Living with Primary Sclerosing Cholangitis (PSC) can feel overwhelming. This rare liver disease, which affects the bile ducts and can lead to serious complications, often brings more questions than answers. Because PSC is not widely understood—even among healthcare professionals—patients may feel isolated or uncertain about what the future holds.
The impact of PSC goes beyond the liver. Fatigue, itching, digestive issues, and the emotional toll of living with a chronic condition can affect daily life in profound ways. For many, finding reliable information and compassionate support becomes just as important as managing physical symptoms.
That’s where community makes all the difference. At LivingWithPSC.org, we believe no one should face PSC alone. Our free, supportive online community brings together people who truly understand what it means to live with PSC—patients, caregivers, and loved ones. Here, you’ll find a safe space to share experiences, exchange advice, and receive encouragement from others on the same journey.
Your story matters. Whether you’re newly diagnosed or have been living with PSC for years, connecting with others who “get it” can ease fears, provide hope, and remind you that you’re not alone.
Join us today at LivingWithPSC.org—because together, we’re stronger in the face of PSC.