Primary Sclerosing Cholangitis (PSC) - Online Support Group
Primary sclerosing cholangitis is a liver disease in which the bile ducts (small tubes through which bile flows from the liver to the gall bladder and intestines) progressively decrease in size due to inflammation and scarring. As a result, bile that is normally carried out of the liver accumulates within the liver, which then damages liver cells. How common is primary sclerosing cholangitis? Although primary sclerosing cholangitis has been considered a rare disease, recent studies suggest that it is more common than originally thought. The disease may occur alone, but frequently exists in association with inflammatory diseases of the colon, such as chronic ulcerative colitis. Primary sclerosing cholangitis affects both sexes, but is more common in men.
Getting Started in Discourse
User Names Policy
Our mission at Ben’s Friends is to ensure that patients living with rare diseases or chronic illnesses, as well as their caregivers, family, and friends, have a safe and supportive place to connect with others like them.
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Bens Friends Communities
Who Is Bens Friends
New Member Introductions
Tell us about yourself. We want to hear your story.
New Member...A little about me
My son's story
New to forum and PSC
Symptoms and their Management
What symptoms are you having and how do you cope?
Blood Sugar/ hypoglycaemia or ammonia/HE
Open discussion about PSC
Malabsorption and PSC?
A connection between PSC and aHUS?
Thin Skin with PSC?
Let's talk about Transplants
This is the place to talk about all things transplant-related. Personal stories and experiences, pre-op preparations, post-op recovery, and emotions surrounding transplants. If you have had a successful transplant, we hope you will help encourage those who are preparing for transplant. No donor solicitations, please.
Met Our Transplant Donor Family
Organ Donor Registry
The patient experience - An interview of a patient with PSC who had a liver transplant
Articles and Research
Articles may not be peer reviewed or authoritative. Please do not use them as a basis for self-treating
Liver Congress 2016 updates (Norudca news)
New clinical trial starting (CVC, phase 2)
JQ1 - Scientists Discover Molecule That Halts Accumulation of Scar Tissue in the Liver
What's New With You?
Give us an update. How are you doing?
IgG4–related systemic disease...someone who knows about this?
Year and a half check up
This is our new group messaging area. Just enter a reply. If you want to send private chat simply click on the mebers avatar and start messaging. You can invite others to join you. You can also message by clicking on your avatar and the envelope in the top line
Having a rough time? We're here to listen.
How do you cope with PSC?
Suicide Hotline Numbers
Low Platelet Count
Welcome to Complementary Therapies! This is the place to discuss the array of complementary healing modalities that many of us rely on to help us live healthier lives. Whether you're looking to do more to promote your own health while undergoing medical treatment, or are waiting to get medical treatment and are looking to do what you can to feel better in the meantime, this is the place to post your questions and information. We will discuss everything from acupuncture and chiropractic to nourishing our bodies, minds, and spirits. This is the place to discuss healing modalities that can complement medical treatment.
Turmeric is effective?
News from Bens Friends -
Recommend a Doctor, Therapist, or Clinic (Positive
Want to recommend a doctor, therapist, or clinic? Positive review only, please.
New York City
Liver specialist Seattle - need good recommdation
Seeking the best hospital to treat psc
Events of Interest to PSC Patients. Just contact a mod to have your event listed. (all postings must be approved)
Member Photos and videos
At the lake
Resource copy of Blogs from old site
Discussion about this site, its organization, how it works, and how we can improve it.
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