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If your family has been affected by Primary Sclerosing Cholangitis (PSC), consider Living with Primary Sclerosing Cholangitis (PSC) your second home.


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How common is PSC ?

What is primary sclerosing cholangitis? Primary sclerosing cholangitis is a liver disease in which the bile ducts (small tubes through which bile flows from the liver to the gall bladder and intestines) progressively decrease in size due to inflammation and scarring. As a result, bile that is normally carried out of the liver accumulates within the liver, which then damages liver cells. How common is primary sclerosing cholangitis? Although primary sclerosing cholangitis has been considered a rare disease, recent studies suggest that it is more common than originally thought. The disease may occur alone, but frequently exists in association with inflammatory diseases of the colon, such as chronic ulcerative colitis. Primary sclerosing cholangitis affects both sexes, but is more common in men.

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Itching or Pruritis.

Information on itching caused by Liver disease along with some suggestions for relief. http://www.hcvadvocate.org/hepatitis/factsheets_pdf/pruritus.pdf

What is PSC ?

Primary sclerosing (skluh-ROHS-ing) cholangitis (koh-lan-JIE-tis) is a disease of the bile ducts in your liver. The term "cholangitis" in primary sclerosing cholangitis refers to inflammation of the bile ducts, while the term "sclerosing" describes the hardening and scarring of the bile ducts that result from chronic inflammation.


Who else has small duct PSC?

Started by rippi in General. Last reply by detmsh 1 hour ago. 8 Replies

I sign in again to look for fellow sufferers. What is most annoying to me is the widespread ignorance of doctors. They can’t read more than I can, none has any experience with the disease – I’m their…Continue

Tags: small_duct, food, digestion, PSC

My Journey....

Started by WyldFlower in General. Last reply by Stephen Cox yesterday. 3 Replies

Hello All,I am a 32 year old woman, lving with PSC and Chron's Disease. I was diagnosed in 2006 and since then my health has been a bit of a roller coaster ride! I will do ok for a while and then BAM…Continue

My husband's 1st ever PSC exacerbation & the nightmare that followed.....

Started by GmaTD53 in General. Last reply by Paul Hain on Tuesday. 11 Replies

Hello to all. I am posting on behalf of my husband who is too ill to do so. He is 64 years old, diagnosed with PSC in 1997, has been followed by 3 GI docs over the years who ordered twice yearly labs…Continue


Started by CJ in General. Last reply by Paul Hain on Tuesday. 8 Replies

I'm curious if there are any pilots on this board who have to maintain a first class medical. I fly professionally and it would be helpful to know if there's anyone else who's dealing with PSC as I…Continue

Latest Activity

detmsh replied to rippi's discussion Who else has small duct PSC?
"Very interesting looking paper and hot off the press too. I'm looking for a full, free form…"
1 hour ago
rippi replied to rippi's discussion Who else has small duct PSC?
" "
8 hours ago
Ginger liked rippi's discussion Who else has small duct PSC?
19 hours ago
Ginger liked WyldFlower's discussion My Journey....
19 hours ago
Jean replied to rippi's discussion Who else has small duct PSC?
"Hi Rippi, Can you share how you determined that yours is the second type of small duct PSC? My son…"

Stephen Cox replied to rippi's discussion Who else has small duct PSC?
"Your GI is wrong. Obviously he is not well versed in PSC issues. Regretfully we have to educate…"
Sissy replied to rippi's discussion Who else has small duct PSC?
"PSC is so complicated. Now I hear of two different small duct PSC. I sometimes don't know if…"
jtb replied to rippi's discussion Who else has small duct PSC?
"I think detmsh nailed it - with a rare disease you need to be the expert.  The trick is…"

Top Content 

1 My husband's 1st ever PSC exacerbation & the nightmare that followed.....

My husband's 1st ever PSC exacerbation & the nightmare that followed.....

Posted by GmaTD53 on October 16, 2014

2 Who else has small duct PSC?

Who else has small duct PSC?

Posted by rippi on October 17, 2014

3 Emerging Attack or Caregiver Paranoia?

Emerging Attack or Caregiver Paranoia?

Posted by Fascinating Bird on October 17, 2014

4 Hello- New To Group

Hello- New To Group

Posted by whitewolf on October 18, 2014

5 My Journey....

My Journey....

Posted by WyldFlower on October 21, 2014

6 My story

My story

Posted by dizzle on October 16, 2014

7 New to Group and Disease, help!!!

New to Group and Disease, help!!!

Added by Christine on October 19, 2014

8 cholangitis attack?

cholangitis attack?

Posted by Michelle on October 6, 2014

9 pbc diagnosis

pbc diagnosis

Posted by petunia on October 16, 2014

10 transplant info

transplant info

Posted by Bunny on October 15, 2014

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Blog Posts

New to Group and Disease, help!!!

Posted by Christine on October 19, 2014 at 1:16pm 2 Comments

In October 2011, I went to be tested to donate a kidney to a young man in my community and my blood work and levels were great! I was almost a perfect match, but because it was his 2nd kidney his antibodies started rejecting when they tested our… Continue

Artificial liver

Posted by Meme on September 24, 2014 at 12:16pm 1 Comment

Hi everyone,

  Here is another site that talks about liver issues and possible future cures. Here is the link to the artificial liver page.…




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