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If your family has been affected by Primary Sclerosing Cholangitis (PSC), consider Living with Primary Sclerosing Cholangitis (PSC) your second home.


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How common is PSC?

What is primary sclerosing cholangitis? Primary sclerosing cholangitis is a liver disease in which the bile ducts (small tubes through which bile flows from the liver to the gall bladder and intestines) progressively decrease in size due to inflammation and scarring. As a result, bile that is normally carried out of the liver accumulates within the liver, which then damages liver cells. How common is primary sclerosing cholangitis? Although primary sclerosing cholangitis has been considered a rare disease, recent studies suggest that it is more common than originally thought. The disease may occur alone, but frequently exists in association with inflammatory diseases of the colon, such as chronic ulcerative colitis. Primary sclerosing cholangitis affects both sexes, but is more common in men.

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Itching or Pruritis

Information on itching caused by Liver disease along with some suggestions for relief. http://www.hcvadvocate.org/hepatitis/factsheets_pdf/pruritus.pdf

What is PSC?

Primary sclerosing (skluh-ROHS-ing) cholangitis (koh-lan-JIE-tis) is a disease of the bile ducts in your liver. The term "cholangitis" in primary sclerosing cholangitis refers to inflammation of the bile ducts, while the term "sclerosing" describes the hardening and scarring of the bile ducts that result from chronic inflammation.


Vancomycin as PSC treatment

Started by SMick in General. Last reply by Ted 4 hours ago. 96 Replies

Just read the research on paediatric PSC treatment at Stamford University using the antibiotic vancomycin with very promising results (Spring 2011 newsletter) Most patients treated had excellent…Continue

New with questions

Started by 3kids in General. Last reply by 3kids 4 hours ago. 3 Replies

Hello to everyone here. I am a new member, and a parent of a child with PSC and UC. My son is 10, and we received a diagnosis of autoimmune PSC, UC (most likely not Crohn's), and another skin-related…Continue

PSC Expert Research Dr. Chris Bowlus, and Stanford Vancomycin Researcher at March 21st Palo Alto

Started by HangingIn in General. Last reply by Crewmom 6 hours ago. 3 Replies

Hi Fellow PSCers-Dr. Chris Bowlus, Expert Researcher on PSC, (working closely with Dr. Tom Karlsen at the Norwegain PSC Research Center), Dr. Shamita Shah, Stanford (Vancomycin Trial), and Dr. Kidst…Continue

Tags: Vancomycin, Research, PSC

My husband recently diagnosed with PSC --what happens now?

Started by Super Chevy in General. Last reply by EAD3 9 hours ago. 7 Replies

This is my first response .. Not sure if I am even doing this correctly ... If I can give you some info.. My husband and I were changing our life insurance last year when going through the medical…Continue

Latest Activity

WyldFlower and Still stunned are now friends
1 hour ago
Ted replied to SMick's discussion Vancomycin as PSC treatment
"Jtb: I agree with your conclusions. Vanco is basically experimental drug, doctors dont know about…"
4 hours ago
3kids replied to 3kids's discussion New with questions
"Thank-you for your thoughts Crewmom,  We have had some email communication with Dr. Cox and…"
4 hours ago
3kids replied to 3kids's discussion New with questions
" "
4 hours ago
Crewmom replied to 3kids's discussion New with questions
"Hello 3kids, I am sorry to hear what you and your family are going through.  Have you read…"
6 hours ago
Crewmom replied to HangingIn's discussion PSC Expert Research Dr. Chris Bowlus, and Stanford Vancomycin Researcher at March 21st Palo Alto
"Thank you for the information HangingIn.  I plan on attending.  I am new to this disease…"
6 hours ago
Alix and sprinter are now friends
8 hours ago
mom to psc teen replied to HangingIn's discussion PSC Expert Research Dr. Chris Bowlus, and Stanford Vancomycin Researcher at March 21st Palo Alto
"I wish I could go! Would you be willing to post notes of the meeting - especially the vanco info?…"
8 hours ago

Top Content 

1 We had our transplant!

We had our transplant!

Posted by Gloria on March 1, 2015

2 Don't know where to start

Don't know where to start

Posted by positiveintx on March 2, 2015

3 ERCP and Stents

ERCP and Stents

Posted by WyldFlower on March 1, 2015

4 Bili numbers

Bili numbers

Posted by Lori on March 1, 2015

5 My husband recently diagnosed with PSC --what happens now?

My husband recently diagnosed with PSC --what happens now?

Posted by Super Chevy on February 25, 2015

6 New to forum and PSC

New to forum and PSC

Posted by Crewmom on March 3, 2015

7 PSC Expert Research Dr. Chris Bowlus, and Stanford Vancomycin Researcher at March 21st Palo Alto

PSC Expert Research Dr. Chris Bowlus, and Stanford Vancomycin Researcher at March 21st Palo Alto

Posted by HangingIn on March 1, 2015

8 Transplant Check List for When You Get the Call!

Transplant Check List for When You Get the Call!

Posted by fcmmark on February 22, 2015

9 Pending liver transplant

Pending liver transplant

Posted by Queenb on February 28, 2015

10 New with questions

New with questions

Posted by 3kids on March 4, 2015

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Blog Posts


Posted by Di on March 2, 2015 at 1:14pm 1 Comment

I have been diagnosed withUC andPsc. My Gastro doc has been my doc however I saw a liver spec. I had a biospy and he wanted to do an ERCP I had had one years before. My Gastro doc says that they can do aan MRCP without th ERCP and get info about…


Big breakthrough in liver stemcells treatment.

Posted by Dennis on January 28, 2015 at 2:35am 9 Comments

I justed wanted to share with you a press release of last week regarding a Dutch doctor who found a way to cultivate a new liver withtin four months from a single liver stemcell. He has started the regulatory traject in the Netherlands in order…



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