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Groups

 

How common is PSC?

What is primary sclerosing cholangitis? Primary sclerosing cholangitis is a liver disease in which the bile ducts (small tubes through which bile flows from the liver to the gall bladder and intestines) progressively decrease in size due to inflammation and scarring. As a result, bile that is normally carried out of the liver accumulates within the liver, which then damages liver cells. How common is primary sclerosing cholangitis? Although primary sclerosing cholangitis has been considered a rare disease, recent studies suggest that it is more common than originally thought. The disease may occur alone, but frequently exists in association with inflammatory diseases of the colon, such as chronic ulcerative colitis. Primary sclerosing cholangitis affects both sexes, but is more common in men.

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Forum

Liver Transplant This Week!!!!!

Started by fcmmark in General. Last reply by Dolphin5 yesterday. 9 Replies

Dear Friends,I am writing you this evening from the Surgical Intensive Care Unit at Duke Medical Center in Durham.  On Wednesday of this week around 11:40 am I received a call from Duke's on call transplant coordinator that they had a liver for me. …Continue

Depression :(

Started by Mariale in General. Last reply by Dolphin5 yesterday. 13 Replies

Has anybody ever felt overwhelmed by the pruritus to the point where you don't want to continue living like that and wish your life could stop right there? I am not going to do anything silly  I just want to know if I need treatment for depression…Continue

Early flare ups?

Started by JMc in General. Last reply by Dennis yesterday. 1 Reply

I have had twice now brief periods of time when stress is high that I have been extra tired, irritable, and I can't seem to want to eat any proteins at all. I am not symptomatic otherwise yet, but these times are odd for me. Not my typical reaction…Continue

Looking for data of Faecal Microbiota Transplants (FMT) for psc patients.

Started by Dennis in General. Last reply by MrTwissel yesterday. 3 Replies

My hepatologist understandably did not want to try FMT treatment for me, because there is not enough reliable data for its success for psc patients. The only information I have been able to come up with so far is:- a story of a psc patient on this…Continue

Itching or Pruritis

Information on itching caused by Liver disease along with some suggestions for relief. http://www.hcvadvocate.org/hepatitis/factsheets_pdf/pruritus.pdf

Latest Activity

Bluesky1000 liked fcmmark's discussion Liver Transplant This Week!!!!!
3 hours ago

Moderator
JeffDC left a comment for mrswoody
"Mrs. Woody, thanks for joining. One thing that can be worse than a diagnosis is the not knowing. I…"
yesterday
Dolphin5 replied to fcmmark's discussion Liver Transplant This Week!!!!!
"Inspiring. Thanks for the post. Keep us in the loop!"
yesterday
Dolphin5 replied to Mariale's discussion Depression :(
"That is a very good book you mentioned and I agree that sometimes Marijuana is helpful. No person…"
yesterday
Dennis replied to JMc's discussion Early flare ups?
"Hi JMc, my experience is also that there seems to be a psychosomatic aspect to psc. Maybe this link…"
yesterday
JMc posted a discussion

Early flare ups?

I have had twice now brief periods of time when stress is high that I have been extra tired,…See More
yesterday

Moderator
fcmmark left a comment for mrswoody
"Welcome Mrs. Woody to this supportive community of patients, their families and friends who are…"
yesterday
mrswoody is now a member of Primary Sclerosing Cholangitis (PSC) - Online Support Group
yesterday

Moderator
fcmmark left a comment for emtbigsky
"Dear Emtbigsky, I am so sorry to hear that your father's health is continuing to…"
yesterday
emtbigsky left a comment for fcmmark
"My dad is now on hospice and abdomen continues to fill with ...um not sure what it is any way…"
yesterday
MrTwissel replied to Dennis's discussion Looking for data of Faecal Microbiota Transplants (FMT) for psc patients.
"I did 30 consecutive FMTs at home. Personally had no luck. But apparently donor is a huge part of…"
yesterday
Dennis replied to Dennis's discussion Looking for data of Faecal Microbiota Transplants (FMT) for psc patients.
"Thanks jtb, but the data in your link was about the 'psc patient on this forum who after…"
Sunday

Top Content 

1 Looking for data of Faecal Microbiota Transplants (FMT) for psc patients.

Looking for data of Faecal Microbiota Transplants (FMT) for psc patients.

Posted by Dennis on August 29, 2015

2 Long LDN success story 14 years out of my 15 year olds life

Long LDN success story 14 years out of my 15 year olds life

Posted by wonski on August 26, 2015

3 Liver Transplant This Week!!!!!

Liver Transplant This Week!!!!!

Posted by fcmmark on July 25, 2015

4 mrcp findings

mrcp findings

Posted by vango on August 28, 2015

5 Nutrition After Transplant

Nutrition After Transplant

Posted by fcmmark on August 25, 2015

6 Early flare ups?

Early flare ups?

Posted by JMc on August 30, 2015

7 Depression :(

Depression :(

Posted by Mariale on June 11, 2015

 
 
 

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