Primary sclerosing cholangitis is a liver disease in which the bile ducts (small tubes through which bile flows from the liver to the gall bladder and intestines) progressively decrease in size due to inflammation and scarring. As a result, bile that is normally carried out of the liver accumulates within the liver, which then damages liver cells. How common is primary sclerosing cholangitis? Although primary sclerosing cholangitis has been considered a rare disease, recent studies suggest that it is more common than originally thought. The disease may occur alone, but frequently exists in association with inflammatory diseases of the colon, such as chronic ulcerative colitis. Primary sclerosing cholangitis affects both sexes, but is more common in men.

Bens Friends

Our mission at Ben’s Friends is to ensure that patients living with rare diseases or chronic illnesses, as well as their caregivers, family, and friends, have a safe and supportive place to connect with others like them.

New Member Introductions

Tell us about yourself. We want to hear your story.


Open discussion about PSC

Symptoms and their Management

What symptoms are you having and how do you cope?

Let's talk about Transplants

This is the place to talk about all things transplant-related. Personal stories and experiences, pre-op preparations, post-op recovery, and emotions surrounding transplants. If you have had a successful transplant, we hope you will help encourage those who are preparing for transplant. No donor solicitations, please.

Articles and Research

Articles may not be peer reviewed or authoritative. Please do not use them as a basis for self-treating

What's New With You?

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Emotional Support

Having a rough time? We're here to listen.

Prayer, Religion & Healing Energy

Because this is an international community made up of people with different faiths and beliefs, we ask that religious advice and prayers be offered here. Start your own topic (+ New Topic) and feel free to ask others to join you, using the “invite” feature at the bottom of the page


News from Bens Friends -

Recommend a Doctor, Therapist, or Clinic (Positive

Want to recommend a doctor, therapist, or clinic? Positive review only, please.


Member Photos and videos

Complementary Therapies

Welcome to Complementary Therapies! This is the place to discuss the array of complementary healing modalities that many of us rely on to help us live healthier lives. Whether you're looking to do more to promote your own health while undergoing medical treatment, or are waiting to get medical treatment and are looking to do what you can to feel better in the meantime, this is the place to post your questions and information. We will discuss everything from acupuncture and chiropractic to nourishing our bodies, minds, and spirits. This is the place to discuss healing modalities that can complement medical treatment.


Events of Interest to PSC Patients. Just contact a mod to have your event listed. (all postings must be approved)


Resource copy of Blogs from old site

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FAQ about the PSC Community

Bens Friends Apps for mobile Devices

Bens Friends Apps for mobile Devices