LifeWithMultipleMyeloma Members, Friends and Family,

As we begin a brand new year, envigorated with greater joy and compassion, we renewed our greater commitments to our community. BensFriends grew tremendously in the past three years, and we want to take this moment both to thank you and to make a promise to continue fulfill our mission: to ensure that everyone in the world with a rare disease has a safe place to go and connect with others like them.

We’re…

Went to see the doc yesterday.  Had a blood test last week and they missed the liver enzyme test (yeah, the only one that was really needed!).  So after chatting with the doc for a half hour, I got that done.  Results to follow next week.

The doc basically said that they are going to schedule an ERCP test probably in the next month or so to take a look.  I don't want LOOKS, I want results!  Nothing seems to keep right on happening.  After no suggestion from my doc I finally…

can anyone guide me at what stage does one experience itching in PSC and in what areas is it felt, and is it frequent.

LivingwithPSC Members, Friends and Family,

We hope this message finds you well with high spirits and inner joy. We’re happy to inform you that our Primary Sclerosing Cholangitis (PSC) community continuously been growing. And as always, we’re here to give strength and support.

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