Primary Sclerosing Cholangitis (PSC) - Online Support Group

We are patients living with primary sclerosing cholangitis (PSC), here for you!

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Forum

Hope

Percutaneous tube (PCT) 1 Reply

Thanks, for the warm welcome. This is my first time posting on the discussion board. I was just informed by my physicain today that she would like to place a PCT to drain the bile. I have undergone…Continue

Started by Hope in General. Last reply by Scott Orn on Wednesday.

Paul Hain

Live donor liver candidate search 2 Replies

Have any of you had a live donor liver transplant? My family and friends have been helping find a donor, but it is hard. I am a blood type O, and my family under 55 years old is very small. Only my…Continue

Tags: finding, a, transplantation, transplant, donor

Started by Paul Hain in General. Last reply by Paul Hain Jan 19.

Stacy

Itching ... ? 19 Replies

Hey all, I found this forum after searching for a general support group. I'm 24 and have PSC and mildly active UC. For months now, I've been itching like crazy. Sometimes it's not so bad -- just a…Continue

Started by Stacy in General. Last reply by Paul Hain Jan 10.

PSCMom

Wanting to help my son 9 Replies

My son is 12 years old amd was just diagnosed with PSC, UC, and autoimmune hepatitis. My husband has Crohn's Disease so while the IBD diagnosis was upsetting, it was at least something we are…Continue

Started by PSCMom in General. Last reply by joe Dec 29, 2011.

Welcome to LivingWithPSC.org

Welcome to LivingWithPSC.org

The goal of this website is to help and provide support to people who have been diagnosed with Primary Sclerosing Cholangitis (PSC).

Primary sclerosing cholangitis (PSC) is a chronic liver disease caused by progressive inflammation and scarring of the bile ducts of the liver. The inflammation impedes the flow of bile to the gut, which can ultimately lead to liver cirrhosis, liver failure and liver cancer. The underlying cause of the inflammation is believed to be autoimmunity.[1] The definitive treatment is liver transplantation. (Wikipedia)

Latest Activity

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Scott Orn left a comment for vhallc
My pleasure
2 hours ago
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vhallc left a comment for Scott Orn
Thanks.
2 hours ago
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Scott Orn left a comment for vhallc
Big welcome to the site! We're here for support and info. It's a wonderful group!
4 hours ago
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vhallc is now a member of Primary Sclerosing Cholangitis (PSC) - Online Support Group 4 hours ago
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alimac updated their profile Friday
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Scott Orn left a comment for alimac
my pleasure!
Friday
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alimac left a comment for Scott Orn
Thanks Scott.
Friday
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Scott Orn left a comment for alimac
Hi Ali - so glad you found us! Great that you are here for your son. There are many other parents here!
Thursday
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alimac is now a member of Primary Sclerosing Cholangitis (PSC) - Online Support Group Thursday
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January 2012 Community Newsletter

LifeWithMultipleMyeloma Members, Friends and Family,As we begin a brand new year, envigorated with greater joy and compassion, we renewed our greater commitments to our community. BensFriends grew tremendously in the past three years, and we want to take this moment both to thank you and to make a promise to continue fulfill our mission: to ensure that everyone in the world with a rare disease has a safe place to go and connect with others like them.We’re truly privileged to help you make 2012…See More
Blog post by Ben Munoz Thursday
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Rod and Ellie are now friends Wednesday
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Scott Orn left a comment for Ellie
ahh, that is awesome.
Wednesday
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Ellie left a comment for Scott Orn
 Yes I love it here.  Thank you for your welcome. 
Wednesday
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Scott Orn left a comment for Ellie
Big welcome Ellie! So glad you found us. I've heard New Zealand is a beautiful place!
Wednesday
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Ellie and njzuk joined Primary Sclerosing Cholangitis (PSC) - Online Support Group Wednesday
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Hope left a comment for Scott Orn
I was informed the PCT drain is place in radiology. I will not eat or drink the night before the drain insertion. I will be monitored overnight to assess labs. Frequently, patients experience a slight fever. The bile is collected in an small outside…
Wednesday

Top Content 

1 Percutaneous tube (PCT)

Percutaneous tube (PCT)

Posted by Hope on January 24, 2012

2 January 2012 Community Newsletter

January 2012 Community Newsletter

Added by Ben Munoz on January 25, 2012

Blog Posts

Ben Munoz

January 2012 Community Newsletter

LifeWithMultipleMyeloma Members, Friends and Family,

As we begin a brand new year, envigorated with greater joy and compassion, we renewed our greater commitments to our community. BensFriends grew tremendously in the past three years, and we want to take this moment both to thank you and to make a promise to continue fulfill our mission: to ensure that everyone in the world with a rare disease has a safe place to go and connect with others like them.

We’re…

Continue

Posted by Ben Munoz on January 26, 2012 at 10:00am

idahogrose

DR appointment yesterday

Went to see the doc yesterday.  Had a blood test last week and they missed the liver enzyme test (yeah, the only one that was really needed!).  So after chatting with the doc for a half hour, I got that done.  Results to follow next week.

 

The doc basically said that they are going to schedule an ERCP test probably in the next month or so to take a look.  I don't want LOOKS, I want results!  Nothing seems to keep right on happening.  After no suggestion from my doc I finally…

Continue

Posted by idahogrose on January 13, 2012 at 12:10pm

silent

itching

can anyone guide me at what stage does one experience itching in PSC and in what areas is it felt, and is it frequent.

Posted by silent on December 22, 2011 at 8:24am

Ben Munoz

December 2011 Community Newsletter

LivingwithPSC Members, Friends and Family,

We hope this message finds you well with high spirits and inner joy. We’re happy to inform you that our Primary Sclerosing Cholangitis (PSC) community continuously been growing. And as always, we’re here to give strength and support.

 

--------------------------------------------------------------------------------

IN THIS…

Continue

Posted by Ben Munoz on December 21, 2011 at 12:26am

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