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If your family has been affected by Primary Sclerosing Cholangitis (PSC), consider Living with Primary Sclerosing Cholangitis (PSC) your second home.


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How common is PSC ?

What is primary sclerosing cholangitis? Primary sclerosing cholangitis is a liver disease in which the bile ducts (small tubes through which bile flows from the liver to the gall bladder and intestines) progressively decrease in size due to inflammation and scarring. As a result, bile that is normally carried out of the liver accumulates within the liver, which then damages liver cells. How common is primary sclerosing cholangitis? Although primary sclerosing cholangitis has been considered a rare disease, recent studies suggest that it is more common than originally thought. The disease may occur alone, but frequently exists in association with inflammatory diseases of the colon, such as chronic ulcerative colitis. Primary sclerosing cholangitis affects both sexes, but is more common in men.

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Itching or Pruritis.

Information on itching caused by Liver disease along with some suggestions for relief. http://www.hcvadvocate.org/hepatitis/factsheets_pdf/pruritus.pdf

What is PSC ?

Primary sclerosing (skluh-ROHS-ing) cholangitis (koh-lan-JIE-tis) is a disease of the bile ducts in your liver. The term "cholangitis" in primary sclerosing cholangitis refers to inflammation of the bile ducts, while the term "sclerosing" describes the hardening and scarring of the bile ducts that result from chronic inflammation.


Magnesium for GERD and for Crohn's.

Started by Pscnofun in General 5 hours ago. 0 Replies

The last month or so I've been having GERD. I've been on Dexilant for 4 months and it has controlled the GERD. I'm wondering if it has stopped working. I do watch what I eat. I have Crohn's and PSC.…Continue

Tags: PSC, Crohn's, Magnesium

Autoantibody testing

Started by Bob in General. Last reply by Bob 23 hours ago. 4 Replies

Hi all. I've been struggling with fatigue and finally I asked my Dr whether it was worth investigating whether there are other reasons besides liver disease why I'm so tired all the time. He said…Continue

Doctors,Denial and Difficulties with Chronic Illness polluting planning for future

Started by Glass Flower in General. Last reply by Priya Patel on Saturday. 14 Replies

So, if one has periods of being somewhat asymptomatic, (just fatigue and bothersome itching right now) and it has been 3 or 4 months since the last cholangitis attack, what is the value in going to…Continue

Tags: couples, planning, future, denial

8 days after surgery

Started by mah437 in General. Last reply by Stephen Cox on Thursday. 1 Reply

ok Gallbladder gone, can almost take a deep breath, still can only sleep on my back.  Still off work. The night sweats are becoming unbearable. Have had a fever here and there since the procedure,…Continue

Latest Activity

Cassie liked Bob's discussion Autoantibody testing
1 hour ago
Cassie liked Bob's discussion Autoantibody testing
1 hour ago
Ginger liked Pscnofun's discussion Magnesium for GERD and for Crohn's.
3 hours ago
Scott Orn left a comment for The pest
"Hi The Pest -  Huge welcome to the community! This is a great place! One tip, if you have…"
4 hours ago
The pest is now a member of Primary Sclerosing Cholangitis (PSC) - Online Support Group
4 hours ago
Pscnofun posted a discussion

Magnesium for GERD and for Crohn's.

The last month or so I've been having GERD. I've been on Dexilant for 4 months and it has…See More
5 hours ago
Bob replied to Bob's discussion Autoantibody testing
"Yes, some days I can nap for hours, and end up no better off than I was, other days I'm so…"
23 hours ago
Michellek liked Michellek's profile

Top Content 

1 Doctors,Denial and Difficulties with Chronic Illness polluting planning for future

Doctors,Denial and Difficulties with Chronic Illness polluting planning for future

Posted by Glass Flower on September 18, 2014

2 Autoantibody testing

Autoantibody testing

Posted by Bob on September 18, 2014

3 8 days after surgery

8 days after surgery

Posted by mah437 on September 18, 2014

4 Magnesium for GERD and for Crohn's.

Magnesium for GERD and for Crohn's.

Posted by Pscnofun on September 22, 2014

5 Genki1


Posted by Desert corgi on September 17, 2014

Please click on FIRST TIME USERS and WELCOME! tabs for helpful info, also the Help tab for Links . THANKS!


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Blog Posts

How to cope with partner who does not understand!

Posted by Cassie on September 5, 2014 at 5:23am 10 Comments

I am finding relationships with girlfriends, difficult due to the energy required to catch-up for coffee...however, Im more concerned regarding my personal relationship with a disengaged male partner, who just ignores me...the closeness has…


Stomach bug

Posted by Gers man on August 30, 2014 at 4:13am 2 Comments

This past 2 weeks I have just not felt right. It felt like something going on in my stomach that should not. My doctor took blood samples. He phoned me  days later and said that my bloods were not good and to go back in 2 weeks later which is…




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