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What is Primary sclerosing cholangitis (PSC)?

Primary sclerosing cholangitis (PSC) is a chronic liver disease caused by progressive inflammation and scarring of the bile ducts of the liver. The inflammation impedes the flow of bile to the gut, which can ultimately lead to liver cirrhosis, liver failure and liver cancer. The underlying cause of the inflammation is believed to be autoimmunity. The definitive treatment is liver transplantation. (Wikipedia)

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Medical Forms and Trackers

Started by Ben in General 21 hours ago. 0 Replies

Thanks to Renie, moderator of LWTN, for sharing the links of the basic forms and worksheets that can help you organize your medical information and also prepare for a doctor visit.Here's the list:…Continue

See the goodcausetv interview with Scott Orn - Co-Founder of Ben's Friends

Started by Ben in General yesterday. 0 Replies

Bensfriends.org, the organization that runs this network and sets up patient support groups to help and support patients diagnosed with rare illnesses is being featured at goodcausetv. Ben's Friends…Continue

Vancomycin treatment of PSC

Started by Recurrent PSC in General on Sunday. 0 Replies

I was diagnosed with recurrent PSC, 7 years after my liver transplant. I have been very interested in Dr. Cox's successful treatment of PSC patients with oral vancomycin at Stanford (if you haven't…Continue

Splenectomy post transplant? Massive ascites?

Started by Pizzler in General on Thursday. 0 Replies

My husband had his liver transplant about 3 weeks ago. He has been having recurrent ascites where he needs to get paracentesis almost daily because his fluid is reaccumulating so fast. The docs…Continue

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Ben posted a discussion

Medical Forms and Trackers

Thanks to Renie, moderator of LWTN, for sharing the links of the basic forms and worksheets that…See More
21 hours ago
0 Comments
Ben posted a discussion

See the goodcausetv interview with Scott Orn - Co-Founder of Ben's Friends

Bensfriends.org, the organization that runs this network and sets up patient support groups to help…See More
yesterday
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Scott Orn and kl are now friends
Monday
Recurrent PSC posted a discussion

Vancomycin treatment of PSC

I was diagnosed with recurrent PSC, 7 years after my liver transplant. I have been very interested…See More
Sunday
0 Comments
Scott Orn left a comment for kl
""knowledge is power" is right. So are friends and people who care about you."
Sunday
kl left a comment for Scott Orn
"Thank you Scott. This is a very scary time. She was hospitalized three weeks ago (still there).…"
Sunday
Recurrent PSC posted a blog post

Vancomycin treatment for PSC

Hi everyone! I am new to this site & am so happy to be part of the PSC support network here. I…See More
Sunday
0 Comments
Scott Orn left a comment for Recurrent PSC
"Hi Recurrent, this is a great place. Big welcome!"
Sunday

Top Content 

1 Ducts blocked: Stent placement

Ducts blocked: Stent placement

Posted by Mike on May 16, 2013
2 Medical Forms and Trackers

Medical Forms and Trackers

Posted by Ben on June 18, 2013
3 Vancomycin treatment of PSC

Vancomycin treatment of PSC

Posted by Recurrent PSC on June 16, 2013
4 Splenectomy post transplant? Massive ascites?

Splenectomy post transplant? Massive ascites?

Posted by Pizzler on June 13, 2013
5 See the goodcausetv interview with Scott Orn - Co-Founder of Ben's Friends

See the goodcausetv interview with Scott Orn - Co-Founder of Ben's Friends

Posted by Ben on June 17, 2013

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    Vancomycin treatment for PSC

    Posted by Recurrent PSC on June 16, 2013 at 12:26am 0 Comments

    Hi everyone! I am new to this site & am so happy to be part of the PSC support network here. I was diagnosed with PSC in 2001. I had my liver transplant 7 years ago, 2 days before my 27th birthday. My PSC came back his past winter & I now… Continue

    This one made me rise up...

    Posted by Armando Abrero on June 8, 2013 at 6:08am 0 Comments

    ... and pour another cup!

    Recently, there has been a slew of articles online lauding coffee's apparent contribution to preventing PSC.…

    Continue

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