Welcome!!!

Welcome! You're not alone.

If your family has been affected by Primary Sclerosing Cholangitis (PSC), consider Living with Primary Sclerosing Cholangitis (PSC) your second home.

NOW....GET STARTED:

1. Become a Member
2. Make Friends
3. Post to a Forum
4. Read or write a Blog
5. Join or Create a Group
6. Follow us on Twitter
7. Become a fan to our Facebook

Got some QUESTIONS? 
Check our FAQ PAGE.

Read More from our  First-Time-User Guide.

Birthdays

Birthdays Today

Birthdays Tomorrow

Need a Doctor or Specialist?

Join Ben's Friends

Disclaimer

All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.

Photos

Loading…

Groups

Pictures please !

It would be great if members could add a picture of themselves to their profile. It makes talking to each other or responding to questions so much more personal.

ClinicalTrials.gov Studies

Loading… Loading feed

Community Moderators

Please Be Kind & Use Appropriate Language

Let's Keep it Nice & Clean
1. No Spam
2. No Personal attacks
3. No Offensive content (profanity, sexual references, illegal activity subject matter, pornographic material or photos)
4. No Profanity, sexual references and illegal activity subject matter in the Chat Room.
5. No specific doctor or hospital name mentioned in a negative context, for legal reasons. 
Specific doctor or hospital names in a positive context are welcome.
6. No sharing of members' posts to other sites without their express permission.
7. There are many sites for discussing religion and politics. This is not one of them. Divisive posts about religion and politics will be deleted.
Thanks for your cooperation.

Partners

BensFriends.org is proud to partner with a number of organizations to help our members in various areas, including legal, financial, research and medical. 

Know more about our PARTNERSvisit this link.

 

How common is PSC ?

What is primary sclerosing cholangitis? Primary sclerosing cholangitis is a liver disease in which the bile ducts (small tubes through which bile flows from the liver to the gall bladder and intestines) progressively decrease in size due to inflammation and scarring. As a result, bile that is normally carried out of the liver accumulates within the liver, which then damages liver cells. How common is primary sclerosing cholangitis? Although primary sclerosing cholangitis has been considered a rare disease, recent studies suggest that it is more common than originally thought. The disease may occur alone, but frequently exists in association with inflammatory diseases of the colon, such as chronic ulcerative colitis. Primary sclerosing cholangitis affects both sexes, but is more common in men.

Mobile App and E-Book Available!

Keep in touch with friends. Get support and information while on the go. DOWNLOAD the Ben's Friends iPhone App now!

Be inspired by the helpful tips and amazing stories of patients with rare diseases. Get the e-book "We're in This Together: Stories & Tips from Patients with Rare Diseases" HERE.

Itching or Pruritis.

Information on itching caused by Liver disease along with some suggestions for relief. http://www.hcvadvocate.org/hepatitis/factsheets_pdf/pruritus.pdf

What is PSC ?

Primary sclerosing (skluh-ROHS-ing) cholangitis (koh-lan-JIE-tis) is a disease of the bile ducts in your liver. The term "cholangitis" in primary sclerosing cholangitis refers to inflammation of the bile ducts, while the term "sclerosing" describes the hardening and scarring of the bile ducts that result from chronic inflammation.

Forum

from a worried mom

Started by mom in General. Last reply by Fly Lady 14 minutes ago. 1 Reply

My son was in his sophomore year of college when he came home with pain in his side- after five long months of tests they determined he indeed had PSC- then a few months after started to  have bowel…Continue

Ursodiol Causing "Morning Sickness" for Anyone?

Started by eogray in General. Last reply by Christine 19 minutes ago. 1 Reply

Hi EveryoneMy Daughter (11) recently restarted Urso and has been feeling very sick in the mornings.  She often feels abdominal pain / cramping and nausea and frequently vomits (couple times per…Continue

Tags: Sickness, Morning, Nausea, Urso

Who else has small duct PSC?

