Author: Rose A.

Living with PSC Patient Support Community is a dedicated patient-to-patient support community for families affected by Primary sclerosing cholangitis (PSC). Living with PSC Patient Support Community is powered by BensFriends.org, a network of patient support communities for rare diseases, and is run by volunteer moderators who have been affected with PSC.

Anyone with or affected by Primary Sclerosing Cholangitis (PSC), including patients and their family members, caregivers, and those experiencing loss due to PSC, can join the patient support LivingwithPSC.org. These communities offer a safe space for people of all backgrounds to share experiences, information, and mutual support regarding the challenges …

Primary Sclerosing Cholangitis (PSC) is a rare, chronic liver disease that affects the bile ducts, causing inflammation and scarring that can lead to serious liver damage over time. People with PSC may experience fatigue, itching, abdominal pain, or no symptoms at all in early stages. It often occurs alongside inflammatory …

Reading posts can be helpful, but creating an account lets you share your own experiences and questions. You can start new topics and receive responses tailored to your situation. It’s a great way to feel heard, get advice, and help others going through similar challenges. Your voice matters—join the conversation …

Found a post that speaks to you? With an account, you can leave comments, offer encouragement, or share your own insights. Engaging with others helps build a supportive environment where everyone feels seen. By joining the conversation, you become an important part of the community. Don’t just read—connect and be …

Creating an account allows you to view member profiles and learn more about their background. You can see if someone is a patient or caregiver, where they’re from, and details about their sleep condition. This helps you find relatable stories and people. It adds a layer of connection you can’t …

Looking for others with similar experiences? Member profiles help you discover people with the same condition or from your area. This can lead to more meaningful conversations and stronger support. Creating an account gives you tools to filter and find those connections. You’re not alone—find someone out there truly understands …

Sometimes you need a one-on-one conversation. With an account, you can send private messages to other members or moderators when you want to talk more personally. Whether it’s sharing something sensitive or asking a private question, messaging lets you connect in a deeper way. It’s your space to reach out …

Without an account, you’re only seeing part of the community. Creating an account unlocks features that let you post, connect, message, and truly be part of the group. You’ll get more out of every visit and feel more supported along the way. Take that step today—join and experience the full …