver, which then damages liver cells. How common is primary sclerosing cholangitis? Although primary sclerosing cholangitis has been considered a rare disease, recent studies suggest that it is more common than originally thought. The disease may occur alone, but frequently exists in association with inflammatory diseases of the colon, such as chronic ulcerative colitis. Primary sclerosing cholangitis affects both sexes, but is more common in men.

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Be inspired by the helpful tips and amazing stories of patients with rare diseases. Get the e-book "We're in This Together: Stories & Tips from Patients with Rare Diseases" HERE.

Itching or Pruritis

Information on itching caused by Liver disease along with some suggestions for relief. http://www.hcvadvocate.org/hepatitis/factsheets_pdf/pruritus.pdf

What is PSC?

Primary sclerosing (skluh-ROHS-ing) cholangitis (koh-lan-JIE-tis) is a disease of the bile ducts in your liver. The term "cholangitis" in primary sclerosing cholangitis refers to inflammation of the bile ducts, while the term "sclerosing" describes the hardening and scarring of the bile ducts that result from chronic inflammation.

Forum

PSC and diabetes

Started by Stephen in General. Last reply by Alix 1 hour ago. 4 Replies

Hello,Just wondering how many members have PSC and diabetes ? I was diagnosed with diabetes, type 2 insulin about 8 weeks ago.A few weeks back I was diagnosed with a Nast sepsis liver infection or…Continue

Profound fatigue

Started by Stephen in General. Last reply by Stephen 6 hours ago. 2 Replies

Continue

Diagnosed with PSC

Started by TD in General. Last reply by TD yesterday. 6 Replies

Hi all,A bit of background first :). I was diagnosed with UC at 25, and have been treating it on and off for a few years. I started on Mezzevant about 5 months ago, and its working wonders, with…Continue

PSC & Pregnancy update

Started by Ivy in General. Last reply by Anna yesterday. 2 Replies

After a pretty smooth pregnancy, I started developing edema in my feet/ankles/legs a few weeks ago. My albumin levels also started dropping and despite increasing my protein intake nothing seems to…Continue

Latest Activity

Alix replied to Stephen's discussion PSC and diabetes
"That's not great should I develop diabetes. Frequent infections,…"
1 hour ago

Moderator
Stephen replied to Stephen's discussion PSC and diabetes
"Hi Alix, Thanks for responding. Thanks for the link as well. Having diabetes and PSC has…"
6 hours ago

Moderator
Stephen replied to Stephen's discussion Profound fatigue
"Hello Brave Bunny, Thank you for your reply. I am glad you are feeling better. You have a double…"
6 hours ago
nelly madore liked Stephen's discussion Profound fatigue
13 hours ago
brave bunny replied to Stephen's discussion Profound fatigue
"Stephen, thank you for posting this link. Fatigue has been an issue for me since my experience with…"
21 hours ago
Alix replied to Stephen's discussion PSC and diabetes
"I've wondered about this myself as my PSC stems from autoimmune pancreatitis (most AIP…"
yesterday

Moderator
Stephen replied to Stephen's discussion PSC and diabetes
"Well, I guess nobody has diabetes."
yesterday

Moderator
Stephen posted a discussion
yesterday

Top Content 

1 Profound fatigue

Profound fatigue

Posted by Stephen on March 26, 2015

2 PSC & Pregnancy update

PSC & Pregnancy update

Posted by Ivy on March 24, 2015

3 PSC post-transplant.

PSC post-transplant.

Posted by Payton on March 22, 2015

4 We had our transplant!

We had our transplant!

Posted by Gloria on March 1, 2015

5 PSC and diabetes

PSC and diabetes

Posted by Stephen on March 24, 2015

6 PSC Transplant Rejection Risk

PSC Transplant Rejection Risk

Added by Paul Hain on March 19, 2015

7 Who's using Vancomycin?  What has been your experience?

Who's using Vancomycin? What has been your experience?

Posted by Crewmom on March 12, 2015

8 Oldest person with PSC

Oldest person with PSC

Posted by Smittysgirl on March 16, 2015

9 Sneezing..

Sneezing..

Posted by Alix on March 25, 2015

10 Local Fundraiser for Ben's Friends

Local Fundraiser for Ben's Friends

Added by Scott Orn on March 22, 2015

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Blog Posts

Local Fundraiser for Ben's Friends

Posted by Scott Orn on March 22, 2015 at 11:34am 0 Comments

I wanted to share some good news from a local fundraiser we did last night in San Francisco. Some friends of mine wanted to support Ben's Friends so they held a "bar night get together for Ben's Friends."

It was a big success as we…

Continue

PSC Transplant Rejection Risk

Posted by Paul Hain on March 19, 2015 at 1:09pm 1 Comment

I saw my post transplant hepatologist yesterday for my annual visit. I had my transplant 3 years ago. He told me that PSC patients that have been transplanted have a higher than average risk of organ rejection.  Has anyone else been told that?

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