Started by rippi in General. Last reply by Stephen Cox 6 hours ago. 11 Replies

I sign in again to look for fellow sufferers. What is most annoying to me is the widespread ignorance of doctors. They can’t read more than I can, none has any experience with the disease – I’m their…Continue

Tags: small_duct, food, digestion, PSC

My Journey....

Started by WyldFlower in General. Last reply by WyldFlower 15 hours ago. 4 Replies

Hello All,I am a 32 year old woman, lving with PSC and Chron's Disease. I was diagnosed in 2006 and since then my health has been a bit of a roller coaster ride! I will do ok for a while and then BAM…Continue

Latest Activity

Fly Lady replied to mom's discussion from a worried mom
"I can't comment on your most important issue, the medication, but I have taken a somewhat…"
14 minutes ago
Christine replied to eogray's discussion Ursodiol Causing "Morning Sickness" for Anyone?
"I've never had an issue with Urso, but I usually eat 1/2 my meal before taking the Urso, then…"
19 minutes ago
eogray posted a discussion

Ursodio Causing "Morning Sickness" for Anyone?

Hi EveryoneMy Daughter (11) recently restarted Urso and has been feeling very sick in the…See More
1 hour ago
mom liked mom's discussion from a worried mom
1 hour ago
mom posted a discussion

from a worried mom

My son was in his sophomore year of college when he came home with pain in his side- after five…See More
3 hours ago

Moderator
Stephen Cox replied to rippi's discussion Who else has small duct PSC?
"Ok Rippi, let us know how you make out. Take care."
6 hours ago
rippi replied to rippi's discussion Who else has small duct PSC?
"hi everybody, I must go back to the hospital, removal of my gall bladder. I apologize beforehand…"
12 hours ago
rippi replied to rippi's discussion Who else has small duct PSC?
" "
13 hours ago

Top Content 

1 Hello- New To Group

Hello- New To Group

Posted by whitewolf on October 18, 2014

2 Who else has small duct PSC?

Who else has small duct PSC?

Posted by rippi on October 17, 2014

3 My husband's 1st ever PSC exacerbation & the nightmare that followed.....

My husband's 1st ever PSC exacerbation & the nightmare that followed.....

Posted by GmaTD53 on October 16, 2014

4 My Journey....

My Journey....

Posted by WyldFlower on October 21, 2014

5 Emerging Attack or Caregiver Paranoia?

Emerging Attack or Caregiver Paranoia?

Posted by Fascinating Bird on October 17, 2014

6 New to Group and Disease, help!!!

New to Group and Disease, help!!!

Added by Christine on October 19, 2014

7 Ursodiol Causing "Morning Sickness" for Anyone?

Ursodiol Causing "Morning Sickness" for Anyone?

Posted by eogray on October 24, 2014

8 pbc diagnosis

pbc diagnosis

Posted by petunia on October 16, 2014

9 from a worried mom

from a worried mom

Posted by mom on October 24, 2014

Please click on FIRST TIME USERS and WELCOME! tabs for helpful info, also the Help tab for Links . THANKS!

 
 
 

Help Us Help Others

Help Ben's Friends

Like & Follow Us!

Follow Me on Pinterest

Give Us A Review

Bens Friends

To Support LivingWithPSC.org, Click an Ad. Or Two.

Are You in Crisis?

First take a deep breath, then call the National Suicide Prevention Hotline immediately.  1-800-273-TALK for members in the United States.

For international members, please visit http://www.suicide.org/international-suicide-hotlines.html for information on where to call.

Blog Posts

New to Group and Disease, help!!!

Posted by Christine on October 19, 2014 at 1:16pm 2 Comments

In October 2011, I went to be tested to donate a kidney to a young man in my community and my blood work and levels were great! I was almost a perfect match, but because it was his 2nd kidney his antibodies started rejecting when they tested our… Continue

Artificial liver

Posted by Meme on September 24, 2014 at 12:16pm 1 Comment

Hi everyone,

  Here is another site that talks about liver issues and possible future cures. Here is the link to the artificial liver page.…

Continue

Events

About

Ben created this Ning Network.

Gift Store

© 2014   Created by BensFriends.org

Badges  |  Report an Issue  |  Terms of Service