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If your family has been affected by Primary Sclerosing Cholangitis (PSC), consider Living with Primary Sclerosing Cholangitis (PSC) your second home.

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How common is PSC ?

What is primary sclerosing cholangitis? Primary sclerosing cholangitis is a liver disease in which the bile ducts (small tubes through which bile flows from the liver to the gall bladder and intestines) progressively decrease in size due to inflammation and scarring. As a result, bile that is normally carried out of the liver accumulates within the liver, which then damages liver cells. How common is primary sclerosing cholangitis? Although primary sclerosing cholangitis has been considered a rare disease, recent studies suggest that it is more common than originally thought. The disease may occur alone, but frequently exists in association with inflammatory diseases of the colon, such as chronic ulcerative colitis. Primary sclerosing cholangitis affects both sexes, but is more common in men.

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Itching or Pruritis.

Information on itching caused by Liver disease along with some suggestions for relief. http://www.hcvadvocate.org/hepatitis/factsheets_pdf/pruritus.pdf

What is PSC ?

Primary sclerosing (skluh-ROHS-ing) cholangitis (koh-lan-JIE-tis) is a disease of the bile ducts in your liver. The term "cholangitis" in primary sclerosing cholangitis refers to inflammation of the bile ducts, while the term "sclerosing" describes the hardening and scarring of the bile ducts that result from chronic inflammation.

Forum

New to this group... And this disease.

Started by Kellkell33 in General. Last reply by ferretlove 10 hours ago. 6 Replies

Hello. I am a 42 year old female who found out I had PSC in April, 2014. Last summer I was denied a life insurance policy due to high liver blood test results. After going to a couple different…Continue

Nutrition and Liver

Started by ferretlove in General. Last reply by ferretlove 10 hours ago. 11 Replies

Does anyone have any idea about specific nutrition to maintain good liver health?Continue

Attacks???? PSC or something else?

Started by Buttercup in General. Last reply by Buttercup yesterday. 9 Replies

Attacks of pain in lower abdomen followed by severe gas, bloating and stomach cramps.  Anyone have this with Psc?  I have had this several times in the past.Continue

The saga continues.

Started by mah437 in General. Last reply by Stephen Cox yesterday. 6 Replies

After spending most of April (2014) in and out of the Hospital.  All started will a gallbladder attack, ended up with a few stents and infections, (not necessarily in that order).  I am about to once…Continue

Latest Activity

ferretlove replied to Kellkell33's discussion New to this group... And this disease.
"HI Kellkell33 I'm fairly new to the disease as well.  I was diagnosed jan 2013. …"
10 hours ago
ferretlove replied to ferretlove's discussion Nutrition and Liver
"EAD3  Thanks for the tums idea.  I think I will try that.  May I ask how long from…"
10 hours ago
Kellkell33 replied to Kellkell33's discussion New to this group... And this disease.
"Thank you all for the welcoming and advice. I am happy I found this site and am able to learn new…"
12 hours ago
mmarques replied to Kellkell33's discussion New to this group... And this disease.
"Hello KellKell.  I am a 60 year old woman who has had Crohn's disease since the age of…"
13 hours ago

Moderator
Stephen Cox replied to Kellkell33's discussion New to this group... And this disease.
"KellKell, Another thing you should do is watch carefully what you eat. It is never a good idea to…"
15 hours ago
marisol replied to Kellkell33's discussion New to this group... And this disease.
"Hello unfortunately this is an altering life situation... skip the drinking ... only if u are in a…"
yesterday
Scott Orn left a comment for Kellkell33
"Hi KellKell -  Huge welcome to the community! This is a great place! One tip, if you have…"
yesterday

Moderator
Stephen Cox replied to Kellkell33's discussion New to this group... And this disease.
"Hello KellKell, Thank you for posting about your situation.it is good that you are in your early…"
yesterday

Top Content 

1 New to this group... And this disease.

New to this group... And this disease.

Posted by Kellkell33 on August 21, 2014

2 Diagnosed with PSC

Diagnosed with PSC

Added by Foxy on August 16, 2014

3 Bile duct cancer. It's a scary reality, so please get checked annually.

Bile duct cancer. It's a scary reality, so please get checked annually.

Posted by Stephen Cox on August 1, 2014

4 ERCP increases the risk of Pancreatitis.

ERCP increases the risk of Pancreatitis.

Posted by Stephen Cox on July 15, 2014

5 The saga continues.

The saga continues.

Posted by mah437 on August 14, 2014

6 ALT AST GGT

ALT AST GGT

Posted by PrincessD on July 29, 2014

7 To add another issue

To add another issue

Added by Lisa on August 8, 2014

8 FOOD IN RELATION TO PSC

FOOD IN RELATION TO PSC

Posted by PrincessD on July 30, 2014

Please click on FIRST TIME USERS and WELCOME! tabs for helpful info, also the Help tab for Links . THANKS!

 
 
 

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Blog Posts

Diagnosed with PSC

Posted by Foxy on August 16, 2014 at 1:00pm 10 Comments

Diagnosed 12 years  ago.  In the lasr two months I've lost 15 pounds.  My bilirubin is 11.  Alk Phos is 728.  Have nausea, fatigue, some internal bleeding.  Very weak, I might add.

To add another issue

Posted by Lisa on August 8, 2014 at 12:21am 4 Comments

Hey everybody,

   Well...on top of riding on a roller coaster with PSC, my husband is now recovering from a 4-wheeler accident. This occurred on Monday-was talking on the phone with my MIL when my cell phone rings-my husband-he tells me…

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